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MESSAGE BOARD Archive April 2002

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Tuesday, April 30, 2002 -- 13:19:15 (EDT)
Name: Anne Adams -- Email:
Location: Northfield, MN USA
  • Hi Simon! I'm glad that you're donr with the latest round of chemo, and that your Gran could be with you in the hospital. Tommy and Johannes and I are really looking forward to seeing you when we come to Ann Arbor in early June! Give a big hug to Miriam, and your mom and dad, and an extra huge one for yourself from us!!

    Tuesday, April 30, 2002 -- 11:33:39 (EDT)
    Name: Bonnie -- Email:
  • Hi Simon
    I had SO MUCH fun with you last week! I know it's been a while since I had last seen you, but you really impressed me with how SMART you are - and now that I've had a chance to read your Simon Says page, well I"m rather overwhelmed! I'm so glad your Mom showed me this web site - Now that I know where to find you I will check it often! I hope you are feeling okay after your chemo and although I'll be out of town next week and unable to check your site, I will be thinking and praying for you. You have lots and lots of love coming your way! Say hi to your sister for me :)

    Monday, April 29, 2002 -- 22:24:30 (EDT)
    Name: Tatiana -- Email:
    Location: Saline, MI USA
  • Dear Simon,
    I have not written for a while, but I constantly pray for you.
    I work at Family Housing, which is very close to you house. I talked to Carla, your "Community Aid", and she told me that you are neighbors. Carla and her husband are from Brazil, and so am I. Carla said that she will take me to visit you one of these days. May I? I would love to!
    Simon, I am sending your web site to Brazil. I hope they will send you messages besides praying for you.
    I will ask my Brazilian friends to mentalize your Neuroblastoma melting and dissolving like sugar in water.
    Have a nice sleep, have sweet dreams, and wake up tomorrow full or energy and
    faith in God's healing power.

    Monday, April 29, 2002 -- 16:18:54 (EDT)
    Name: Lawrie
    Location: Seattle, WA
  • WOW! What a WONDERFUL image of Simon doing his yoga. Holding his Vulcano pose and letting all around him know he is filled with LIFE!
    I love you Simon and your whole family.


    Monday, April 29, 2002 -- 12:04:47 (EDT)
    Name: Karen Zaruba -- Email:
    Location: Ann Arbor, MI
  • Simon, I had to laugh when I saw the photo of you throwing rocks at the Detroit Zoo. Giving the chance to do anything he wanted, ever, my son Kirk would pick throwing rocks every time. He especially likes to throw them into water. His grandparents live on a lake and I think one of these days he is going to fill the lake up completely!

    Sunday, April 28, 2002 -- 20:26:57 (EDT)
    Name: Diane Logan -- Email:
  • Just wanted to tell the family and Simon hello and we have been viewing your web site often and keeping up on events and trying not to bother you with your hectic schedules, but if I can ever be of assistance, please let me know. Wishing for warm weather so Simon can get out to the play ground, it seems like you have had many adventures. So take care and know we are thinking of you. Love to all

    Friday, April 26, 2002 -- 13:10:59 (EDT)
    Name: Penny Pasque -- Email:
    Location: Ann Arbor, MI USA

  • Hello Simon and Mary,
    It was SO nice to see both of you today. Thank you for inviting me to come check out the pediatric infusion room. My favorite part was the glass ceiling, where you could look out and see the sky!

    My second favorite part was watching Simon draw. You are right Simon, you are an excellent artist!

    Take care,

    Thursday, April 25, 2002 -- 11:49:04 (EDT)
    Name: Lindsay Gross -- Email:
    Location: Ann Arbor, Michigan
  • I thought I would share a wonderfully fun interaction Simon and I had last night in our backyard here at Family Housing. Simon had been plucking flowers off bushes and managed to find a ladybug to enjoy. He brought it over to share with everyone, and then said. . .

    Simon: Whenever I pick up ladybugs they pee on me (giggling).

    Me: Why do you think they do that?

    Simon: They must think I'm a toilet!

    Thursday, April 25, 2002 -- 00:07:10 (EDT)
    Name: Sally Olson
    Location: Seattle, WA
  • Hi guys! Sounds like you've been busy but good that Simon's been feeling pretty well. We are enjoying some spring weather here, finally! No 80 degree days here, though!
    Tomorrow is Sarah's birthday so I'm busy tonight making cupcakes and wrapping presents. It'll be a fun day. You have a birthday pretty soon, too, Simon! Yay!
    Well, as always, I'm sending lots and lots of LOVE from all of us.

