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MESSAGE BOARD Archive March 2002

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Sunday, March 31, 2002 -- 09:42:25 (EST)
Name: charlie -- Email:
Location: west cester, pa usa
  • Simon
    sorry, I hit the enter button acidently. Anyway, as I ws saying, keep eating all the foods that are good for you and YOU WILL WIN THIS FIGHT !!!!

    Your new friend,

    Saturday, March 30, 2002 -- 21:02:25 (EST)
    Name: Kyin and Jori -- Email: metry@aaps.k12,mi,us
    Location: ann arbor, mi usa
  • Kyin remembers playing dinosaurs with you, do you remember that? And we love you, Kyin and Jori

    Saturday, March 30, 2002 -- 13:50:32 (EST)
    Name: Tatiana/ Matthias -- Email:
    Location: Saline, MI USA
  • Dear Simon,
    My son Matthias came home for Easter and he is by my side sending you a big hug.
    I am very happy to know that you are eating all these healthy food. It will make you stong enough to fight the "balls" as you call them. Way to go, big boy!
    We are still praying for your recovery, and for you to have pacience and faith. God is with you always!
    Happy Easter to you, to your sister Miriam, and to mom and dad.
    Tatiana and Matthias

    Friday, March 29, 2002 -- 15:08:57 (EST)
    Name: Sally Olson
    Location: Seattle, WA
  • Hi. Just want you to know that you are not alone in this place of waiting. All of us are waiting and praying and hoping with you.
    Jim saw Lexi and Madi's mom, Lawrie, at the Children's Hospital here where they both work! They talked about you!! We actually keep in touch better by reading your message board than by seeing each other here in Seattle. You pull us together! I hope to see them soon. I'd love to see you all soon, too; we're trying to figure out a time when we can visit Michigan.
    Hang in there and remember all of us who are supporting you each step of the way!
    Love, Sally

    Friday, March 29, 2002 -- 06:58:03 (EST)
    Name: Julie Lautens -- Email:
    Location: Toronto, Ontario Canada
  • Hi everyone - I'm Simon's aunt and wanted to share an amazing web site with you containing many good links to scientific sites and sites of other children battling neuroblastoma:

    All the best - Julie

    Thursday, March 28, 2002 -- 13:09:04 (EST)
    Name: Jacqui, George & Emily Shambaugh -- Email:
    Location: Oakton, VA USA
  • Hi, Simon!
    What clothes does a house wear?
    What did the sock say to the foot?
    (You're putting me on!)
    Why are potatoes good detectives?
    (They keep their eyes peeled!)

    You're wonderful and brave and we think about you all every day. Keep taking those wonderful lemon baths!

    Wednesday, March 27, 2002 -- 19:39:56 (EST)
    Name: Linda -- Email:
    Location: Howell, MI USA
  • Dear Simon,
    We enjoyed looking at your pictures from your trip to the zoo. It looks like you had alot of fun. I have two web sites for your mom to check out so far. & These will give you the information we were talking about. Soon we will schedule a play day with Kyle.
    Hang in there buddy. We are praying for you.
    Linda, George, & Kyle Kraljevich

    Wednesday, March 27, 2002 -- 14:32:54 (EST)
    Name: Melissa Eljamal
  • Simon: thanks for explaining to me what those things behind my knees are called! Legpits is definitely a word I'll have to teach Khalil!
    Hugs and kisses from Melissa, Akram, Khalil and Mekarem

    Tuesday, March 26, 2002 -- 14:34:46 (EST)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY USA
  • Hi, Simon! I liked when you said that the actors in Frog and Toad were being so still that they could have had a scan! My kids and I were playing a game this weekend that was kind of like that: We all moved around doing crazy, wiggly things, making funny faces at each other until the person who was "it" said "freeze." Then we all had to be still as statues (or as people getting scanned!). If anyone moved, then they were "it" next. Danny decided, though, that Laura should get "3 strikes" before she was "it," 'cause she's the youngest and it's sometimes hard for her to be still. Sounds as though *you've* learned how to be still, though! Hey, maybe you and Miriam and your friends could try this game sometime -- if the other kids don't know how to do it, you can show them all how to "freeze" because you're getting to be such an expert!

