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MESSAGE BOARD Archive August 1-16, 2004

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Monday, August 16, 2004 -- 17:06:34 (EDT)
Name: Daune Mahy -- Email:
Location: Oberlin, OH USA
  • Dear Mary and Markus,

    I was shocked to hear of Simon's death last week. I was away to Italy and then to Washington,DC, and finally California. Rebecca told me when I returned. I had no idea he was so critical! My thoughts and prayers are with you in your terrible loss. What a wonderful and dear spirit he was! Thanks for all of the stories and information on the web site. I send you all my love and embraces as you find your footing without your dear son.

    I had dinner with the Colemans and your dad last night, and heard more stories from him. It was a good connection for all of us.

    I won't be able to come to the memorial service but I will be there in spirit and I will try to call you this week so I can make at least verabl contact with you.

    Much, much love, Daune

    Monday, August 16, 2004 -- 13:49:23 (EDT)
    Name: Jean Irwin -- Email:
    Location: Salt Lake City, UT U.S.
  • Thank you for this hyacinth for my one soul. If I had nine, it would also feed them all. I really enjoyed Simon Says. What a delightful little perceptive, witty and bright philosopher. I wish I had had the opportunity to let him and Miriam empty all of my glitters and share my flipped-ed eggs and bunny noodles.
    Know that I'm thinking of you all, Mary, Markus and Miriam each day. Through your loss, you and Simon have given many so much. What a tribute to Simon's life. Many hugs. Jean

    Monday, August 16, 2004 -- 13:19:26 (EDT)
    Name: Timothy Holley -- Email:
    Location: Durham, NC USA
  • Mary &amp Markus--

    My aunt Jessie Reeder (Mary's former teacher, presumably voice, choir or Music Ed. in Oberlin) referred me to this website for Simon. Please accept my deepest sympathies and condolences on hearing of Simon's passing ten days ago. My years in A2 are often a maize and blue "blur", separated by some occasional memories amid the push to finish the degree (or else!!). I do remember you, Mary; my wife Dorinda and daughters Kelsey and Amanda are well. The girls are eleven and nine now, and Dorinda recently completed her first year of teaching after eleven years of being an at-home mom (what a shock!!). I teach at North Carolina Central University (Asst. Prof. of Music with varied liberal arts extras), and occasionally work with the NC Symphony Orchestra.

    I'm sure you know by now that Jessie's son Terry died of leukemia in '98, so reading the surgery diary brought back quite a few memories of visits from A2 to Detroit to see him.

    You and your family will be in my thoughts often as you celebrate the joy and deepened meaning of Simon's life.

    Continued comfort, strength and best wishes to you and Markus.

    Tim Holley

    Monday, August 16, 2004 -- 10:42:59 (EDT)
    Name: Julia Welch -- Email:
    Location: Houston, TX USA
  • Dear Mariam, Markus, and Mary,

    All of us at Michigan were sending you lots of love and prayers at the Academy meetings. Your family has touched our hearts in so many ways. We are in awe of your strength and tenderness and spirit. We will forever remember sweet Simon.

    Much love,

    Sunday, August 15, 2004 -- 21:39:34 (EDT)
    Name: Keri Anderson -- Email:
    Location: SLC, UT
  • Dear Mary, Markus, and Miriam,

    Thank you for keeping us posted about your progress with Simon's memorial service. I am looking forward to it as a celebration of life, love, and family. What a triumphant spirit Simon showed us all! It is hard to know what to say - everything you have written has been so inspiring and yet tender, and so deeply heart-wrenching. Life must just seem surreal for your family right now. I am greatful that you are taking your time together as a family and giving yourselves space as you need it. Please know that we are thinking of you. Ashley says "hello" to Miriam.

    Sunday, August 15, 2004 -- 20:37:34 (EDT)
    Name: Kris Hopkins
    Location: Clinton, NY
  • Our family was in Boston this weekend, and I couldn't help but think about the Craig-Vodoseks while we were there. From the Museum of Science on Friday afternoon to the New England Aquarium this morning, I imagined Simon and Miriam exploring, wondering, thinking, laughing (especially at the sill Rock Hopper Penguins!), and most of all ENJOYING. We enjoyed, too; and I also enjoyed thinking of the four of you.

    I hope you will find, as I did after losing my mom to cancer several years ago, that memories that may initially bring tears and an almost unbearable ache in your hearts will eventually, with the passage of time, bring smiles and even soul-cleansing laughter down the road. Because it's those memories that ensure that our loved ones really are always with us, even when we no longer inhabit the same world.

    Miriam, I especially liked your way of thinking about Simon saying "hello" -- the recent meteor showers must have been absolutely chock full of "hellos" from him! We will think of him now every time we see a "shooting star." Thank you for that wonderful and comforting thought.

    And actually it's got me wondering: do you suppose the twinkling stars are Simon and his new angle friends winking at us?? I'd like to think so!

    Thinking of you all,
    Kris, et al.

    Sunday, August 15, 2004 -- 15:20:12 (EDT)
    Name: Becky Smith -- Email:
    Location: Smithfield, NC USA
  • Mary and Markus, On a rainy Sunday afternoon, I sit at my computer and try to think of how in the world to say what can't be put into words. I will miss hearing about Simon and his sweet, funny ways and I will be sad to think of Miriam, going through life without her brother. But I will be encouraged to know that he was loved well and that he left behind a whole group of family and friends who will carry the essence of who he is to places he will never go.

    Mary, I so appreciated your response on the Neuroblastoma Listserv to Shannen, who was struggling with missing her little Cierra. Your words to her were so perfect and loving and wise and I sat in awe at your wisdom and ability to express exactly what needed to be said. Thanks for sharing your words and heart with all of us those who stop by Simon's Place. We will continue to come by and check on you and your family and be grateful that our paths have crossed on this journey called cancer. Many blessings to you all.

    Saturday, August 14, 2004 -- 21:20:17 (EDT)
    Name: Kay Beaton -- Email:
    Location: Park City, UT
  • "Some people come into our lives and move our souls to dance.
    They awaken us to understanding with the passing whisper of their wisdom...
    They make our world more beautiful,
    ...Leave footprints in our hearts, and we are never, ever the same."
    Simon has obviously left lots of footprints on lots of hearts around the world. I am glad to have been one of those....Love, Kay

    Saturday, August 14, 2004 -- 08:21:58 (EDT)
    Name: Jacqui Shambaugh -- Email:
    Location: Oakton, VA
  • Dear Mary and Markus,

    Like many here, I'm sure, in the days since Simon's passing, I've shed lots of tears while reading your postings and friends' messages, and I've wondered how I might be able to help from so far away. These musings led me to the Alex's Lemonade site, where I found a simple way to provide some ongoing support to pediatric cancer: by buying Alex's Afternoon Blend coffee from With my order I told them about Simon’s passing and received a very nice note in return from Alex's Uncle Aaron, offering his sympathies. So long Starbucks! I’m hoping to turn Alex’s blend into a best seller in the metro-DC area!

    You’ve done so much good by sharing your family's experiences and struggles. Simon's story will continue to help others - through his strength, courage and incredible spirit, and by raising awareness that will someday lead to a cure. I'd hoped to come to the memorial, but can’t make it happen. So I look forward instead to making a commitment to Simon's fund, once organized.

    I have thought many times what Marta said in her recent post – that you were the best possible parents for Simon. To take it a step further, I think that only amazing people like yourselves could have created someone as extraordinary as your little boy.


    Friday, August 13, 2004 -- 20:28:41 (EDT)
    Name: Ilene Andersen -- Email:
  • To Simon's family,
    I am a first grade teacher at Uintah. Simon was a student in the room next to me. I'll always fondly remember having Simon during our first grade singing time. His face literally lite up when we were singing "Don't Cross the Street in the Middle of the Block" by They Might Be Giants. I adored watching Simon last year and was so impressed by his enthusiasm and sweet spirit. May the Lord be with you and give you the blessings you need to support you in this very challenging time. I truly believe you will see him again some day in the eternities.
    Love, Mrs. Andersen, room 110

    Friday, August 13, 2004 -- 17:29:19 (EDT)
    Name: Chanda Courtney -- Email:
    Location: Charlotte, NC USA
  • My thoughts and prayers are with you all.

    Friday, August 13, 2004 -- 11:53:40 (EDT)
    Name: Melanie Erwin -- Email:
    Location: SLC, UT United States
  • Mary,

    I don't know if you will remember me but I called you last year asking about Simon. Our children went to Uintah together. I have a 7 year old little girl her name is Bailie Erwin who in February will be 5 years out from her second Bone Marrow Transplant. She was diagnosed in June of '99 with Neuroblastoma stage 4. Your family is so strong!! When we heard that Simon had passed our family took a moment, said a prayer and have devoted the next couple of weeks to making sure that our family and friends remember how many little angels surround us everyday. You are forever in our hearts and prayers. Simon will be greatly missed.

