Child-Neuro: Patient Educational and
Disease Oriented Resource Links - Neurology
Lists
- N-Pat Neurology Patient Discussion List.
Unlike the current listserver Neuro which is oriented towards the physician and has a controlled subscription, N-Pat will be open to all who want to use it. The hope is that neurology patients will use N-Pat as a medium to discuss their problems with other neurology patients.
Subscription address: n-pat@emgmhs.mcg.edu
Subscription message: subscribe n-pat
Contact: Michael Rivner, M.D. Rivner@emg2
- ALS
Subscription Address: bro@huey.met.fsu.edu
Subscription Message: personal request.
This list has been setup to serve the world-wide ALS community. That is, ALS patients, ALS support/discussion groups, ALS clinics, ALS researchers, etc. Others are welcome (and invited) to join. THIS IS NOT A LISTSERVSETUP. Contact: Bob Broedel, BRO@huey.met.fsu.edu
- ALS DIGEST-Lou Gehrig's Disease:
Subscription Address: bro@huey.met.fsu.edu
Subscription Message: personal request.
This publication covers all aspects of Amyotrophic Lateral Sclerosis (ALS), "Lou Gehrig's Disease". This includes ALS patients, patient supporters, physicians, support groups, research centers, etc. Contact: Bob Broedel, bro@huey.met.fsu.edu
- ALTERNATING HEMIPLEGIA OF CHILDHOOD, for all families and doctors concerned with AHC
Subscription address: majordomo@avenza.com
Subscription message: subscribe AHC-L <your E-mail>
- ALZHEIMER Alzheimer's or related dementing disorders
Subscription Address: majordomo@wubios.wustl.edu
Subscription Message: subscribe ALZHEIMER (no name necessary)
ALZHEIMER is an email discussion group for patients, professional and family caregivers, researchers, public policy makers, students and anyone with an interest in Alzheimer's or related dementing disorders in older adults. ALZHEIMER is intended to provide interested individuals from various perspectives an opportunity to share questions, answers, suggestions and tips. ALZHEIMER is an educational service sponsored by the Washington University Alzheimer's Disease Research Center (ADRC) in St. Louis, Missouri and supported by a grant from the National Institute on Aging. Opinions expressed are not necessarily those of the ADRC or NIA. Contact: ALZHEIMER-owner@wubios.wustl.edu
- AUTISM Autism and Developmental Disabilities. To subscribe, send e-mail to: listserv@SJUVM.STJOHNS.EDU Containing the message: subscribe AUTISM
- BATTENS-L Batten disease
Subscription Address: majordomo@avenza.com
Subscription Message: subscribe Battens-l (your address)
- BRAINTMR Brain tumors forum
Subscription Address: LISTSERV@MITVMA.MIT.EDU
Subscription Message: Subscribe <your name>
A forum to discuss topics related to all types of brain tumors whether benign or malignant. Information and experiences are shared among patients, their supporters, all kinds of medical professionals, and researchers who study brain tumor growth/treatment. Contact: Samantha Scolamiero, samajane@athena.mit.edu
- COMMDIS Speech disorders
Subscription Address: comserve@rpieces.bitnet or
comserve@vm.its.rpi.edu
Subscription Message: subscribe commdis firstname lastname
Subscribers: 120 (approximate)
Contact: support@rpitsvm, Comserve Support Staff
- CPPARENT Mailing List, for parents of children with cerebral palsy.
Subscription Address: CPPARENT-Request@sjuvm.stjohns.edu
Subscription Message: personal request - DOWN-SYN Down Syndrome discussion
Subscription Address: LISTSERV@VM1.NODAK.EDU
Subscription Message: Subscribe DOWN-SYN <your name>
A listserv mailing list for discussion of Down's Syndrome. This
mailing list will be gatewayed with the corresponding Usenet
newsgroup called bit.listserv.down-syn. Contact: Bill McGarry (203) 926-
6187
- DYSPHAGIA
Subscription Address: majordomo@cyberport.com
Subscription Message: subscribe dysphagia
Discussion of swallowing disorders from both a clinical and research
view. Contact: phyllis-palmer@uiowa.edu
- EPILEPSY-PRO Epilepsy Professionals' Mail List
Subscription Address: listserv@calvin.dgbt.doc.ca
Subscription Message: subscribe epilepsy-pro Firstname Lastname
Intended for discussions about Epilepsy and seizure disorders by professionals working in this field. Moderated. Contact: Andrew Patrick, Ph.D., andrew@calvin.dgbt.doc.ca
- EPILEPSY-LIST Epilepsy & seizure disorders mailing list.