    Congrats to your dad on his job offer; congrats to Miriam on being 2-1/2; congrats to you and your mom, too, for keeping your good senses of humor while you're working with your doctors to make those balls say "Adios!" Keep up the good work! Love, Kris, Rob, Emily, Danny, and Laura Hopkins

    Monday, March 25, 2002 -- 20:42:12 (EST)
    Name: Liza
    Location: Ithaca, NY
  • Hi Simon,
    Thought you might want to see some chickadees on their eggs. Must be a sign of Spring!
    Keeping you all in our thoughts and prayers.
    xo Liza, Mike, Jolan and Jenna

    Monday, March 25, 2002 -- 10:08:56 (EST)
    Name: Lexi and Madi -- Email:
    Location: Seattle,
  • "Hi Simie, I want to tell you a jokey bokey. Why did the chicken cross the road?. . . 'cause he needed to go to the computor" says Lexi.
    We love looking at pictures of you and Miriam and thought it was especially neat to see you both looking at a computor in one of the pictures because that is what we are doing right now. Madi signs, "The Same!!!"
    Madi wants to tell you about something special that happened last night. The tooth fairy came and took her first tooth and gave her "lots of money, 1,2,3,4 quarters"
    We love you lots and hold you all in our thoughts and prayers.

    much love, Lawrie, Curt, Madi and Lexi
    Lexi has one more important thing to say, "GO AWAY LUNG BALL, GO AWAY LUNG BALL, GO AWAY LUNG BALL" --She speaks for all of us.

    Saturday, March 23, 2002 -- 23:16:46 (EST)
    Name: Erik Andrews
    Location: Davidsonville, MD
  • Hi Simon -

    Now that you know how to wash your armpits and legpits, and you take your mom and dad out to the movies, you should ask them to watch Shrek with you. Right at the beginning of the movie, Shrek washes his armpits with lots of MUD! You'd love it!

    I was glad to hear you got to visit all your Oberlin friends and specially your First Church family. I know many of them are praying for you. As are we here in Maryland.

    Have a great day!

    Friday, March 22, 2002 -- 13:51:22 (EST)
    Name: Ben & Gracie & their grown-ups -- Email:
    Location: Ann Arbor, MI USA
  • Hi Simon

    We like your new pictures! We hope you are going to "Frog and Toad" tomorrow because we want to see you there!

    Miriam, Gracie says "Miriam is my friend" too!

    Friday, March 22, 2002 -- 11:56:18 (EST)
    Name: Liza Burger -- Email:
    Location: Ithaca, NY
  • Hi All,
    I so enjoyed looking at the new pictures this morning! We're particularly intrigued about the celebration over Markus' job offer. We'd love to hear more about this, and send our congratulations!
    Simon and Miriam-- we love the pictures of your playroom! When we lived in family housing near you, I think your playroom had a big comfy (blue?) chair in it, but by the looks of things this was moved to accommodate all your "fun stuff!" Thinking of you often!

    Thursday, March 21, 2002 -- 17:30:46 (EST)
    Name: Sally
    Location: Seattle,
  • Happy Half Birthday Miriam! I can't believe what a big girl you're getting to be. Hi Simon, glad you're home again!
    Sending all my love, Sally

    Tuesday, March 19, 2002 -- 22:09:40 (EST)
    Name: Sally Hennessy -- Email:
    Location: Ann Arbor, Michigan
  • Simon, WOW!!! The report of your progress is such WONDERFUL news! You must be working so hard to feel better! GREAT JOB!!! Tell your Mom and Miriam I'm sure glad Miriam found the food to be good at the provost's party. While you're working at getting better, I'm working at University Catering. And I helped make sure that party went well! What a cool coincidence your mom and sis were there! Lots and lots of love, hugs and prayers for good health to ALL of you guys!! Sally

    Monday, March 18, 2002 -- 21:47:32 (EST)
    Name: George and Pete Andrews -- Email:
    Location: Oberlin, OH
  • Hi Simon,
    Sounds like you're feeling better these days. We keep you in our prayers and are so grateful when things are going better for you. Keep up the good work.