    Lots of Love,

    Melanie, Bailie and Marcus Erwin

    Friday, August 13, 2004 -- 11:53:23 (EDT)
    Name: Melanie Erwin -- Email:
    Location: SLC, UT United States
  • Mary,

    I don't know if you will remember me but I called you last year asking about Simon. Our children went to Uintah together. I have a 7 year old little girl her name is Bailie Erwin who in February will be 5 years out from her second Bone Marrow Transplant. She was diagnosed in June of '99 with Neuroblastoma stage 4. Your family is so strong!! When we heard that Simon had passed our family took a moment, said a prayer and have devoted the next couple of weeks to making sure that our family and friends remember how many little angels surround us everyday. You are forever in our hearts and prayers. Simon will be greatly missed.

    Lots of Love,

    Melanie, Bailie and Marcus Erwin

    Friday, August 13, 2004 -- 00:51:26 (EDT)
    Name: a friend -- Email: -
    Location: ann arbor, mi usa
  • you will never remember me, but i was a resident doctor in radiology, met you with one of the mibg studies; little meetings with patients mean much, even if you don't realize it (you seemed tired and slightly irritated (very understandably) that day); after meeting your son I have prayed regularly for peace for him; I pray for the same for your family....
    love and peace.

    Thursday, August 12, 2004 -- 18:42:42 (EDT)
    Name: Marta -- Email:
    Location: Ann Arbor,
  • I just wanted to add this -

    In an e-mail exchange about Simon with our mutual friend Michael Cohen, Michael said of Mary and Markus: "They really were the best possible parents for Simon."

    Thursday, August 12, 2004 -- 16:16:07 (EDT)
    Name: Annemarie Toebosch -- Email:
    Location: Ann Arbor, MI USA
  • Dear Simon, I am so overwhelmingly sad that you are gone from this earth, sad for your family, friends, and sad for the world for not having a great person like you around longer. But I'm also happy that your pain and discomfort are over, and selfishly glad that you are up there to watch over us.

    Dear Mary, Markus, and Miriam, I wish you all the love, hugs, warmth, time with friends and family, memories and strength to make it through this hard time.

    Annemarie Toebosch

    Thursday, August 12, 2004 -- 12:42:45 (EDT)
    Name: Nancy Kelly -- Email:
    Location: Ann Arbor, MI USA
  • My thoughts and prayers have been with you on your journey since the beginning – the original diagnosis (let’s find out what this is and get rid of it); the wonderful, compassionate attention by healthcare professionals throughout the nation; the decision and move to Utah; the worldwide community of friends and family who care deeply about Simon’s story and your family’s journey.
    My heart weeps for your loss ~ the most unimaginable kind of loss in the world. I am so glad that you could all spend so much time together, throughout the whole process, and most especially during the past months. I am eternally grateful that you have the heart to share your story. You are blessed to have so many who have taken care of you in so many ways.
    I especially love Miriam’s comment about the shooting star – Simon’s spirit does live with all of us, and if we look closely, we will see him in the wonders of daily life.
    Blessings and hugs, Nancy Kelly (U of M)

    Wednesday, August 11, 2004 -- 22:36:21 (EDT)
    Name: Gail and Gordon Lange -- Email:
    Location: Guelph, ON Canada
  • Mary and Marcus, My message Ijust wrote got cut off by the computer. So to continue...The celebration of Simon's life on Aug. 28 will bring some comfort to you. We will be thinking of you, as you adjust to your new life.

    Wednesday, August 11, 2004 -- 22:27:46 (EDT)
    Name: Gail and Gordon Lange -- Email:
    Location: Guelph, Ontario Canada
  • Dear Mary and Marcus,

    Gordon and I offer our deepest condolences to you and to little Miriam at this very sad time. To lose a son, a child so young, must be just the most heart-breaking event to ever happen to parents. We have followed the story of Simon over the past years from Julie. Happily, she and Margot and Nathan were able to have a visit before the end.

    Wednesday, August 11, 2004 -- 22:00:15 (EDT)
    Name: Ann Tenbrunsel and Family -- Email:
    Location: Chicago, IL USA
  • Dear Markus and Mary,

    I cannot tell you how sad I was to hear about Simon. You have been an amazing source of strength to so many people, including our family. Through sharing your journey of Simon, you have given all of us a symbol of faith, courage, and love. Thank you.

    May God bless you at this time with happy memories and loving friends and family. You are deep in our hearts and prayers...

    With love,
    Ann, Dante, Dante Joseph, Lina and Michel

    Wednesday, August 11, 2004 -- 21:10:54 (EDT)
    Name: courtney loveman -- Email:
    Location: new york, new york USA
  • My heart is so full of sadness right now that I can hardly breathe. I remember the first day that Marley showed up at Wholesome Home. She was so taken with Simon. I had never even seen her show an interest in a boy; there was no curiosity before then. She was always surrounded by girls and my biggest concern about sending her to Linda's was that, at the time, most of the children were boys. I didn't think she'd survive the week in a house full of them. Simon had a gentle way with her. They were drawn to each other and became fast friends. Marley would come home every day and tell stories about Simon. "Simon climbed the tree," "Simon had a bug in his shirt," "Simon and I had 'ronis for lunch," "Simon read me a story"... He was smart and as patient a boy as I'd ever seen. Although she fit right in with all of the children, I believe that Simon helped Marley's transition into the "world" in an inexplicably significant way. They looked out for each other. Marley learned her first lessons about friendship from Simon. Simon was and will always be Marley's first friend. I'm proud to say so.

    Markus and Mary, the strength that the two of you have possessed - from the moment you learned of Simon's disease - has always made me feel somewhat slack at the sight of myself. To have the courage to face the day-to-day struggles, to accept life "in the moment" as you have, is a trait that I do not possess. Most of us are never forced to determine whether or not we'd be able to withstand the heartache that has come with your experience, but my gut tells me that there are few people who could handle the life you've led the past few years with as much honesty, spirit, and solidarity as you all have shown. It is both beautiful and tragic, and so painfully complicated.
    We will always remember Simon for his bravery and sensitivity to the world, for his curly hair and his smile.

    All of our love to you and a thousand hugs for Miriam.

    Courtney and Marley

    Wednesday, August 11, 2004 -- 20:01:47 (EDT)
    Name: Rachael in SLC -- Email:
    Location: SLC,
  • I am back home with Maggie in Salt Lake. August will finally be home a week from today. You all are never far from my thoughts as you continue to pass through this sacred time. I found this next piece earlier today. May your tears always flower.

    The Inca's of Peru had an old expression
    The Flowering of my Tears

    This represented the time of fulfillment which came after a long
    period of difficulty and sorrow.

    Our tears continually water the Earth and finally, after we have
    cried and cried, after we have let go of so much, after we have
    passed through the searing fires of initiation and the dark night of
    the soul, the flowers start to grow. These aren't just ordinary
    flowers, they are precious, sacred flowers. Flowers that can only
    grow after we have passed through a time of struggle and
    transformation, a time of rebirthing into a new life.

    May your tears always flower,

    ~ Kathy Doore ~

    Wednesday, August 11, 2004 -- 17:33:19 (EDT)
    Name: Irene Judmayer
    Location: Linz, Austria
  • Ich bin gerade auf einem Bootssteg am Attersee, es ist halb zwölf Uhr abends und stockdunkel. Heute ist ein Abend, an dem außergewöhnlich vile Sternschnuppen zu sehen sind. 8 habe ich bereits gesehen. 7 davon schicke ich an Euch inklusive Simon.
    Große Umarmung, Irene

    Wednesday, August 11, 2004 -- 16:01:23 (EDT)
    Name: Gari Stein
  • Yesterday I pulled out the video of a program I did at the Library 2 years ago. And lo and behold, it was not rewound, and it begin with a grinning Simon. My heart stopped for a moment and then I spent the rest of the time watching Simon, Mirian, Mary and Markus enjoy the music. It definitely left me with a song in my heart. A song for Simon. Thank you Miriam, I will look for Simon and his shinging star everynight. Peace to you all. Gari

    Wednesday, August 11, 2004 -- 11:54:43 (EDT)
    Name: Barbara Brookens-Harvey -- Email:
    Location: Ann Arbor, Mi. USA
  • Dear Mary and Family,

    I am thinking of you all and sending much love, strength, and positive energy. You and Simon have taught us all so much these last few years. Thank You for sharing.

