|
|
          |
MESSAGE BOARDThank you for visiting! You can click here to add to Simon's Message Board.
Monday, September 30, 2002 -- 12:55:23 (EDT) Name: Lawrie Location: Seattle, --Thinking of you all hoping your days are giving you a some sense of "normalcy" --I don't know if that is possible or even what you want on second thought.--let's just leave it that we are thinking of you. I've started going to Yoga on Monday evenings. I think of you all every time I go. My "downward dog" is nowhere close to yours Mary but, I'm working on it. Madi and Lexi especially like "cat and cow". I always thought it was "cat and camel" maybe those are two different things. lots of love, Lawrie Thursday, September 26, 2002 -- 14:25:38 (EDT) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, WA Simon, we continue to send you all sorts of good vibes for fighting off virus, bacteria, infections etc. The vibes are coming from a long way away but, they are full of strength and power for you! We hope your at home kindergarten will be fun and interesting -- cause you are a fun and interesting kind of guy (that is for sure) We continue to hold you in our prayers -love to you all, Madi,Lexi, Lawrie and Curt Thursday, September 26, 2002 -- 11:26:30 (EDT) Name: Irene Judmayer -- Email: i.judmayer@oon.at Location: Linz, Austria What a wonderful Party! What a wonderful dress! You look like a pretty Princess of Butterflies! Happy Birthday from Austria. May all your wishes come true! Tuesday, September 24, 2002 -- 19:52:12 (EDT) Name: Cam and Joan Borton Location: Portland, MAINE Dear Miriam, I wish I had a birthday party with so many wonderful costumes and dress ups to wear. It looked like so much fun. Happy Birthday to you. Madi and Lexi's Nana Tuesday, September 24, 2002 -- 09:40:07 (EDT) Name: Anne, Tom, and Johannes -- Email: doyleyad@stolaf.edu Location: Northfield, MN USA much love, anne, tom, and johannes Monday, September 23, 2002 -- 21:06:23 (EDT) Name: Simon, Location: oakland, Rowan has a joke. Why did the elephant eat so many peanuts that he got fat and kissed the snake? Because he was too hungry. Been thinking a lot about you and enjoyed all the photos. love, AS&R Monday, September 23, 2002 -- 13:37:15 (EDT) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY USA Friday, September 20, 2002 -- 09:53:16 (EDT) Name: Irene Judmayer -- Email: i.judmayer@oon.at Location: Linz, Austria Thursday, September 19, 2002 -- 20:09:37 (EDT) Name: Anne, Tom, and Johannes -- Email: doyleyad@stolaf.edu Location: Northfield, MN USA we were just thinking about you all, willing platelets to rise rise rise, and hoping you're enjoying being at home, Simon! much love, Anne, Tom, and Johannes Thursday, September 19, 2002 -- 15:48:35 (EDT) Name: Sally Location: Seattle, Sally Tuesday, September 17, 2002 -- 15:37:56 (EDT) Name: LUCY HAND -- Email: lhand@Mail.friendsbalt.org Location: Baltimore, MD USA We have thought a lot about you these last couple of days, and we are so glad you are home! Grace remembers playing with you, Simon, on the beach at Lake Michigan, and says she wants to do it again. We love you, and we will send on some drawings soon! Love, Grace, Logan, Lucy and Ben Sunday, September 15, 2002 -- 22:33:50 (EDT) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, I am sitting here with Madi and Lexi they both have lots of things to say to you. . .so I will type for them. Madi says, "We love you!!!!!"