    Monday, March 18, 2002 -- 11:26:25 (EST)
    Name: amy sheon -- Email:
    Location: ann arbor, mi
  • Dear Simon:

    I've been thinking about you and read all about what a great job you've been doing with your treatments-and also that it sounds like you're learning all your numbers and starting to read and getting ready for kindergarden! My son Jesse is also getting ready for kindergarden. He's the red head who was at the library with me when we saw you and your mom a few weeks ago. He spent a week at Mott's a year ago for a serious illness and now, a year later, hardly remembers it. I hope that it won't be too long until you're all recovered and don't even remember all this yukky stuff! And Jesse's little sister Evie also goes to Gari music class. So I think about you and your family alot--you are all in our hearts and prayers.

    Monday, March 18, 2002 -- 10:09:15 (EST)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY USA
  • So good to hear that, even though you had to go back into the hospital, you're feeling better again -- loved the story about you and Miriam finding good hiding places among the hospital carts and beds parked in the halls! You guys sure do know how to make your own fun, don't you! Have a great day, and keep up the good work. I'm sending all kinds of good wishes from my family to yours....

    Kris, Rob, Emily, Danny, and Laura Hopkins

    Sunday, March 17, 2002 -- 21:32:15 (EST)
    Name: Diane Friebert -- Email:
    Location: Oberlin, OH
  • Hi Simon,
    A man drove by with a car full of penguins. "Sir," I said, "you should take those penguins to the zoo!"
    The next day he drove by again and HIS
    "I thought I told you to take athem to the zoo!" I said.
    "I did," he answered. "Today we're going to the beach."

    I hope you like that joke.
    Love and prayers,
    Diane, a friend of your Oberlin grandma

    Sunday, March 17, 2002 -- 17:34:32 (EST)
    Name: Annette
    Location: Oakland, CA
  • All,

    Can't tell you how wonderful it is to be able to check in and know how you all are doing. It's so nice that technology really does improve some things. Hope you are back out of the hospital soon.

    Love, Annette

    Saturday, March 16, 2002 -- 13:38:17 (EST)
    Name: Marly Merrill -- Email:
    Location: berlin, OH USA
  • Just a note to say we're following your reports on Simon's website and we think of you all EVERY day!

    Saturday, March 16, 2002 -- 11:51:35 (EST)
    Name: Rebecca -- Email:
    Location: Oberlin, OHIO USA
  • Hi Simon!
    It was such a joy to visit with you and your family in Oberlin two weeks ago. We're sending pictures to you from that time. It sounds like you've been handling the last few ups and downs with your usual good cheer. It was special to see all the love between you, Miriam and your mom, dad and grandma when we got to play together here in Schuyler's house. You are a brave and intelligent trouper! You taught us so much about what your treatment is like, especially when you told us about your Broviac site, which really does make you look like the superhero you are! We keep sending you our love and strength each and every day.

    Hugs to everyone,

    Rebecca, Randy, Emma & Schuyler

    Friday, March 15, 2002 -- 19:54:54 (EST)
    Name: Lexi -- Email:
    Location: Seattle, WA
  • Lexi, "Let's go home and tell Simon about the magic carpet and the snow"
    Lawrie, " What do you want to tell him?"
    Lexi, " I'm not sure yet 'cept it would be funner if Simon was on the magic carpet with us, then we would be 1,2,3 good skier kids. Maybe the magic carpet could make him not be sick"

    Madi, Lexi and I drove to the mountains this morning to rent skis, ride the magic carpet (essentially a conveyor belt on a very gentle, gentle slope at the base of the mountain.)They skied and I walked, ran along with them. A good time was had by all and you were all in our thoughts.

    We love you all and hold you in our prayers always.