    You are in my Heart,
    Barbara Brookens-Harvey

    Wednesday, August 11, 2004 -- 11:53:11 (EDT)
    Name: Sally Blodgett Olson -- Email:
    Location: Oberlin,
  • The girls and I are in Oberlin now (until the 18th, then to Michigan until the 22nd). I look around and see and feel memories of Simon, of your parents, of our childhood. It's comforting to be here, and yet my heart aches in new ways. I miss you all. I will see you on the 28th, ready to celebrate Simon's life. As always, I send all my love. Tell Miriam to look in the mail for the "fancy ladies" that I promised her!
    LOVE, Sally (Sarah, Amy,and Gram/Jane)

    Wednesday, August 11, 2004 -- 09:49:55 (EDT)
    Name: David Craig -- Email:
    Location: Indpls, IN
  • Thanks so much to Miriam for letting us know where to look for Simon. Sisters have such keen insight. We're craning our necks to the stars, looking for greetings from Simon's bright, blazing spirit as he tears past our earth-bound limits. Thinking of you all as a threesome, and missing you. Love, David

    Tuesday, August 10, 2004 -- 23:48:43 (EDT)
    Name: Keri Anderson -- Email:
    Location: SLC,
  • Dear Mary, Miriam, and Markus,

    Just thinking of you. Thank you for sharing the beautiful pictures of your family at Red Butte and the glorious sunset. So appropriate for Simon.

    Tuesday, August 10, 2004 -- 23:44:50 (EDT)
    Name: Elizabeth and Whitney -- Email:
    Location: Salt Lake City, Utah US
  • Dear Mary, Miriam, and Markus: We are sorry to hear of the loss of Simon. I will always remember Simon with his wonderful pink jacket, colorful rain boots, and affectionate smile. He will truely be missed amongst his Uintah friends.
    Whitney and I spent a long time going through all of your postings and pictures on your website. Whitney wanted to look at every picture of Simon. We will be at the Memorial on August 28th.
    Bill, Elizabeth, Whitney Weisberg

    Tuesday, August 10, 2004 -- 20:05:08 (EDT)
    Name: Lou -- Email: skiptoskiptolou
    Location: Knoxville, TN USA
  • I am so sorry it had to be this way.
    Some day we will understand why the children have to go so young.
    I will always remember Simon from the things Josh has told me while he was at MSKCC NY doing 3F8 antibodies with Simon. I shall never forget you Mary, you were also a great help to me while the boys were doing the treatments. Thank You for sharing Simon journey with the group.I always look forward to your post to the group. Faith, Hope &amp Love, Lou/mom to sherry/grandmother to Josh dx.6/01

    Tuesday, August 10, 2004 -- 18:26:58 (EDT)
    Name: Deborah Orlowski -- Email:
    Location: Ann Arbor, MI USA
  • Dear Miriam, Mary and Markus,

    I was once told that our souls come to this world to learn...and perhaps to teach. And once a soul learns what it came to learn, it passes on again.

    This has always given me great comfort because it means that Simon left us because it was his time to leave. He did what he needed to do and although we will never know what that was, he does and he is happy.

    I don't know what Simon came to earth to learn, but I DO know what he taught the rest of us.

    Through him and his joy and zest for life, he showed us how to live. Because of him, we have come to know a family that is truly extraordinary. A family that has shown the rest of us how to better appreciate a sunset, to value what we have, to love more deeply and fully and to find joy, peace and yes, even happiness, among the most difficult of life's lessons.

    Thank you Miriam for being such a loving and wonderful sister.

    Thank you Markus for being the father and husband who is a role model for all.

    Thank you Mary for your honesty and willingness to share.

    And thank you Simon for being you and for bringing us the wonderful family we know as the Vodoseks.

    You will all continue to be in my prayers.


    Tuesday, August 10, 2004 -- 16:41:53 (EDT)
    Name: Cassie Palisky -- Email:
    Location: Chagrin Falls, Ohio USA
  • I never knew Simon, nor have I ever met anyone from the Vodosek family. I learned of him from a friend while on a Christian Work Camp. I have been praying for him and his family ever since. I would like to send my deepest sorries and I will continue to pray.

    Tuesday, August 10, 2004 -- 15:54:35 (EDT)
    Name: Tina Diekmann -- Email:
    Location: Salt Lake City, UT USA
  • For the last few days, you all have been in our thoughts and those of numerous friends and colleagues at the Academy meeting in New Orleans. In countless conversations in the hotel lobby or outside a session or in the middle of Bourbon Street, friends of Simon were recounting what a remarkable, loveable, and courageous boy he was. He really touched so many lives!

    Seeing the photo of the incredibly beautiful sunset from Red Butte Garden on the day Simon passed away, I now will always think about Simon everytime I see that stunning view over the Great Salt Lake.

    Today Carter asked where Simon was since he had heard that Simon had died. After a few moments of thinking about it, Granger said "Simon knows where he is." What a profound answer for a six year old. Sometimes little kids seem to understand these things so well.

    Tina, Bart, Granger, and Carter

    Tuesday, August 10, 2004 -- 14:27:13 (EDT)
    Name: Sylvia Pituch -- Email:
    Location: Allentown, PA USA
  • In the rising of the sun and in its going down
    We remember them

    When we are weary and in need of strength
    We remember them

    When we are lost and sick at heart
    We remember them

    When we have joys we yearn to share
    We remember them

    So long as we live, they too shall live for they are now a part of us as
    We remember them

    In the blowing of the wind and in the chill of winter
    We remember them

    In the opening of buds and in the rebirth of Spring
    We remember them

    In the blueness of the sky and in the warmth of the sun
    We remember them

    In the rustling of leaves and in the beauty of Autumn
    We remember them

    In the beginning of the year and when it ends
    We remember them

    The above was received during the chaplaincy course that I am taking. You continue to be in my prayers as you adjust to a "new normal". God Bless You. ~ Sylvia

    Tuesday, August 10, 2004 -- 14:09:56 (EDT)
    Name: Edie Robbins -- Email:
    Location: Ann Arbor, Michigan USA
  • My heart goes out to Mary, Markus, and Miriam. I know Simon is now free of his pain and long struggle. We will miss his sweet face and his courage and strength. He truly is a remarkable boy. I would like to contribute when you have a memorial established. My love to you all.


    Tuesday, August 10, 2004 -- 13:14:57 (EDT)
    Name: hava kaplan -- Email:
    Location: Ann Arbor, MI USA
  • (Hava dictated this to me last Friday when I told her that Simon had died):
    Dear Mary, Markus and Miriam,
    I am very sorry that Simon died. I will always remember him. This is a prayer.
    Love, Hava

    Tuesday, August 10, 2004 -- 12:27:11 (EDT)
    Name: Deanna Misaka -- Email:
    Location: SLC, UT USA
  • Dear Markus, Mary, and Miriam, I am saddened to hear of Simon's death. WHile his pain and suffering is over, his physical presence will be missed. I enjoyed my times caring for Simon at PCMC. He was fiesty and witty. I always knew there was an extra special intelligence and charm inside of him. I applaud your strength and courage to continue living the way Simon would have wanted you to. I expect that your family will certainly re-create something as lovely as you had when Simon was with you. You are loving and caring parents who have your children at the center of your universe. That in itself speaks volumes. We don't always see that around here. I am confident that your wonderful daughter Miriam will remember Simon in a positive way, as that is what your have provided for her. Your family is strong. With all the respect I have, Deanna RN Oncology/BMT PCMC

    Tuesday, August 10, 2004 -- 11:12:16 (EDT)
    Name: Carla, Beatriz and Eduardo Silva -- Email:
    Location: Ann Arbor, MI USA
  • We are keeping you all in our hearts and prayers. Love from your FH neighbors. Love, Carla, Eduardo and (baby) Beatriz.

    Tuesday, August 10, 2004 -- 10:53:39 (EDT)
    Name: Pamela Matousek -- Email:
    Location: Davidsonville, MD USA
  • Our deepest sympathies for the ache you are going through now. But we rejoice with you as your little lamb, Simon, is in the arms of his SHEPHERD and is free at last. Thank you for sharing Simon with us.

    Monday, August 09, 2004 -- 20:07:04 (EDT)
    Name: Corinne Anderson -- Email:
    Location: Salt Lake City, Utah
  • Dear Vodosek Family,
    "Thank You" seems such a trite thing to say to a family who has enfolded so many people into their lives and into their love. You have given an amazing gift to so many by sharing your journey with your beloved Simon. We are reminded to cherish each moment of our lives, to always remember our power when we feel powerless, and to truly love each other. A quote from "FINAL GIFTS"... "Life is eternal, and love is immortal, and death is only a horizon, and a horizon is nothing save the limit of our sight." Go Captain Underpants, GO!

    Monday, August 09, 2004 -- 18:29:43 (EDT)
    Name: Maja -- Email:
    Location: Delta, BC CANADA
  • My deepest condolences to your family on Simon's passing. Simon's courage and your family's grace and strength are a true inspiration.