Subscription Address: listserv@calvin.dgbt.doc.ca
Subscription Message: Subscribe EPILEPSY-LIST Your Name
- GSDnet Glycogen storage disease mailing list for interested families, individuals, and professionals.
Subscription address: listserv@sjuvm.stjohns.edu
Subscription message: subscribe gsdnet your name
You can receive more information about GSDnet by sending the message
info gsdnet to the same address.
- HYCEPH-L An information and support forum for hydrocephalus
Subscription address: listserv@listserv.utoronto.ca
Subscription message: subscribe HYCEPH-L Yourfirstname Yourlastname - Keto-Diet E-mail List If you are a physician, nurse, dietician, or a health provider,
you can subscribe to the ketogenic diet e-mail list by sending an e-mail to
majordomo@lists.stanford.edu.
The body of your message should say "subscribe ketogenic-diet."
After you are on the list, you can send messages to all other subscribers by sending e-mail to
ketogenic-diet@lists.stanford.edu.
Please, we ask that only health care professionals belong to this list.
You can also call us at 415-723-6841 or email John Sum, M.D., at jsum@leland.stanford.edu.
- MUSCULAR DYSTROPHY
Subscription address: MD-List-Request@Data.Basix.com
Subscription message: subscribe - MSLIST-L Multiple Sclerosis
Subscription Address: listserv@technion.technion.ac.il.
Subscription Message SUB MSLIST-L YourFirstName YourLastName
Address for Postings: mslist-l@technion.technion.ac.il
Subscribers: 140 (approximate)
- PARKINSN Parkinson's Disease Network
Subscription Address: LISTSERV@VM.UTCC.UTORONTO.CA
Subscription Message: Subscribe PARKINSN <your name>
Parkinson's Disease Information Exchange Network. PARKINSN is an open, unmoderated, international forum that provides an information exchange network for individuals interested in Parkinson's Disease. Contact: Barbara Patterson, patterso@fhs.csu.mcmaster.ca
- RETT NETWORK
For parents, teachers, therapists, and professionals involved with Rett patients
Subscription address: majordomo@paltech.com
Subscription message: subscribe rettnet - SLEEP-L For discussion of sleep disorders
Subscription Address: LISTSERV@QUCDN.BITNET
Subscription Message: Subscribe SLEEP-L <your name>
Membership is restricted to health care providers involved in academic or clinical pursuits related to sleep or discussion of sleep disorders.
- PEDSLEEP (Moderated). Pediatric sleep list which covers developmental and clinical sleep-related issues from birth to adolescence. The list is open to all medical and education professionals involved in child-care. Available through subscription. Contact: Sadeh@ccsg.tau.ac.il
- BIFIDA-L Spina bifida
Subscription Address: listserv@mercury.dsu.edu
Subscription Message: subscribe BIFIDA-L
Contact: Loren Aman, AmanL@columbia.dsu.edu
- STROKE-L Stroke Discussion List
Subscription Address: LISTSERV@UKCC.uky.edu
Subscription Message: Subscribe STROKE-L <your name>
Subscribers: 80 (approximate)
The purpose of the Stroke List (Stroke-L) is to share information and opinions, ideas and inquiries that relate to the topic of stroke or Cerebro Vascular Accidents. All interested subscribers are welcome to discuss any stroke-related topic ranging from interesting cases to basic science issues. Contact: Bob Moore, STR002@UKCC.UKY.EDU
- STUTT-L Stuttering: Research and Clinical Practice
Subscription Address: LISTSERV@VM.TEMPLE.EDU
Subscription Message: Subscribe STUTT-L <your name>
Subscribers: 100 (approximate)
- THICVA-REQUEST Traumatic Head Injury
Subscription Address: LISTSERV@STJHMC.FIDONET.ORG
Subscription Message: Subscribe <your name>
Provides for the discussion of Traumatic Head Injuries, Cerebrovascular Accidents, and other related Intracranial Malformations.
- TOURETTE SYNDROME
Subscription Address: majordomo@igc.apc.org
Subscription Message: subscribe pov.twitch
- TSCTALK Tuberous Sclerosis
Subscription Address: tsctalk-requests@pebbs.com
Subscription Message: subscribe
This list is dedicated to supporting people with TS, their families and friends.
Go back to Child-Neuro Homepage
Go back to Child-Neuro Linkage Elsewhere page
Go back to Patient Educational and Disease Oriented Resources page
For questions or comments, contact
Steven Leber, M.D., Ph.D. Leber@umich.edu or
Kenneth Mack, M.D., Ph.D. Mack@waisman.wisc.edu
Last updated 04 July 2004
by Leber@umich.edu.