    Friday, March 15, 2002 -- 00:10:20 (EST)
    Name: Tom Schnauber -- Email:
    Location: Northfield, MN
  • Hey Simon--I haven't checked in on you in a while. Things have been a bit busy here. We have a new little friend in our family. His name is Johannes, and I've told him all about the fun times you and I have had in Ann Arbor, and he's already wanting to come out and play. Hopefully you guys will have a chance to meet sometime soon, and then all three of us can play in the sand box. Give your mom, dad, and sister a big hug for me, and two big hugs for yourself!--Tom

    Thursday, March 14, 2002 -- 17:23:34 (EST)
    Name: Jill Mhyre -- Email:
    Location: Ann Arbor, MI
  • Simon and the 3 M's--
    I love getting updates on this web site, especially when they are good ones! Simon, you sound like you are getting stronger. Keep up the good work.

    Tuesday, March 12, 2002 -- 20:45:30 (EST)
    Name: Lee Williams
  • Simon - I am so glad you are through with your last chemo time and have such a good time with friends in Oberlin and at the Toledo zoo. We are going to celebrate Lucy's birthday here Friday night and Liddy, Martin, Justin,Jacob, Mara and my friend Anne Sayre who has just come back from Guatemata will be here too. I think of you often and will plan to stop to see you on my way to Crystal the later part of May.

    Tuesday, March 12, 2002 -- 15:15:49 (EST)
    Name: Sally Olson
    Location: Seattle, WA
  • Hi all! Glad to hear that Simon is feeling so well! We are enjoying a visit from Amy and Sarah's Gram (from Oberlin). Sending lots of love your way!!!
    Sally, Amy, Sarah and Jim

    Tuesday, March 12, 2002 -- 02:31:22 (EST)
    Name: Julia -- Email:
    Location: Frauenfeld, Switzerland
  • You should have seen the smile on my face as I read that you felt so good when you got home yesterday. Way to go, Simon! Love, Julia

    Sunday, March 10, 2002 -- 14:44:19 (EST)
    Name: Connie Bob, Alicia and George Lippert -- Email:
    Location: Ann Arbor, Michigan
  • Hello Simon, Mary, Markus and Miriam,
    We just visited your marvelous web site and think it's just great. We are all praying for you and hoping for your speedy recovery!
    Your Friends,
    The Lipperts

    Friday, March 08, 2002 -- 15:16:10 (EST)
    Name: Andrea Brown -- Email:
    Location: Ann Arbor, Mi
  • Hey, Mary and Markus, it was so great to meet you both at the Ann Arbor Open School Open House earlier in the week. I love the way the universe brings together folks that need to be together! I just checked out your website. The photos of the hospital reminded me so much our time there. Although it can be so difficult, the love and support of all the staff there really eases things. Everyone was always so kind. And the funny thing is, we've been removed from it for almost two years now, and I hardly ever think of it. Ruby is better and the family has moved on and that is how it will be for you. Simon will go to K-garten and you'll be so busy with all that goes along with LIFE that this will become a distant memory. It will. If you have any questions about the open school, or our families experience with cancer, please contact me. I would love to bring your family a meal next time he's admitted, or better, from our experience, right when he comes out after chemo. We had so many meals brought by people we didn't even know, and that was so helpful. Or anything else. Please.

    Love and prayers to your family from our family, Andrea, Jerry, Madeline (K, in Frans class), Alice and Ruby (a cancer survivor, herself!)

    Thursday, March 07, 2002 -- 15:17:02 (EST)
    Name: Gabriel Ramalho -- Email:
    Location: Fortaleza, Ceara' Brazil
  • Hi Simon, Mary, Marcus and Miriam

    I am Gabriel Ramalho and I used to play in the same courtyard. My dad Fernando and my mom Angela were the Community Aid last year.

    We are back to Brazil, and we are living now in the city of Fortaleza. We just knew about your web page today. It is great!!! Wonderful idea!!!! . We missed you and your sister, Family Housing, Ann Arbor and all our friends including you and your family.

    We known for sure that in January 2003 you will be ok, and at that time I wish you can visit us here in Brazil and you can play with me in the sand dunes that we have here. You are going to love.