    Monday, August 09, 2004 -- 18:02:20 (EDT)
    Name: Brenda -- Email:
    Location: PLeasant Grove , Ut
  • I was reading the paper and came upon the story about Simon. I was very touched that he wanted to help other children like himself the most. Having a seven year old son of my own made me very grateful for every precious moment i have with him. I am very sorry for you very painful loss. I will pray and hope that you will somehow be comforted.

    Monday, August 09, 2004 -- 16:51:09 (EDT)
    Name: Stone Bear -- Email:
    Location: Baileys Harbor, Wisconsin USA
  • condolences and love to you all.

    Monday, August 09, 2004 -- 12:28:48 (EDT)
    Name: Rachel Kimball -- Email:
    Location: Salt Lake City, Utah
  • Dear Mary, Marcus, and Miriam,

    Our hearts, our love, our thoughts, and our prayers are with you. What a beautiful boy and what a wonderful gift you have shared with us all. Your ability to let us all in on your heartache, suffering, joy, endurance, bravery, love is truly an inspiration. Simon will undoubtly touch as many on his new journey as he has touched here on earth. Thank you Simon for your wonderful life. Thank you Marcus, Mary, and Miriam for sharing these most difficult moments with us.
    Miss Rachel, Miss Misha, Miss Judy, Miss Barb, Miss Julie, Miss Tad

    Monday, August 09, 2004 -- 11:07:47 (EDT)
    Name: Patrick Flynn -- Email:
    Location: Wichita, KS USA
  • Vodosek family,
    My thoughts and prayers are with you. Thank you for sharing Simon's stories and pictures with us. I hope that Justin and Simon are playing today and that someday they will be able to explain to us what it's like to be where they are.

    Patrick stepfather to angel Justin Gray

    Monday, August 09, 2004 -- 11:02:13 (EDT)
    Name: Carmen Rivera -- Email:
    Location: San Pedro, CA USA
  • Dear Mary, Markus and Miriam,

    My heart filled with great sadness on learning of Simon's passing. Love is everything. Simon had everything. He always will.

    Simon is in my prayers. Thank you for bringing him into my life! Love, Carmen

    Monday, August 09, 2004 -- 10:29:20 (EDT)
    Name: An Arizona Family
  • Heaven has a new super hero. Able to leap tall clouds in a single bounce, faster than a speeding rainbow, more powerful than a hurricane, it's Captain Underpants to the rescue!

    To the Vodosek Family, may your days from here on out be filled with the bright and cheerful memories of Simon, and all the special times you spent with him on this earth. Although his time was short by our standards, the love you gave him is the love he gave back that is still there in your hearts and will see you all through this uneasy time. The pain does go away over time and is replaced by those great memories that come rushing in. Whether it's a song you hear on the radio, a movie you watch on TV, a place you drive past, or another child saying something that catches your ear, it's just Simon's way of letting you know that Captain Underpants is not far away at all.

    God bless you all and give you the continued strength to help each other through this time.

    An Arizona Family

    Monday, August 09, 2004 -- 08:43:42 (EDT)
    Name: code_blue_kkiimm33
    Location: , MA USA
  • It's with great sadness that I have learned of Simon's passing. I'm sorry for the pain I know you are going through. God gets a new Angel and you are left with precious memories of a dear and sweet child. My thoughts and prayers go out to you at this difficult time. Please know that the code_blue family will always be here for you, if you need someone to talk to. God Bless...

    Monday, August 09, 2004 -- 07:07:43 (EDT)
    Name: Marfa Seewald -- Email:
    Location: Heidelberg, Germany
  • Apologies to all non-German speakers

    Liebe Mary, lieber Markus, liebe Miriam,

    ich habe Euch alle bewundert wie stark und zuversichtlich Ihr wart. Ihr habt nicht viel von mir gehört in den letzten 3 Jahren, aber in Gedanken war ich oft bei Euch und habe mit Euch und allen anderen Menschen, die Euch lieben und nahe stehen, gehofft, daß alles wieder gut wird.

    Umso trauriger war ich, als ich heute morgen nach der Intro mit dem kleinen Schmetterling die (neue)Zeichnung von Simon sah und nicht mehr das Photo von ihm...

    Ich kann von hier aus nicht mehr tun als an Euch zu denken, zu wünschen, daß Ihr auch in Zukunft zueinander haltet und Euch aus Schmerz nicht voreinander verschließt.
    Eines Tages wird sich wie in der Geschichte vom Waterbug eine neue Welt auftun in die Euch Simon begleiten wird.

    Alles, alles Liebe

    Sunday, August 08, 2004 -- 22:41:28 (EDT)
    Name: Lisa Mason -- Email:
    Location: Chicago, Illinois
  • Like so many people, I have quietly visited this website frequently and hopefully throughout Simon’s journey, being inspired by Simon’s braveheart and his wisdom and praying for the restoration of his health and the maintenance of his strength and spirit. Through this inspiring Simon’s Place, I have witnessed your boundless love, strength and determination as parents and as a family, and I have marveled at and given thanks for the solid embrace of the constant love and support of your extended family and numerous friends. My heart is heavy with sorrow and aches with pain at the loss of Simon. Yet I smile at the thought of his spirit soaring high and free, released from earthly pain and restraint. By sharing Simon’s journey and your journey, Simon’s indomitable spirit and your love for him lives on in all of us. You remain in my thoughts and prayers. May God bless you and comfort you.

    All my love,

    Lisa Mason

    Sunday, August 08, 2004 -- 22:30:21 (EDT)
    Name: Peggie Y. -- Email:
    Location: La Mesa, CA USA
  • Dear Mary, Markus, &amp Miriam,
    Jesus Comforts His Disciples - The God of All Comfort
    John 11.1-4
    "Do not let your hearts be troubled. Trust in God; trust also in me. In my Father's house are many rooms; if it were not so, I would have told you. I am going there to prepare a place for you. And if I go and prepare a place for you, I will come back and take you to be with me that you also may be where I am. You know the way to the place where I am going."
    Matthew 5.4
    Blessed are those who mourn,
    for they will be comforted.
    2 Corinthians 1.3-4
    Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God.

    Sunday, August 08, 2004 -- 21:46:55 (EDT)
    Name: Debbie Hume
    Location: San Luis Obispo, CA USA
  • Dear Mary, Markus, and Miriam,

    I sit at my computer bawling. I have no answers and no words. I am sooo sorry for the loss of sweet Simon. My heart pours out to you all. I will be a faithful prayer servant. I am hoping that somewhere amongst all this saddness their is a ray of sunshine coming from the sky. As I know Simon is happily playing with all the other angel children. With love, Debbie

    Sunday, August 08, 2004 -- 21:34:47 (EDT)
    Name: Pat Newton(Lexy's Nana) -- Email:
    Location: Nederland, Tx
  • I am so sorry to hear about Simon, my thoughts and prayers are with you. May the almighty God give you strength to get through the coming days.

    Sunday, August 08, 2004 -- 20:33:06 (EDT)
    Name: Muffy Ferro -- Email:
    Location: Salt Lake City, UT
  • Dear Mary, Markus and Miriam, we met briefly at a wedding shower for Harris and Fraser, but our conversation impressed me and I have thought often about your family and Simon since then. I have checked in with his website from time to time and I've been truly inspired. I saw on the front page of the Tribune that Simon passed away and wanted to tell you -- this coming from someone who doesn't even know you -- that your son and your story are uplifting and full of love and hope for everyone. But I am aching for you that you've lost your beautiful little boy.

    Sunday, August 08, 2004 -- 20:06:49 (EDT)
    Name: Jennifer McIntosh -- Email:
    Location: Standish, ME USA
  • Dear Miriam, Mary, and Markus<

    Lawrie told me of Simon's passing. I am so sorry for your loss. I will keep Simon's beautiful smile and spirit in my heart and will say a special prayer for him when I put my kids to bed tonight.

    My love to you all, Jenni

    Sunday, August 08, 2004 -- 19:53:37 (EDT)
    Name: Susan Hartman
    Location: Ann Arbor,
  • I add my prayers and sympathy to the outpouring you are receiving. It has been a blessing for you to share Simon and his story and your story with all of us.

    Sunday, August 08, 2004 -- 19:26:31 (EDT)
    Name: Emily
    Location: London, UK
  • I'm so very sorry to hear of Simon's death. He was clearly a very special boy, and you are clearly a very special family. I cannot imagine how this feels for you, so can only send you my very best wishes. I will continue to think of you and of Simon often.