(repeated a number of times) "I hope you are feeling happy, I am happy because you are feeling better" "I like all the pictures of you, I like your head it looks good, I like your hair too." love Madi Lexi is here now, "Do you ever play Freddie the Fish on the computor? I like it, you might too." "I hope you feel better and better every day!!!!!!" We are sending lots of Platlet & Hemoglobin/Hematocrit building vibes your way. Love Madi, lexi, Lawrie, Curt Saturday, September 14, 2002 -- 23:58:41 (EDT) Name: eunyoung -- Email: seungminmom@hotmail.com Location: ann arbor, mi usa congratulations!!!! i'll bet you're glad to be home. hope tomorrow will be a good day. love, the bae family. Saturday, September 14, 2002 -- 16:15:37 (EDT) Name: Kris Hopkins -- Email: rghopkins@earthlink.net Location: Clinton, NY USA Kris, Rob, Emily, Danny, and Laura Saturday, September 14, 2002 -- 14:19:37 (EDT) Name: williams in CA Saturday, September 14, 2002 -- 08:27:42 (EDT) Name: Lee Williams Friday, September 13, 2002 -- 17:51:20 (EDT) Name: Annemarie Toebosch -- Email: toebosch@earthlink.net Location: Chicago, IL USA Friday, September 13, 2002 -- 15:16:54 (EDT) Name: Karen Zaruba -- Email: kzaruba@umich.edu Are your toenails still red? That looked neat! Friday, September 13, 2002 -- 12:35:31 (EDT) Name: Liz, Mike, Emma, and Lucas Kennedy -- Email: lizkndy@yahoo.com Location: Ann Arbor, Friday, September 13, 2002 -- 11:03:49 (EDT) Name: jane bishop -- Email: jebish@umich.edu Location: Ann Arbor, Friday, September 13, 2002 -- 09:27:15 (EDT) Name: Anne, Tom and Johannes -- Email: doyleyad@stolaf.edu Location: Northfield, MN 55057 Friday, September 13, 2002 -- 07:01:21 (EDT) Name: Jane Stepnitz Friday, September 13, 2002 -- 04:30:44 (EDT) Name: Julia -- Email: j.schwartz@stafag.ch Location: Frauenfeld, Switzerland Love, Julia Serena Alma Christoph Wednesday, September 11, 2002 -- 17:21:15 (EDT) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY USA Laura wanted me to send you some more jokes now that you're feeling more like laughing again.... Q: (this one's an original ... I think!) Why did the elephant use a straw? A: Because he wanted to drink some hay! ("Get it," says Laura -- "straw ... hay?! Ha, ha!" Q: What did the mother strawberry say to her children? A: Don't get caught in a jam! ;-) Keep up the good work. We're so glad to see you smiling again! Best wishes to all the Craig-Vodoseks from Kris, Rob, Emily, Danny, and Laura Wednesday, September 11, 2002 -- 13:16:12 (EDT) Name: Jacqui, George & Emily Shambaugh -- Email: jacquelyn.shambaugh@watsonwyatt.com Location: Oakton, VA A couple funny ones: Why did the cookie go to the doctor? Because he was feeling crumby! Why did the chicken sit on the egg? Because it didn't have a chair! Wednesday, September 11, 2002 -- 09:37:50 (EDT) Name: Irene Judmayer -- Email: i.judmayer@oon.at Location: Linz, Austria Tuesday, September 10, 2002 -- 22:10:59 (EDT) Name: eunyoung and sungjoo -- Email: seungminmom@hotmail.com Location: ann arbor, mi usa you are an amazing little boy with so much courage...i hope we can meet someday. you are always in our prayers!! love, the bae family Tuesday, September 10, 2002 -- 12:53:26 (EDT) Name: Gari Stein Tuesday, September 10, 2002 -- 11:00:53 (EDT) Name: Karen Merrill -- Email: kmerrill@williams.edu Location: Sunderland, MA Love, Karen Monday, September 09, 2002 -- 21:55:49 (EDT) Name: Steve Williams -- Email: tikakofi@pacbell.net Location: Oakland, CA Love; Steve, Annette & Rowan Williams Monday, September 09, 2002 -- 10:32:26 (EDT) Name: Lindsay & Andre -- Email: llg@umich.edu Location: Ann Arbor, MI Lots of warm thoughts & love -- Lindsay & Andre Monday, September 09, 2002 -- 03:27:48 (EDT) Name: Julia -- Email: j.schwartz@stafag.ch Location: Frauenfeld, Switzerland Monday, September 09, 2002 -- 00:19:08 (EDT) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, We continue to hold you in our thoughts and prayers and send lots of love, M,L,L &C Sunday, September 08, 2002 -- 14:36:13 (EDT) Name: annette, steve, rowan Location: Oakland, It's so nice to see your pictures and that cool Thomas train set with tunnels a round house and everything. Great news that you seem to be on an upswing