    Wednesday, April 24, 2002 -- 03:22:54 (EDT)
    Name: Julia -- Email:
    Location: Frauenfeld, Switzerland
  • Wow! Your and Miriam's new sweaters are beautiful -- they have strong, bright colors for the spring. Your Easter egg hunt looks like it was fun. Alma and Serena had their Easter egg hunt in France, at Emily, Eric and Noah's house. The three kids each had a section of the yard for looking. Boy did they find a lot of chocolate! Wishing you all the best! Love, Julia, Christoph, Serena & Alma

    Tuesday, April 23, 2002 -- 13:24:44 (EDT)
    Name: Jen Boylan -- Email:
    Location: Ann Arbor, Michigan
  • Hi Simon and Miriam!!
    My name is Jen and I was lucky to meet the two of you one day at Zingerman's while you were chomping on some good bread! I just love the website you have, especially all of the really cool pictures you have posted. I went to the animal websites too and I decided that I have a new favorite animal: the spotted hyena! I wonder if you saw any at the zoo yesterday...
    Anywho, I'm really glad I was able to meet the two of you. I'm a teacher and I told my students all about you, so hopefully they will visit your website soon too! In the meantime,
    I'll be thinking about you...
    ps. simon, do you know where I can find such a cool pair of super duper flashy shoes like yours?

    Tuesday, April 23, 2002 -- 11:30:17 (EDT)
    Name: Jane Stepnitz
  • Hi Simon! Thanks for the updates on what's going on. Sounds like you had a great time at the zoo - we like the reptile house too (except Abbey's Dad - he doesn't like the snakes!) Did you get to check out Amphibiville?? It's cool too! We are glad to hear that you're doing well! We think and pray for you every day! Love, Jane, Abbey, Katie and Eric Stepnitz

    Tuesday, April 23, 2002 -- 10:27:48 (EDT)
    Name: Irene Judmayer -- Email: i.judmayer
    Location: Linz, Austria Upperaustria
  • Hi, Simon! My name is Irene and I am a kind of "far away aunt" from you and Miriam. Your Grandma is my – I don't know the expression in English – "Firmpatin" and I even was babysitting your Dad, when he was about two years old.
    I'm living in the town where your greatgrandmother, the Mum of your Stuttgart Grandfather is living.
    This city is called Linz and lies on a river called "The Danube".
    Three weeks ago the river was in flood. In front of my house (it has four floors and I live in the 4th one) it was like living nearby the seaside with big waves and doves all around.
    Some Ducks have been swimming on the soccer-ground and I think Father Duck was really Offside all the time. He certainly has to get the "red card" for breaking all rules.
    Even the Halfpipe for the Skaters has been flooded, so the boys and girls better went windsurfing than skating.
    Dear Simon! I send you lots of good energy and good hopes.

    Tuesday, April 23, 2002 -- 03:35:22 (EDT)
    Name: Robin -- Email:
    Location: Diepholz, Germany
  • Ich bin Robin und 10 Jahre alt.Seit 18 Monaten habe ich einen Hirntumor(Ponsgliom).Ich kann mich nicht mehr bewegen und nicht mehr sprechen,würde mich also über viel Post sehr freuen

    Monday, April 22, 2002 -- 16:50:09 (EDT)
    Name: Nana Dina and GoodieDick -- Email:
  • Hi Simon and Miriam!
    Your Mom knit you some really COOL sweaters. She is one talented lady. I just saw them on the web site. We are going to Bolivia this week to see our grandchildren, Sarah and Jacob. We will send you a card from Bolivia. Bolivia is a long long long way from Oberlin and Ann Arbor. We think of you both and your Mom and Dad a lot .
    Love, Nana Dina and Goodie Dick

    Sunday, April 21, 2002 -- 21:27:42 (EDT)
    Name: Julie Steiff -- Email:
    Location: Ann Arbor, MI USA
  • Hi, All--

    Dear Mary, Markus, Simon & Miriam:
    Haven't seen you in a while, but I wanted to let you know I've been thinking about you all and visiting this marvelous web site. What a wonderful way to bring people together. I'm very impressed--and touched! Thank you for providing such a good way for us to follow Simon's progress.

    Sunday, April 21, 2002 -- 11:48:40 (EDT)
    Name: Beverly Davidson -- Email:
    Location: Ann Arbor, MI USA
  • Hi Simon,

    This is Beverly, Amelia's Muime...Linda told me about your website so I visited there today. Last time I saw you, you showed me some of your yoga poses, and Amelia and I tried them later that day. She laughed and laughed because she kept falling over, and so did I! My prayers are with you, Simon. See you at Linda's real soon.