    Sunday, August 08, 2004 -- 16:53:34 (EDT)
    Name: B.J. -- Email:
  • I am so sorry for your loss. Lynn from Legacy told us to see the beautiful story at Simon's site about the waterbug.What a wonderful boy Simon was. I marvel how quickly Simon was "transformed" just like his special friend Alex, and can picture them soaring in the heavens together just like in the story he loved. MAy the Lord give your family His peace . Please know many are praying for you.

    Sunday, August 08, 2004 -- 14:54:52 (EDT)
    Name: Cam and Joan Borton
    Location: Jefferson, NH
  • Dear Mary, Markus, Miriam, Ann and Norm, When Madi and Lexi are with us here in New Hampshire we will watch the water bugs and the dragonflies that skim across our pond. We will think of all of you and of Simon and hold you in our hearts and prayers as we do now. Cam and Joanie Borton, "Papa and Nana" to Madi and Lexi

    Sunday, August 08, 2004 -- 13:06:35 (EDT)
    Name: Linda and Mell -- Email:
  • Dear Mary and Markus

    Our lasting thoughts of Simon will be his welcoming his boisterous cousins to play in his magnificant playroom last March. We belive this will also be the lasting impression of our grandchildren all of whom, like us, are saddened by Simon's passing on. All of you did your utmost, and it must be a very, very sad, strange and empty feeling to have an ending leaving you with thoughts and less to do. We hope to be with you to celebrate his bright life.

    You have been and continue to be in our thoughts and prayers. Love, Linda and Mell

    Sunday, August 08, 2004 -- 11:41:00 (EDT)
    Name: dean and stacie mason -- Email:
    Location: eden prairie, mn usa
  • We were so saddened to hear of your loss. Your family has been in our thoughts and prayers for some time now. We have no words of wisdom of our own in a time that surpasses all understanding. But, we thought we would share quote from C.S. Lewis (who has provided some help to us at other difficult times)...
    "We know not what we shall be; but we may be sure we shall be more not less than we were on earth. Our natural experiences (sensory, emotional, imaginitive) are only like the drawing, like pencilled lines on flat paper. If they vanish in the risen life, they will vanish only as pencil lines vanish from the real landscape, not as a candle flame that is put out but as a candle flame which becomes invisible because someone has pulled up the blind, thrown open the shutters, and let in the blaze of the risen sun."
    (from "Transposition" The Weight of Glory)
    Our prayers and thoughts will continue with you as your family now goes forward.
    Dean and Stacie Mason

    Sunday, August 08, 2004 -- 11:32:02 (EDT)
    Name: Gari Stein -- Email:
    Location: Ann Arbor, MI
  • Yesterday I went to a folk music festival in Manchester to celebrate Simon's life. Laz and San of Gemini were MCs. I told them of Simon's passing and later on when they were on stage, they shared the news with the audience and dedicated the song Shenandoah to Simon. It was a beautiful tribute to a beautiful boy in a lush green setting filled with the beauty of peace, love and joy. Love to everyone in Utah and beyond. Gari

    Sunday, August 08, 2004 -- 07:26:40 (EDT)
    Name: Doris Witmer -- Email:
    Location: La Crosse, WI USA
  • My daughter-in-law lives next door to the Craig's in Oberlin and introduced me to Simon's Place. I hope this paragraph will be of some comfort to Simon's extended family...Life is a festival on the way to freedom (Bonhoeffer). Death is a transition to another life. Yet I am not really gone. I am I and you are you in whatever we were to each other. Speak to me in the easy way which you always used. Put no difference into your tone...wear no forced air of solemnity nor sorrow. Laugh as we always laughed. Play, smile, think of me, pray for me. Let my name be spoken without affect. Life means all that it ever meant. I am waiting for you, for an interval, somewhere very near, just around the corner. All is well. Celebrate!

    Sunday, August 08, 2004 -- 01:29:23 (EDT)
    Name: Marc Berg -- Email:
    Location: Tucson, AZ
  • I trained in pediatric critical care medicine at primary children's in SLC in the late 90s and have remotely followed the story of your brave young son. I pray from the depths of my heart that your memories of him can somehow sustain you. I kissed my kids tonight just for him and your family. -marc

    Sunday, August 08, 2004 -- 00:39:59 (EDT)
    Name: Lynn Solis -- Email:
    Location: LaVergne, TN USA
  • I was reading the Salt Lake paper online and happened to read about Simon. I am deeply sorry for your loss. May the wonderful memories you have bring you comfort.
    My Deepest Sympathy,
    Lynn Solis

    Sunday, August 08, 2004 -- 00:25:01 (EDT)
    Name: Steve and Meg Robertson -- Email:
    Location: St. Paul, MN
  • Dear Mary, Markus, and Miriam,
    Thank you for sharing your dear Simon with us through this web site. In spite of never having met him, we feel as if part of Simon's spirit of life will always be with us. Love, Steve and Meg.

    Saturday, August 07, 2004 -- 23:07:26 (EDT)
    Name: Hansen Family -- Email:
    Location: Milford, NH
  • Dear Vodosek family. I am so sorry to hear of the passing of Simon. My heart poors out to you. As I write to you this evening I am looking at my 4 year old daughter Alex resting peacefully on the couch. Alex has just finished treatments for brain cancer and I dont know what our family would ever do without her. You are such a strong family and I hope that the Lord blesses you and your family.

    Saturday, August 07, 2004 -- 22:53:07 (EDT)
    Name: code_blue_wildcat413us
    Location: Butner, NC
  • pain is over.....and simon is free above waiting for ya.......please rememebr we all are here for you and never will forget him ........troy

    Saturday, August 07, 2004 -- 22:36:28 (EDT)
    Name: Don and Marion Robertson -- Email:
    Location: Chevy Chase, MD USA
  • Dear Mary, Markus, Miriam, Norm, Ann and family: We were so sorry to hear the news about Simon but were glad that you were all there together. Love the picture of Simon at the Exploratorium - know just how he felt!! We are thinking about all of you. Love, Don and Marion

    Saturday, August 07, 2004 -- 21:48:00 (EDT)
    Name: Heather -- Email:
    Location: Ann Arbor, MI US
  • My husband and I read of Simon's passing and want to extend our sympathies to your family. I want to thank you for sharing your son's journey with so many.

    Saturday, August 07, 2004 -- 21:22:28 (EDT)
    Name: Andrew and Louise Chang -- Email:
    Location: Ann Arbor, MI
  • Dear Miriam, Mary and Markus,

    Thank you for sharing your family's story. Our family has learned from and been inspired by Simon's courage as well as your love and strength. With our heartfelt condolences,

    Emma, Matthew, Louise and Andrew.

    Saturday, August 07, 2004 -- 20:45:08 (EDT)
    Name: Lori &amp Mike -- Email:
    Location: Sterling Heights, MI
  • There are no words that can be said when someone loses a child. He was a strong &amp brave boy. He will be missed. Please lean on people when you need to &amp remember that caring_hearts_n_hugs will be there too if ya need us.

    Saturday, August 07, 2004 -- 19:55:54 (EDT)
    Name: conner radcliffe &amp family -- Email:
    Location: s.l.c., utah
  • markus, mary, and miriam,
    we appreciate the times we were able to spend with Simon. we are very sad. our thoughts are with you.
    love, conner, chase, olivia, melissa, and david

    Saturday, August 07, 2004 -- 19:53:03 (EDT)
    Name: Don
    Location: , Canada
  • May God comfort and bless you at this time. May you and your family be able to always remember, share and be comforted by the wonderfull memories of your son

    Saturday, August 07, 2004 -- 18:14:48 (EDT)
    Name: claire
    Location: , England
  • god bless you all.

    Saturday, August 07, 2004 -- 18:03:23 (EDT)
    Name: Keri Anderson -- Email:
    Location: SLC, UT
  • Dear Mary, Markus, and Miriam

    My thoughts are with you today. Please tell Miriam that Ashley sends her love.

    Saturday, August 07, 2004 -- 17:47:23 (EDT)
    Name: Paige Winkler (12 yrs. old) -- Email:
    Location: Wisconsin Rapids, WI USA
  • My mom told me about Simon today and I was very sad. Although I do not know what it is like to lose someone to cancer, I know what it is like to "lose" someone. My younger brother Kaleb drowned at the age of 2. Although he survived he suffered severe brain damage and is not the same little brother I once knew. He cannot walk, talk, eat or play like he use too. He is 7 years old now and we have cared for him in our home every since. It has been difficult for us to watch him go through his treatments as well. I love him so much and would not trade him for the world. My brother Kaleb loves Butterflies and I know that Simon did too. I would like to share this with you.~~ Taking a person through a grief, a loss, a significant change during which time they may be "cocooned" off from the rest of the world while trying to heal, only to emerge after time, changed, transformed, metamorphosed into a different person. (Thus is the story of the butterfly) We are all different people..thanks to Simon and Kaleb! You have touched our family in so many ways. You are in our hearts and prayers.
    "See to it that you do not despise one of these little ones; for I say unto you, that in heaven their angels do always see the face of my father which is in heaven" (Matthew 18:10)

    Saturday, August 07, 2004 -- 16:36:38 (EDT)
    Name: Marta, Paul, Sam -- Email:
    Location: Ann Arbor,
  • We miss Simon, too. He did such a good job. His spirit is very much with us, and we are very much with you in our thoughts and hearts, as you go on to live with the sorrow of silence where Simon has been. May love and memory comfort you, and the knowledge that with you and all you did Simon lived the life he was granted fully and well, with a heart as big as all Kansas.