    If me, my mom or my dad can help in any away, please let us know!

    Hugs and kisses


    Thursday, March 07, 2002 -- 10:23:47 (EST)
    Name: Ellen Roussey -- Email:
    Location: Ann Arbor, MI USA
  • Hi Simon! I just visited your web site for the first time today. It's great! My son Cully was in your class at church and he's been helping me pick out cards to send to you. I hope you've been enjoying them.

    I hear that your treatments have been going well. I hope they keep right on going well! Keep up the good work! We're thinking of you and sending good wishes your way.

    Wednesday, March 06, 2002 -- 13:51:47 (EST)
    Name: Gari Stein -- Email: Garistein@aol
  • Hi Simon, What a great surprise to see you at music class yesterday. One of my moms who did not realize you were sick, told me when she first met you she was hoping her little boy would be just like you. I thought that was pretty special. I noticed you were playing with the energy chime. I just love how the sound lingers and lingers after you tap it. It looked like Miriam enjoyed having you there too. I hope you can come back soon. Much Love, Gari

    Wednesday, March 06, 2002 -- 13:49:35 (EST)
    Name: Gari Stein -- Email: Garistein@aol
  • Hi Simon, I was so surprised to see you at music class yesterday. It sure was fun to have you there. I noticed you enjoying the energy chime. I just love how the sound lingers and lingers. One of the other moms didn't realize you were sick and she told me when she first met you, she had hoped her little boy would be just like you. I thought that was pretty special. I hope you will come back soon. I think Miriam enjoyed having you there too. Much love, Gari

    Wednesday, March 06, 2002 -- 13:25:16 (EST)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY USA
  • Hey there, Simon! Hi to Mary, Markus, and Miriam, too! I know it's important to keep going to the hospital for your chemo treatments, but it's probably nice to have a rest from that sometimes, too, huh? When my mom was getting cancer treatments and her doctors told her she'd have to wait a little while for her next one, she'd call us up and say happily, "I got a reprieve today!" Reprieve is a pretty big word, but it just means a temporary rest or a little time-out from something that's uncomfortable or unpleasant. Sometimes those few extra days of "reprieve" made it a lot easier for her to go back and start up her hard work again. I bet your trip to the zoo and to Oberlin and anything else fun you get to do while you're waiting will give you some super good feelings to carry over to those chemo times whenever they come again. So continue to enjoy your "reprieve!"

    Here's a new joke from Danny (this one's a doctor joke, which seems appropriate!) -- Q: Why did the doctor lose her temper? A: Because she was short of patients! [Danny says: Get it? -- patients, like the people the doctor takes care of; and patience, like "you're trying my patience." Ha, ha!] Try that one on your doctors and nurses when you go back to the hospital -- it's sure to get a chuckle out of them, even if *they're* feeling short of patience that day!

    Keep up the good work, Simon!

    Love, Kris, Rob, Emily, Danny, and Laura

    Wednesday, March 06, 2002 -- 01:03:41 (EST)
    Name: Sally Olson -- Email:
    Location: Seattle, WA
  • Hi Simon, Mary, Markus, and Miriam,
    My Mom told me she got to see you two times in the past week! I am glad to know you got more time at home before the next chemo.
    Sarah and Amy love to look at the Beanie Baby site you have on "Simon's Favorites".
    Just want you to know we're thinking of you and send lots of love your way!!!

    Monday, March 04, 2002 -- 22:45:14 (EST)
    Name: Nancy Hoetker -- Email:
    Location: Champaign, IL USA
  • Hi, Simon!
    It's been a while since I've written, but Glenn and I are keeping tabs on you through this site. We laughed to see what you'd done to yourself and Miriam with the face paints we sent. Glad you've enjoyed them!

    We're going to FL in a week...any requests from Orlando?

    Monday, March 04, 2002 -- 15:22:32 (EST)
    Name: Lawrie, Curt, Madi and Lexi
    Location: Seattle, WA
  • Hi Simon,
    We are all thinking about you as you go back to the hospital today. I work in a hospital for kids kind of like your hospital. When I was in the elevator on Friday a young girl told me a good joke (you may have already heard this one) Why did the cookie go to the hospital. . .? because he felt crummy! We sure hope you don't feel crummy.
    Can you feel all our long distance hugs,kisses. If you close your eyes can you remeber what it felt like when uncle Curt would throw you high up in the air?