    Saturday, April 20, 2002 -- 12:18:53 (EDT)
    Name: Madi and Lexi -- Email:
    Location: Seattle, WA
  • Hi Simon,
    "I like you!!!! I want to see you", I wish you could come to my house" "I want to play with you" "We could play house" Love, Madi

    Hi Simon,
    "My Nana and Papa were visiting but, now they are gone-- I wish and hope you are feeling good.""Do you know what we are finding in our garden? Lots of worms!! love, Lexi

    We love you lots,

    Friday, April 19, 2002 -- 20:00:10 (EDT)
    Name: Ethan -- Email:
    Location: San Francisco, California US
  • Hey Simon! A sunny hello from California! I just took a look at your cool Web site and it sounds like you're feeling a lot better. That's great news! I'm thinking about you a lot! Love, Ethan

    Thursday, April 18, 2002 -- 04:55:39 (EDT)
    Name: Christiane und Julia -- Email:
    Location: Oer-Erkenschwick, germans
  • Hallo
    Julia hat einen Wilmstumor an der Niere, durch Operation entfernt am 26.03.02. nun bekommt sie noch 27 Wochen CHemotherapie. Über einen Gruß aus AMerica würde sie sich ganz toll freuen
    herzliche grüße
    Julia (und ihre Mama CHristiane)

    Wednesday, April 17, 2002 -- 12:03:15 (EDT)
    Name: Keven -- Email:
    Location: Ann Arbor, MI
  • Hello Simon,

    The recent Simon Says entry "The Smell of Breakfast Wafting Up the Stairs" it reminded me of my daughter's favorite poem when she was a little girl. The poem is taken from the book, "Where the Sidewalk Ends" by Shel Silverstein. Maybe you have have this book or you can just imagine the illustration of a gigantic stack of pancakes. Here is the poem:

    "Who wants a pancake sweet and piping hot?
    Good little Grace looks up and says, "I'll take the one on top."
    Who else wants a pancake fresh off the griddle?
    Terrible Theresa smiles and says, "I'll take the one in the middle."

    I bet you and Miriam are like Good little Grace. Am I correct?

    Hugs for you, Miriam and Mom and Dad.

    Wednesday, April 17, 2002 -- 00:44:54 (EDT)
    Name: annette
    Location: oakland,
  • Simon, Good to hear it's been a busy week for you. Sorry to hear Miriam has been sick. Wish we could help with the laundry, not that I'm all that caught up on my own. :) We been putting together a photo album for prospective birth mothers so that they can know something about us and potentially choose us to adopt her child and you and Miriam are featured at Crystal Lake. Who wouldn't want their child to get to spend Summers at Crystal Lake. I think Steve has posted a scan of the album on our web site. I'll post the address if I can locate it.

    Mary, Markus,
    I really enjoyed the Hope sermon you attached under the Cancer Link page. That was a very thoughtful piece of work and puts into perspective what Hope really is. I think the most amazing depiction of HOPE I've ever seen was from the Human Rights workers in El Salvador in the early 90's when Liddy was living and working there. I couldn't believe that these people could hold onto their hope after what they had been through, killings in their immediate families and even after experiencing that putting themselves in potential harms way by working in these human rights organizations taking down first hand accounts of atrocities and for which they were often targeted for further terror. They were some of the most grounded people I've ever met. They understood hope in ways I couldn't imagine. Thanks for sharing that sermon
    with us. I had been wondering how the bulb garden was doing - nice to hear the update on the daffodils. Too bad you don't have spell check on here I'm such an addict. Think of you all often. Thanks again for all the work on the updates. It means a lot to us.

    Love, Annette

    Tuesday, April 16, 2002 -- 16:50:41 (EDT)
    Name: Keven -- Email:
    Location: Ann Arbor, MI
  • Dear Simon, Mary, Markus and Miriam,

    I visited Simon's Place today for the first time in a long time and was so touched to see the impact that you are having on so many people near and far. It is wonderful that this tool is allowing you to give and receive so much love from around the world. Simon's Place reminds me of a beautiful patchwork quilt. Each word carefully stitched to hold together bright and unique pieces of fabric - the fabric of life. My prayer is that this quilt made with so many loving hands will serve to keep all of you safe, warm and protected.