    All our love,
    Marta, Paul and Sam

    Saturday, August 07, 2004 -- 16:25:43 (EDT)
    Name: Frances Winkler &amp Family -- Email:
    Location: Wisconsin Rapids, WI USA
  • We just wanted to say how sorry we are about the passing of Simon. Words can not express our deepest sympathy. What a wonderful, brave little boy! Now, what a beautiful Angel!! See you on the "other side" Simon! You have given me courage and strenth..I thank you for that. May God Bless You Always!

    Saturday, August 07, 2004 -- 16:06:42 (EDT)
    Name: Quentin Smith -- Email:
    Location: Ann Arbor, MI
  • I am out of town and just now was able to check Simon's website. I am glad that Simon was peaceful and with his loved ones when he went on to his next life. We will all miss him. Love Quentin

    Saturday, August 07, 2004 -- 14:32:49 (EDT)
    Name: Abe and Lisa Bakhsheshy -- Email:
  • Dear Markus and Mary,
    We are deeply sorry for your loss. What a brave and beautiful young boy Simon was. We know that he will leave many beautiful memories with you and Miriam.
    Abe and Lisa Bakhsheshy

    Saturday, August 07, 2004 -- 13:22:52 (EDT)
    Name: Kris
    Location: Clinton, NY
  • What a wonderful tribute in the SLC paper -- to Simon and Alex and their indomitable spirits, and to Heather and Nicole and everyone else who works so tirelessly to raise funds for cancer research. And I'm sure that, like the rest of us, those who investigate potential new treatments can't help but be inspired by such stories.

    Take care,

    Saturday, August 07, 2004 -- 13:03:31 (EDT)
    Name: Ethel Lautenbach -- Email:
    Location: Grand Rapids, Michigan USA
  • My heart goes out to you with the passing of your precious Simon. I, too, have lost a son, and there is no sadness quite so deep. My prayers are with you..."God is our refuge and strength" (Psalm 46) Ethel Lautenbach

    Saturday, August 07, 2004 -- 11:21:08 (EDT)
    Name: stephanie saenz
    Location: slc, ut
  • thinking of you all. your strenght and courage have inspired the whole community. may you find comfort in knowing how much you have done for simon and everyone who has had the pleasure of knowing your amazing family. Simon is free at last. with much love.

    Saturday, August 07, 2004 -- 10:55:45 (EDT)
    Name: David Craig -- Email:
    Location: Indianapolis, IN
  • Claudia has said it best in a card she drew for Simon...

    Dear Simon,
    I hope your beautiful dream's still wander freely in heven.
    Rest in peace Simon. Love, Claudia

    We miss you all very much. With heavy hearts, fond memories and renewed hopes for all of you, we're thinking about you all the time.

    Love, David, Jocelyn, Claudia and Eliza

    Saturday, August 07, 2004 -- 09:59:17 (EDT)
    Name: Melissa -- Email:
    Location: Salt Lake City, UT USA
  • What an amazing story and a sweet little boy! Please know that you are in my thoughts and prayers! You are a very strong family! I hope if I'm ever faced with a situation similar that I too can be that strong.

    Saturday, August 07, 2004 -- 09:58:02 (EDT)
    Name: Gari Stein -- Email:
    Location: Ann Arbor,
  • Yesterday afternoon, before I knew of Simon's passing I drove into Kerrytown. There were ample parking spaces in front of the co-op which is unusual and I noticed that is was unusually quiet in the co-op and then again in the Kerrytown stores. I met a woman who I seldom see, she was dressed in black and gave me an unusually long hug. When I left I was still aware of the quiet and still. When I arrived home and read the news I felt that Simon's spirit was in Ann Arbor and that all was still allowing his presence and wisdom. My heart is more still this morning as Simon's spirit takes wings into the next part of his journey. My love is also with those of you left behind. May the arms of love embrace you today and always in these most difficult hours. Gari

    Saturday, August 07, 2004 -- 08:48:52 (EDT)
    Name: Martha Hiat (Gilbert) -- Email:
    Location: Topsham, Maine USA
  • Great Picture of Simon and his hardworking life! He has given us all a gift, and you all have given him tremendous love. My heart is with youin the coming days of changes - and Simon with you, in another place. Peace and Love, Marty

    Saturday, August 07, 2004 -- 03:35:14 (EDT)
    Name: Kathryn Bartholomew -- Email:
    Location: , Utah USA
  • It was a privilege to have met Simon as it is a privilege to have met such an incredible family. I’m so glad that you were all together in your own home when Simon passed.

    The following quote has never been more perfectly applied:

    Now cracks a noble heart. Good night sweet prince:
    And flights of angels sing thee to thy rest!

    Much Love,

    Saturday, August 07, 2004 -- 03:06:30 (EDT)
    Name: Diane Donnarumma -- Email:
    Location: Quincy, MA USA
  • I am very sorry to hear about Simon. We met breifly in NYC and I have thought about you often. I wish there were something i could do or say. God bless you and your family. "motherhood"

    Saturday, August 07, 2004 -- 01:13:06 (EDT)
    Name: erik
    Location: davidsonville, MD

  • The Lord is my shepherd; I shall not want. He maketh me to lie down in green pastures: he leadeth me beside the still waters. He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake. Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me. Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over. Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the Lord for ever.

    Psalm 23.

    God be with you all - Erik and family

    Saturday, August 07, 2004 -- 00:31:33 (EDT)
    Name: Amy, David, Jonathan and Miriam H. -- Email:
    Location: Ann Arbor, MI USA
  • Dear Mary, Markus and Miriam,
    We are so blessed that you allowed us to share a few of Simon's precious last moments. We know he has gone on to a place where he is no longer tethered to his port, or to his pain. Yet our hearts go out to you, with love and thoughts of peace and strength. May God and your community bring you comfort in these difficult times.
    Love, the Hamermeshes

    Friday, August 06, 2004 -- 23:47:24 (EDT)
    Name: Ruth Ann Church -- Email:
    Location: Ann Arbor, MI USA
  • Mary, Markus and Miriam:
    We were shocked to hear the news today. How could brave, amazing Simon die? We really only knew him during his first four years of life -- but those sure are a lot of memories! Thank you for the honor of knowing Simon through this website during the past 3 years while we've lived so far away. May God hold you in the palm of God's hand.
    - Ruth Ann and John

    Friday, August 06, 2004 -- 23:05:43 (EDT)
    Name: Elizabeth Kent -- Email:
    Location: Oregon House, CA
  • Simon's beautiful soul warms my heart. I send my love to you, Mary, Markus, Miriam. We are with you.

    Friday, August 06, 2004 -- 22:24:20 (EDT)
    Name: Lee Williams
  • Was sad to learn of Simon's dying this mnorning but know it was time and felt better knowing he was surrounded by his loving family right through to the end - the best way to go and he showed his strength and independence right to the end. My thoughts and prayers are with you a long with the wonderful community of friends and family in this journey. I send love and a great feeling of respect for your ability to share this difficult time with so many --and we could see Simon was ready to go. Lee

    Friday, August 06, 2004 -- 22:07:51 (EDT)
    Name: Lucy and Ben
    Location: Baltimore, MD USA
  • Dear Mary and Marcus and Mirium,
    Please know that we are with you and are sending out our love to you. I am picturing Simon at Crystal wearing one of the beautiful sweaters you knit him, Mary, wearing those great sandals with socks and with a huge grin and chuckle. I admire your spirit, perseverance and strength. We are all better for having known and loved Simon. Much love,
    Lucy, Ben, Grace and Logan

    Friday, August 06, 2004 -- 21:54:00 (EDT)
    Name: Rachael from SLC -- Email:
    Location: Santa Rosa, CA
  • Sleep in the stars, Simon. I'm honored to have known you.