keep it up. Love ya, AS&R Sunday, September 08, 2002 -- 11:37:59 (EDT) Name: amy -- Email: asheon@umich.edu I'm thinking lots of "white blood cells going up" thoughts for you! I liked reading about what Adrienne did with you. I have a funny story about her. One day, my daddy was visiting from Maryland. While I was at work, he went for a walk and got lost in the neighborhood. He saw a lady gardening and asked her if she knew where my street was. He looked at her again and then realized it was Adrienne and that he hadn't seen her for probably 40 years! They used to see each other in high school in Toledo where they both grew up! So my parents know that Adrienne is doing nice things for you and they are also thinking good thoughts about helping your itching and sores go away and your white blood cells to go up! Sunday, September 08, 2002 -- 10:36:42 (EDT) Name: Margot and Nathan -- Email: julie.lautens@sympatico.ca Location: , Canada Sunday, September 08, 2002 -- 08:54:46 (EDT) Name: Kris Hopkins -- Email: rghopkins@earthlink.net Location: Clinton, NY USA Best, Kris, Rob, Emily, Danny, and Laura Saturday, September 07, 2002 -- 22:39:00 (EDT) Name: Alison Becker -- Email: beckerpat7@aol.com Location: Tampa, FL USA Friday, September 06, 2002 -- 21:24:04 (EDT) Name: anne -- Email: doyleyad@stolaf.edu Location: Northfield, MN USA We are talking about you and thinking about lots and lots of white blood cells swarming in to conquer all the nasties. Go you little white blood cells! I also wanted to tell you, Simon, that I sing Der Mond ist aufegegangen to Johannes every night. I know it used to be your favorite song (I remember singing it to you when you were much much younger), and Johannes smiles everytime I start to sing it. And we always think about you when we sing it and hope you are sleeping well and having happy dreams. We hope your throat gets better veryvery soon, and that nasty itching stops soon, as well. Lots of love and kisses, Anne, Tom, and Johannes Friday, September 06, 2002 -- 20:15:09 (EDT) Name: Sally, Jim, Amy and Sarah Location: Seattle, Friday, September 06, 2002 -- 15:51:06 (EDT) Name: Lawrie, Curt, Madi and Lexi Location: Seatlle, WA You all are in our thoughts, prayers and conversations daily. Today we are focusing our thoughts and prayers on "rising white blood cell counts, relief from pain and iching, and gone with the yuky/mucus/sour throat" We love you all, Madi, Lexi, Lawrie and Curt Friday, September 06, 2002 -- 14:05:07 (EDT) Name: Ellen Roussey -- Email: eroussey@comcast.net Location: Ann Arbor, MI USA I am so sorry to hear that you are uncomfortable and itchy. Being itchy is the worst, isn't it? I'm glad your mom helps you out with that. Maybe you could think of every itch as your body working on healing itself, so every scratch helps you get a little bit better. It's worth a try, anyway. I hope you are feeling better today than yesterday, and that tomorrow will be better yet. Our thoughts and are hearts are with you. Love, Ellen, Jamie, Cully, and Alex Friday, September 06, 2002 -- 13:51:53 (EDT) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY USA You probably would have enjoyed the scene at the bottom of our driveway yesterday morning. It was our first day of school here in Clinton. Danny (in his super-fast sneakers that I wrote about a while ago) and Laura (in some light-up sneakers that may be something like yours!) were anticipating the arrival of the school bus. Dan, with all the 3rd-grade nonchalance and sophistication he could muster (given his obvious excitement), was doing a little tap-shuffle kind of "boxing" dance in place while Laura ran and skipped exuberantly around him, her backpack jiggling crazily up and down on her back as she went. They could hardly *wait* for that bus to pull up and wisk them off to school! And