    We love you lots and we are holding you in our prayers.

    Monday, March 04, 2002 -- 13:09:35 (EST)
    Name: Katie Kyndely -- Email:
    Location: Ann Arbor, MI USA
  • Hi Simon,
    I am a member of your Church and saw your Web site address in the Church Bulletin. It is a terrific site. I enjoyed seeing the pictures of you and your sister and reading your Mom's updates. Sounds like you will be starting treatment at Mott again today.
    I also wanted to ask you if I can show your Web site to the Social work Students that I teach at the University. When they graduate, some on them will be working in hospitals like Mott and with other children who have cancer. Seeing your Web site may help them plan ways the children they work with can keep in touch with friends and family.
    I hope this will be okay with you. If so, I will let you know what their comments are. I hope all goes well today and you get out as soon as planned.
    Katie kyndely

    Monday, March 04, 2002 -- 01:17:17 (EST)
    Name: Annette Steve and Rowan
    Location: Oakland, CA
  • Simon,

    Just wanted to wish you luck with Chemo this week. Wish you could wait longer before you had to go back but know you want to keep getting rid of those balls. We went to the snow this weekend and thought about how you get to see snow more often than we do. Rowan skied down the mountian and looked like a martian in his helmet. We'll be thinking about you tomorrow. Rowan is starting to sound out a lot of words and he knows yours starts with the ssssssss sound just like snake.

    love AS&R


    Sunday, March 03, 2002 -- 20:44:39 (EST)
    Name: Gari Stein -- Email: Garistein@aol
  • Hi Simon, yeah for no more injections right now. Maybe you will feel up to coming to music class one day soon. Miriam is really singing. I got to visit my grandaughter this weekend, and she is walking. She reminds me of when I first met you. I think you were a pretty new walker then. I hope I get to see you soon. Much love, gari

    Sunday, March 03, 2002 -- 18:41:47 (EST)
    Name: Julia Welch -- Email:
    Location: Houston, TX USA
  • Hi Simon,
    You are amazing! I am proud of you for being such a trooper through all of these hospital visits. Tell your mom and dad hello from me. I'll keep sending you my good vibes!

    Sunday, March 03, 2002 -- 11:02:55 (EST)
    Name: Andre Gross-Fasheun -- Email:
    Location: Ann Arbor, MI
  • Simon,
    I want to tell you that I'm pretending to be a big dog today. My name is Cada The Dog. I'm collecting my piggy bank money at my Nanna and Poppop's house. It spilled. I'm in Midland but I'm coming back to Ann Arbor today. I want to know how you are doing. Maybe we can play when I get back. When I get back can you come to my house? We could watch Little Bill, the one where he dresses up like a big boy. And I want to show you my number two money. I will call you soon. Bye, I hope you will see me soon. Love Andre

    Saturday, March 02, 2002 -- 11:26:23 (EST)
    Name: Emily Ganzel -- Email: efg5317@yahoo,com
    Location: Minneapolis, MN
  • Dear Simon:
    I knew your mommy when she was your age! (Mary--I am visiting Sarah Friebert in Delaware this weekend & she directed me to this site.) I really enjoyed your web site & I can tell you are a pretty incredible kid! I hope you're feeling better & I'll be thinking about you next week!
    Emily Ganzel
    P.S. Ask your mom to tell you how we used to wrap up "presents" to give to each other when we were little (do you remember that, Mary?)

    Friday, March 01, 2002 -- 20:59:02 (EST)
    Name: Kyle (Linda Kraljevich) -- Email:
    Location: Howell, MI USA
  • Dear Simon,
    My name is Kyle. My mom knows your mom. I just want you to know my mom, dad, and I have been praying for you and we will keep on praying for your healing. I hope we can play sometime.
    Your friend,


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