    Friday, August 06, 2004 -- 21:45:34 (EDT)
    Name: Liddy, Martin, Justin and Jake -- Email:
    Location: Cambridge, MD
  • We, too, are weeping here in Cambridge, MD and only wish we could offer hugs in person. Simon was brave and a real fighter until the end. He will be missed! Our thoughts are with Mary, Markus, Miriam and the entire extended family. With love and tremendous support, Liddy, Martin, Justin and Jake

    Friday, August 06, 2004 -- 21:44:49 (EDT)
    Name: Rebecca
    Location: Oberlin,
  • Dear friends,
    Tonight we lit a candle for each of you, Mary, Markus, Miriam, and our dearly loved angel, Simon. We said our sorrows and wishes to each other; we remembered his sweet spirit together; we respected and admired your entire family as beacons of courage and love, especially Simon. Through our tears and hugs, Schuyler professed his certainty about Simon's reincarnation.

    From our family to yours - to all your extended family, too - we send you love and blessings at this sacred moment.

    Rebecca, Randy, Emma Rose and Schuyler Samuel

    Friday, August 06, 2004 -- 21:31:22 (EDT)
    Name: Sally Hennessy -- Email:
    Location: Ann Arbor, MI
  • Mary, Markus and Miriam,
    Thank you for sharing Simon with all of us. May you be comforted by the bounty of love that surrounds you today.
    Love, Sally, Alan, Nate and Hannah

    Friday, August 06, 2004 -- 21:02:59 (EDT)
    Name: Kathy Hoar -- Email:
    Location: Boca Raton, Fl USA
  • Dear Mary and family,
    My heart breaks for you at this time. We have not met but I feel I know you through the nb list serve. I sent a card in the mail as you have really given so much as this list serve and I did feel like I knew Simon.
    I am glad you were all together and that Simon was able to let you know he wanted to sit up. He was such a fighter.
    Thanks for sharing Simon and your family experiences with us. It has been very helpful.
    Aunt Kathy to Matthew, age 4, NBIV

    Friday, August 06, 2004 -- 20:22:58 (EDT)
    Name: Anne, Tom, and Johannes -- Email:
    Location: Northfield, Mn USA
  • Our hearts are breaking as we send our love to you all. The picture is so beautiful, transcendent, and clear. I love to think of Simon as an antelope, dear sweet soul, running free, with a head of curls hiding in there somewhere.

    We love all of you, and hope for peace and comfort in the coming days.

    Anne, Tom, and Johannes

    Friday, August 06, 2004 -- 19:46:13 (EDT)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY
  • Tears are flowing freely here, as we know they are elsewhere. This little boy, with wisdom and courage beyond his years, touched so many people in his short life. We will all miss him.

    But to those who knew him best, and will miss him the most, we send our deepest sympathy. You continue to be in our thoughts and prayers.

    For reasons I didn't entirely understand at the time, last night when I visited this website I ended up looking at some of the oldest photos in the photo gallery. But now I'm thinking that by looking backward in time I may actually have been glimpsing Simon as he is now: with a full head of curls, that impish grin, and no outward evidence of disease -- running free, without his port, as Mary wrote. He will be missed here, but I trust that where he is now he is once again whole ... and wholly himself.

    Bravo, Simon. Yours was a life very well lived. May we all learn from your fine example.

    Wishing you all, day by day, a little more peace in your hearts,

    Kris and Family

    P.S. The photo from the Exploratorium is a treasure -- thank you for sharing it.

    Friday, August 06, 2004 -- 19:43:55 (EDT)
    Name: Grandpa Gene and Grandma Gail -- Email:
    Location: Ashland, OH U.S.A.
  • Dear Markus, Mary, and Miriam, Myra myself and the kids had a great visit the day we went to Oberlin at your parents house Mary. It was a special day for us to meet all of you. Mary you had met Chris, Myra and Sweet Angel Luke and Madeline last year in Chicago and sang and danced with Luke to us that was special, they have talked of it often. Our hearts and prayers go to you and all your family. We have been keeping up on the list for word of Simon. Luke loved tag also there must be on big game going on and maybe some baseball, too. As screen savers we have pictures of the grandkids, great granddaughter,old and new, Pictures i took in Chicago this year, ect.also pictures Myra took the at your parents the day we were there. We are so greatful to have met Simon, we will never forget Angel Simon, bless his heart. Again i have no word that will make things better, only how very much we care, this goes for your parents Mary and all the family. Give Miriam a Hug and Kiss from all of us.
    Sweet Hugs From All The Sweets and Sweet Angel Luke, always

    Friday, August 06, 2004 -- 17:40:52 (EDT)
    Name: Amy Trahan -- Email:
    Location: Ann Arbor, MI USA
  • I am so sorry to hear of your loss. Thank you for sharing Simon and his story with us through this website; you are an inspirational family. It is clear that Simon was very loved by many people in his short life, and that he gave lots of love to others as well. My thoughts are with you at this difficult time.

    Friday, August 06, 2004 -- 17:25:30 (EDT)
    Name: Natalie Martin-Rak -- Email:
    Location: Jacksonville, FL
  • Our thoughts are with you.

    Friday, August 06, 2004 -- 17:09:39 (EDT)
    Name: Shelda Smith -- Email:
    Location: Ann Arbor, MI USA
  • I am very sorry to hear of the loss of your precious son, Simon. May God help you get through this very difficult time and bring you many good and wonderful things to each of you Miriam, Mary and Markus.
    Best to each of you,
    Shelda Smith

    Friday, August 06, 2004 -- 17:02:01 (EDT)
    Name: Peg Gordon -- Email:
    Location: Ann Arbor, MI
  • I was Heidi Hargesheimer's teacher assistant when Simon was in kindergarten. I know Simon will meet great people who have passed before him, but I also know the pain you all feel with him being off in the otherworld. You all are in my thoughts and prayers. Please take care of yourselves!

    Friday, August 06, 2004 -- 16:48:20 (EDT)
    Name: Carla Ruggiero -- Email:
    Location: Washington, DC USA
  • Mary, Markus, and Miriam – I’m not sure I can adequately express my sadness for your loss. Simon's illness and passing are so heartbreaking, but the memories of Simon's very full life are comforting. From our very first encounter, I have always been exceptionally impressed by your family -- your combined selflessness, values, strength, courage, and above all, resiliency. Observing your interactions as a family is truly inspiring, and I am so very fortunate to know you and to have known Simon. While I am deeply saddened that Simon is no longer with us here, I know that he remains with everyone whose life he ever lit up in our memories and our hearts and all of the lessons of courage and love Simon and each of you shared with us. All my love – Carla

    Friday, August 06, 2004 -- 16:43:07 (EDT)
    Name: Gari Stein
  • On the wings of a snow white dove Simon's journey begins into heaven. My heart overflows with joy to have known him in his sweet short life and I send you all the love I know. Gari

    Friday, August 06, 2004 -- 16:08:38 (EDT)
    Name: Amber Dimkoff -- Email:
    Location: , Europe
  • Dearest Mary, Markus, and Miriam,

    My heart, thoughts, and prayers are with you. Simon must be having a wonderful time right now despite how much we miss him.
    Love always,

    Friday, August 06, 2004 -- 16:03:15 (EDT)
    Name: Kathy Duderstadt -- Email:
    Location: san antonio, tx usa
  • We rejoice in the life of beautiful Simon!!!

    I told Marina earlier this afternoon that Simon had passed away. She looked
    around a bit...said she didn't understand...
    spent some time reflecting...and then said,
    "Simon was such a good person that....
    well....maybe....he'll become an antelope..."
    Then came some tears.

    Our love and thoughts continue to be
    sent to Mary, Markus, Miriam, and....of course...our good friend Simon. We also send our best thoughts and thanks to the family, friends, and health personnel who have and continue to help the family.

    Kathy, Nathan, Marina, and Jane

    Friday, August 06, 2004 -- 16:02:55 (EDT)
    Name: Keri Anderson -- Email:
  • God bless you, Simon, Mary, Markus, and Miriam. I am so glad that he was able to spend the last hours of his life with those around him that loved him and cared for him. God bless all of you.

    Friday, August 06, 2004 -- 15:39:03 (EDT)
    Name: Angie Hendrickson -- Email:
    Location: Grand Rapids, MI USA
  • Mary &amp family - I am so sorry for the loss of Simon and my heart just breaks for you. I was having a wonderful time getting to know him through his web page and learning of his ups and downs. It has helped us with our journey with Neuroblastoma so far. May you find strength and some peace in the next few days. Simon will be remembered forever. My prayers &amp Hugs.

    Friday, August 06, 2004 -- 15:14:10 (EDT)
    Name: Beth Hospadaruk -- Email:
    Location: Ann Arbor, MI
  • Dearest Mary, Markus and Mirium,
    Your little angel will always be with you. I'm sad you had to let him go.. too soon. I'm sending a very big, long, warm hug to you all. Be brave, like Simon....thank you for sharing him with us all,
    Love, Beth and family

    Friday, August 06, 2004 -- 15:10:18 (EDT)
    Name: Judi Stonik -- Email:
    Location: Ann Arbor, MI USA
  • Simon Vodosek, you are my hero. Your bravery will always live in my heart &amp mind. Miriam, Mary, and Markus: God's blessings upon you. Peace &amp love to all.