speaking of school, I noticed a message from *your* teacher here -- terrific! Those pear "mice" she mentioned sounded like fun to make *and* fun to snack on.... Mmmm. I bet you'll be glad when you're feeling well enough to go to school -- and I bet your classmates and teacher will be *super* glad to see you, too! Loads of healthy and healing thoughts from Upstate New York, Kris, Rob, Emily, Danny, and Laura Thursday, September 05, 2002 -- 18:01:27 (EDT) Name: LeeWilliams Thursday, September 05, 2002 -- 15:35:24 (EDT) Name: Heidi Hargesheimer -- Email: hargeshe@aaps.k12.mi.us Thursday, September 05, 2002 -- 07:46:13 (EDT) Name: Jean Watson -- Email: jl_watson100@hotmail.com Location: Canton, OH USA Alex's class had a "Joke Day" yesterday, and I thought you might appreciate some of the highlights: Q: What does a teddy bear say when he's had too much to eat? A: I'm stuffed! Q: Why did the boy eat his homework? A: Because his teacher told him it would be a piece of cake! I was searching Yahoo the other day for your name and found an old website of your dad's that has pictures of you and Miriam that are from 2 years ago (http://www-personal.umich.edu/~markvodo/PAGES/personal.html) My how you've grown! Also, I recognized a Mom-sweater in there - Mary, I can picture you in high school knitting away while you and I wrote that silly column for the News Trib! My friend who had a stem cell transplant earlier in the summer started to feel much better after the first few days - I sure hope you do too. I send prayers your way all the time. Love, Jean Thursday, September 05, 2002 -- 01:57:33 (EDT) Name: annette Location: Oakland, We are out here checking in on Simon's progress all the time thanks for your update on the message board. Wish there was something more tangible we could do. Hate to hear about the pain but know it's all to have something better soon. Applaud your courage and hope you get momments when you don't need to be strong. We read Fantasitc Mr. Fox one of Dahl's (from Charlie and the Chocolate Factory fame) books yesterday and Rowan thinks Simon might like it too. Sending all the healing thoughts we have. love, AS&R Thursday, September 05, 2002 -- 01:33:45 (EDT) Name: Rachel Obstfeld -- Email: ppimarcie@aol.com Location: Irvine, CA USA Wednesday, September 04, 2002 -- 22:36:59 (EDT) Name: Susan Hartman Location: Ann Arbor, A lot of people are reading your website and thinking about you and your family right now. I like the phrase "We are holding you in the Light"--the Light is in you and around you and in all the people who love you. I hope you are able to be more comfortable soon. I look forward to seeing you on a walk again once you are able to be home and get around. I see messages from a friend of yours named Schuyler. I have a teen-aged son named Schuyler, too. (Is the other Schuyler a boy or a girl? I've known both. "My" Schuyler used to spell his name as Skyler, but likes this way better!) Wednesday, September 04, 2002 -- 21:26:44 (EDT) Name: Mary Craig -- Email: mfcraig@umich.edu Wednesday, September 04, 2002 -- 20:45:31 (EDT) Name: Gari Stein Wednesday, September 04, 2002 -- 20:32:35 (EDT) Name: Mary Craig -- Email: mfcraig@umich.edu Location: Ann Arbor, MI USA I have been checking in on Simon's message board more often than I've been able to post full updates on his progress. I'm glad to know that you are out there and sending your vibes our way. The steam of messages has been pretty thin, so I'm guessing that you all are wondering about what the heck to say at a time like this. We are doing OK. We are still facing (after 2 weeks of trying) the frustration of no ethernet functionality in Simon's hospital room. So, anytime we go online there, it means tying up the phone and waiting around for a modem connection. We're used to things being a lot faster