    Sunday, April 14, 2002 -- 12:16:02 (EDT)
    Name: Jane Bishop -- Email:
    Location: Ann Arbor,
  • Hi Simon ( and Miriam, and all the others at your house) I've been catching up on all the famous SIMON SAYINGS and feel tongue-tied next to you! What a lot of ways you have to express your's really good that you can talk with everyone. What's this game about catching BUGS? I have BUGDOM on my iMac which I play when I get frustrated sometimes... when doing my income tax, for example. Little guys try to get through the forest while HUGE slugs and fire ants get in the way. Hope you continue to feel like doing the exciting things I just read about. Love your website. Love to all, Jane

    Sunday, April 14, 2002 -- 00:25:32 (EDT)
    Name: Mary Craig -- Email:
    Location: Ann Arbor, MI USA
  • Susan is right--traffic on the Message Board has slowed. But that's OK! We love hearing from you, but you're always welcome to visit with or without leaving a message. I've just checked the Web statistics on this site for March. The list of requestors is very long--we can tell there are a lot of folks out there! It appears that Simon's site was visited 1400 times in the month of March. Amazing!

    Thanks for staying with us!

    Saturday, April 13, 2002 -- 22:17:08 (EDT)
    Name: Susan Hartman
  • Hi, Simon--
    Your messages seem to be slower this week, so I'll send one. I've been enjoying your bright colors and messages on your web site ever since it started. I was glad to meet you on your walk to the toy store several weeks ago and in the library last week. It was good to see you feeling so lively the second time. I hope you and Miriam are having fun.

    Friday, April 12, 2002 -- 01:31:15 (EDT)
    Name: sally olson
    Location: Seattle, WA
  • Glad to hear everything is going so well, so far!! Sending lots of love your way.
    Sally, Jim, Sarah and Amy

    Monday, April 08, 2002 -- 17:51:12 (EDT)
    Name: Madi, Lexi, Curt and Lawrie
    Location: Seattle, WA
  • Hi Simon and Miriam,
    Guess who we got to see, talk to and hug yesterday. . .? Your Gran and Grandad. It was really special to see them here in Seattle. We also saw and played with Aunt Betty, Uncle Fred, Mark, Denise and your other second cousins Nick, Sam and Owen. We talked and laughed about lots of things and when we talked about you and your family we all smiled because we love you guys all so much.
    Way to go Miriam! Peeing in the potty is big stuff!!
    We continue to hold you all in our thoughts and prayers.

    Sunday, April 07, 2002 -- 23:45:21 (EDT)
    Name: Dinorah Curkendall -- Email:
    Location: Ann Arbor, Michigan USA
  • My Dear Simon: I remember when I was pregnant of Ivan, and All of us were wonder whose our baby was going to look like. You know Jay, Ivan's daddy, blond and blue eyes. You know me, dark eyes and hair. So Jay told me once: "our baby is going to look like Simon". I remember that I felt so happy with his thought because I like you very, very much Simon, and I think that you are a beautiful baby! Since that moment I hoped that Jay's wishes were becoming true. To our happiness, Ivan has a beautiful brown eyes, a brown light hair and a magic charming smile just like yours!! I hope that Ivan will have also, a beautiful heart and strong personality as yours. There is one thing for sure: Mary, Mark, Jay and I share the pride for having such wonderful sons! I love you baby. Dino.

    Sunday, April 07, 2002 -- 13:46:26 (EDT)
    Name: Gari Stein
  • Hi Simon, It sure was wonderful to see you, Miriam, Mom and Dad at our family concert yesterday. I especially enjoyed seeing your new shoes and the special cancer fighting lights. The way that you were running around, something tells me that they are working. Maybe you can come to class on Tuesday with Miriam, it is the last one for this session. See you soon, I hope. Much love, Gari

    Saturday, April 06, 2002 -- 17:42:14 (EST)
    Name: Doni -- Email:
    Location: Ann Arbor, MI United States
  • Hey Simon and family!! I think this website idea is really good. I really hope you're feeling better Simon, and I will come and visit one of these days, I'm just really busy with homework and stuff. Well, I have to go now, say hi to everybody for me, lots of love, Doni.