than that!! Even Simon was terribly disappointed today when he tried to play on the Thomas the Tank Engine Web site, but it was all too slow! Today is Simon's Day +7 since his infusion of stem cells last week. The doctors still say it will be about Day 12-15 before his blood counts recover and he begins to feel better. After a tired Tuesday, Simon's Wednesday (today) has been marked by irritability and anger. He's been pretty straight with his doctors and nurses: "Stop bothering me! Go away!" And with his mommy: "No, don't go!!!" But I did go, and I had a therapeutic shopping spree at Borders before coming home to see my mom and the inimitably energetic Miriam. Miriam is counting the "sleeps" until her 3rd birthday on September 20th. Amazing. Simon's blood counts continue to hover in the neutropenic range (below 0.5 white blood cells). He's on three different antibiotics to fight off infections suspected in his ears, maybe urine, maybe blood. They keep checking cultures. He's also getting so much other medicine that it's hard to list all of it: narcotics, benedryl, an anti-fungal medicine, tylenol, and occasionally others. Please keep thinking of him as we make it, one day at at time, through this period. Despite Simon's considerable discomfort, the doctors continue to tell us how much better he's doing than the average transpant patient. Stay with us!--Mary Wednesday, September 04, 2002 -- 12:00:52 (EDT) Name: Connie -- Email: malacarnec@oths.k12.il.us Location: O'Fallon, IL USA My niece, Shawn Pelak, who volunteers at the hospital and knows you, suggested I look at your web page. All I can say is WOW!! It's really cool! I wish I knew how to make a web page like yours. I hope you are feeling better today. I read about all that you've been through, and I want you to know that you are one of the bravest people I know, and I hope and pray that you're out of the hospital soon. Until then, may all your dreams be rainbows!! Connie PS When you see Shawn, tell her hello from me! Tuesday, September 03, 2002 -- 22:49:48 (EDT) Name: Rowan Williams Location: Oakland, WE have been having a lot of fun reading all the jokes on your web site. Here's one from me. Why did the red kiss yellow? because they loved each other Why did the green paper go to the red pencil? Because the green paper wanted to put a butterfly in her hair. Why did the chicken cross the road? Because he wanted to get a cup of ice cream. Why did the crab go in bucket? Because he wasn't smart. I hope you have a good week. I hope you get better. I hope you have a good time with your parents. ROWAN I TYPED MY OWN NAME Tuesday, September 03, 2002 -- 14:05:38 (EDT) Name: Kris Hopkins -- Email: rghopkins@earthlink.net Location: Clinton, NY USA I hope, though, that the "virtual" presence of all of your many cyber-friends and -family will make this rough patch a bit easier to navigate. Please know that we're thinking of all of you every day and sending you extra doses of strength, hope, patience, and caring during this especially challenging period. Peace, Kris, Rob, Emily, Danny, and Laura Monday, September 02, 2002 -- 21:29:06 (EDT) Name: Claudia Craig -- Email: davcraig@iupui.edu Location: Indianapolis, IN USA I hope you get better soon. And I hope you're feeling OK. I was playing with a couple of frogs today and a toad, too. My friend Summer found them, and I wish you could have been with us. Love, Claudia P.S. Simon, Eliza says, "Hello," too. We've been thinking about you and missing you, your sister and your parents. I know that you're being very brave about your treatment. You just keep learning new things, and you keep amazing us all. We love you, David and Jocelyn MESSAGE BOARD Archive
December 2001/January 2002 Messages
Report problems with this gateway to webmaster@umich.edu Online help is available. |
 |