    Wednesday, April 03, 2002 -- 23:18:07 (EST)
    Name: Carla & Eduardo Silva -- Email:
    Location: Ann Arbor, MI
  • Hello Simon,
    Good to hear that mom and dad are deciding for a new treatment and that you are brave fighting the balls by eating healthy food! Way to go! I am going to read more about this Lemon bath in the 'what's happening' section - it sounds FUN! Did you and Miriam enjoy it?!Eduardo and I stopped by your place on Easter Day, but you were not at home. We will stop by another time! It is always good to see you and your beautiful sister and mom and dad! Say Hello to them! We are praying for you. Carla and Eduardo

    Wednesday, April 03, 2002 -- 21:56:41 (EST)
    Name: Madi and Lexi -- Email:
    Location: Seattle,
  • Hi Simon and Miriam,
    We were reading about how you love your Lemon bath. We have never taken a lemon bath but, we do love baths for sure! "we like the fizzy ball things that go fizz and then disappear in the water some are blue and some are red" says Lexi. "I like to blow bubbles in the bath" says Madi "we play with pots and pans too".
    We are on our way to bathtime right now and are going to sqeeze some lemon juice in the tub and close our eyes and pretend you and Miriam are with us in the tub tonight.
    We love you all very much and continue to hold you in our thoughts and prayers.

    love Lexi and Madi (Lawrie and Curt too)

    Wednesday, April 03, 2002 -- 00:22:12 (EST)
    Name: Jim Olson -- Email:
    Location: Seattle, WA USA
  • Hi Simon,
    I read your new treatment plan and it sounds like a winner! Looks like your mom, dad and doctors are making good choices for you. On Easter, we took Sarah and Amy to the beach by our house & they played. We also played in the garden and picked carrots, salad greens, spinach, and spices for our Easter dinner. We are all very excited for Spring and Summer. I've been learning to sail like your Grandpa Norm, but last time we went we tipped the boat over - brrrrr! All my love. Jim Olson

    Tuesday, April 02, 2002 -- 19:57:56 (EST)
    Name: Gari Stein
  • Hi Simon, I hope you will be coming back to music class real soon. Maybe you and your family will want to come to the library Saturday at 11 for our family concert. We will be having lunch too. Keep on pow-pow-powing. I am sending you much love today and always. Love, Gari

    Tuesday, April 02, 2002 -- 01:47:53 (EST)
    Name: Rachel and Noah Obstfeld -- Email:
    Location: Irvine, CA USA
  • Hi Simon! We wanted to let you know that our Mom finally got another little goodie package out to you and it will be arriving tomorrow (4/2) morning - we hope you and Miriam have lots of fun with it! And we too are wondering about your Dad's new job - we can't wait to hear more about it! You take lots of care and keep fighting those Cancer Balls- soon you will kick them all out!
    Love, Rachel and Noah Obstfeld

    Tuesday, April 02, 2002 -- 00:04:59 (EST)
    Name: annette williams
    Location: oakland, ca
  • Simon,

    I love reading about all the things you say. They must have named that game "Simon says" after you because you are so wise. We saw the picture of your family celebrating your dad's job offer but no one has told us what the job is or where it is. Will he be a garbage collector in timbucktoo or a dancer in Las Vegas or a boatman on the Colorado River or a berry picker in Chile. What do you think he should do? We love you and yearn for your recovery. XXXOOO Annette, Steve and Rowan

    Monday, April 01, 2002 -- 15:21:48 (EST)
    Name: Jenni McIntosh -- Email:
    Location: Standish, Maine United States
  • 4/1/02

    Hi Simon:

    My name is Jenni. I am Maddie and Lexi's aunt. Lawrie is my sister. I visited your web site today. I read the story by Sally Olson about the bird. It was wonderful. I am home with my children Megan and Ryan. Ryan stayed home from school today because he did not feel well. Ryan is almost 8 and Megan is 4. Ryan worked on his dinosaur project about Velociraptors. Do you like dinosaurs? They also watched the movie Beethoven,s 2nd. It is about Saint Bernard and its puppies. It was very cute and funny. Do you like dogs? Well, I hope you have a good day and even though we are all the way up in Maine we are on your team and will fight and punch out those cancer cells with you!!!

    Love, Jenni

    Love, rfddgdghcgjjl (Megan typed her own letters)

    Love, ryan

    Monday, April 01, 2002 -- 14:38:56 (EST)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY USA
  • Hey, Simon! Those great foods you're eating sound awesome -- and I liked the description of the cancer-fight dance you've developed. Very cool. Man, those balls don't stand a chance with you on the job -- you're pow-powing them with new medicines, you're pow-powing them with terrific foods, you're pow-powing them with your mind and your body.... Watch out, balls -- Simon and his doctors are gonna make mincemeat out of you! ;-)

    If you and your family want to read a bit more about some good foods to eat, check out this web site: -- the glossary and some of the other pages are very helpful and informative!

    Keep on dancing! Love, Kris, Rob, Emily, Danny, and Laura Hopkins


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