    Friday, August 06, 2004 -- 15:06:38 (EDT)
    Name: Sherry Powell, mom to Josh -- Email:
    Location: Knoxville, TN
  • Oh Mary &amp family,
    I am sooooo sorry for your loss! I will be eternally grateful our paths crossed &amp we got the pleasure of meeting sweet Simon. We will never forget him &amp his "Simon says" words of wisdom. We will continue to hold you close in thought &amp prayer.

    Friday, August 06, 2004 -- 15:05:29 (EDT)
    Name: A, S, R
    Location: Oakland, CA
  • Simon, Enjoy the ride!!! You will be missed by so many! We send embraces and all our love to the entire family. Love, Rowan, Steve &amp Annette

    Friday, August 06, 2004 -- 15:03:37 (EDT)
    Name: Lance -- Email:
    Location: Ann Arbor, Michigan
  • May God rest Simon's soul. And may God bless you Miriam, Mary, and Markus.

    Love, Lance

    Friday, August 06, 2004 -- 15:00:35 (EDT)
    Name: Jacqui &amp George Shambaugh
    Location: Oakton, VA USA
  • Please accept our deepest condolences. What a wonderful, brave boy Simon was, and what a wonderful job you did of helping him live fully in the short time he had.

    Friday, August 06, 2004 -- 14:56:08 (EDT)
    Name: Jill -- Email:
    Location: Seattle, WA USA
  • Mary and family,
    My mom let me know that Simon passed away earlier this morning. I am so sad and am thinking about all of you.

    Friday, August 06, 2004 -- 14:40:47 (EDT)
    Name: Bernadette Edens -- Email:
    Location: Birmingham, Alabama United States
  • Please accept my sincere condolences on the loss of your precious son. I pray that God will comfort you in your sorrow.

    Friday, August 06, 2004 -- 14:37:51 (EDT)
    Name: Madi, Lexi, Lawrie and Curt
    Location: Seattle,
  • Our tears are flowing. So glad you were all able to be together in Simon's final dying. Simon's portrait and photo are both strikingly beautiful each in different ways. We love you and continue to hold you all gently in our prayers.

    M,L,L and C

    Friday, August 06, 2004 -- 14:21:52 (EDT)
    Name: Jamie Hine -- Email:
    Location: Washington, DC USA
  • Mary, Markus and Miriam,
    There is a special place in my heart for all of you. Carla and I were both so blessed to know Simon. I know that we lost touch for some time, but I truly know that I bumped into Mary that afternoon on the street for a special reason; his name is Simon. I am always so thankful that he came back into our lives. For me, I will always remember Simon racing his new bike up and down the courtyard of family housing, slurpy and crunchy noodles from the Chinese restaurant, the excitement of building new playmobile and the fun we shared on the sculpture in front of the Art Museum. These were and will always be special memories for me. I pray for all of you and take comfort knowing that Simon is now looking over all of us.

    Friday, August 06, 2004 -- 14:20:37 (EDT)
    Name: Mary Walker -- Email:
    Location: Scottsdale, AZ USA
  • I'm so sorry to hear of Simon's passing. I'm praying for your family.
    In His Love

    Friday, August 06, 2004 -- 14:15:29 (EDT)
    Name: Stephanie Deal -- Email:
    Location: Lawrenceville, GA USA
  • My deepest sympathies for your loss, however, I know the angels welcomed Simon with open arms.

    Thank you for sharing Simon's story with the world and all of us.

    Friday, August 06, 2004 -- 14:07:31 (EDT)
    Name: Sylvia -- Email:
    Location: Allentown, PA
  • Dearest Simon, heaven is a special place this past month, with such special children taking over residence there. Sitting up...yes!...I would want to be sitting up and seeing where I'm going. I like that. xxxooo

    Simon's family...I am so sorry. Thank you for sharing your journey. Love, Sylvia

    Friday, August 06, 2004 -- 13:59:00 (EDT)
    Name: Kare, Kirk, &amp Mark -- Email:
    Location: Ann Arbor, MI
  • How sad we are to hear this news. We hope the peace that Simon now enjoys will also find its way into the grieving hearts of those he has left behind.

    Friday, August 06, 2004 -- 13:52:54 (EDT)
    Name: Katrina Zook -- Email:
    Location: Laramie, WY
  • Dearest Vokosek family,
    Words cannot express my heartbreak at the loss of your beautiful little boy. Simon had a more profound family/love experience during his short life on earth than most do in a much longer lifetime. You all must know that you did everything right. What a wonderful gift and life you gave him. I will remember Simon and youf family for your strength, courage, and grace. Much love, Katrina

    Friday, August 06, 2004 -- 13:41:23 (EDT)
    Name: Gretchen Spreitzer -- Email:
    Location: Ann Arbor, MI
  • It's hard to put into words the incredible loss we all feel regarding Simon. However, I take deep comfort in the fact that he was so loved and created so much love in his short life --- so much more than the great majority of people experience in their whole lives. We will always hold Simon in our hearts. Love, Bob, Gretchen, Maddie, and Sophie.

    Friday, August 06, 2004 -- 13:41:06 (EDT)
    Name: Sarah Williams -- Email:
    Location: Salt Lake City, UT USA
  • I'm so sorry to hear about Simon's passing. I hope your family is feeling some peace during this difficult time. We are praying for you all!
    Love, Sarah

    Friday, August 06, 2004 -- 13:40:48 (EDT)
    Name: Caroline, Matt and Hava -- Email:
    Location: ann arbor, mi usa
  • Dearest Mary, Markus and Miriam,
    I wish we could be there to hug you and grieve with you, but the waterbug story really helped me, which i hadn't read until I heard today's news. You raised a wonderful boy and you helped his passing in the most compassionate, brave and selfless way. We love you all.

    Friday, August 06, 2004 -- 13:36:47 (EDT)
    Name: matt kaplan -- Email:
    Location: ann arbor, MI
  • Dear Mary, Markus, and Miriam,

    We were so sad to read of Simon's passing. He was a very strong and special child, and we know you will miss him terribly. All of you have been such an amazing support for Simon over the past three years and, especially, during his last few weeks. We hope you take comfort in each other and the many memories you have of Simon. Our thoughts and prayers are with you all.
    With love,
    Matt, Caroline, and Hava

    Friday, August 06, 2004 -- 13:21:37 (EDT)
    Name: The Connollys -- (another NB Family) -- Email:
    Location: Fenton, MI USA
  • We were so sorry to hear about Simon's passing. We pray the Lord provides your family with strength, guidance and peace during this difficult time.

    Friday, August 06, 2004 -- 13:21:21 (EDT)
    Name: Paula Caproni -- Email:
  • Dear Mary, Markus, and Miriam:

    I am very saddened to hear of Simon's passing, and I thank you for your devotion in keeping us informed of Simon's progress and for those wonderful photographs you posted on the website. Speaking on behalf of my family, we wish you the comfort of family, friends, and sweet memories. And, to Simon, we wish you a sweet and peaceful journey.
    Love, Paula, Charlie, Julia and Leah

    Friday, August 06, 2004 -- 13:14:27 (EDT)
    Name: Shirli Kopelman -- Email:
    Location: New Orleans,
  • I only recently met you all when you came to graduation in Ann Arbor, but was deeply touched by the warmth you shared with each other and your extended family-community. It is apparent that Simon's love and courage throughout this journey will be remembered by so many people, even those he so breifly touched. I hope this knowledge will serve to comfort you - the immediate family - who will miss him so very dearly in days that come. Sending you warm wishes, Shirli

    Friday, August 06, 2004 -- 13:10:04 (EDT)
    Name: amy -- Email:
    Location: ann arbor, mi
  • Dear Mary, Marcus and Miriam:
    I weep for you all and thank you so much for leaving us with the transcendent portrait of Simon. When I get home from work today, I will share the waterbug story with my son Jesse and then propose that we release the tadpole we've raised into a frog to be free. The day I read the waterbug story is the same day that we found the frog, for the first time, perched on a rock in the acquarium with his head above water as he made his transition from his first life to his second, breathing air instead of water. We always said we'd let him go when he became a frog but never knew when we would know what would be the right time. It will be a wonderful "teachable moment" with my son and mean that Simon will live on for all of us everytime we scan a stream for tadpoles or, as seems to be increasingly rare, see a live frog in the wild. With profound sorrow and thanks for the gifts you have bestowed on all of us in the Simon's Place community.

    Friday, August 06, 2004 -- 12:42:12 (EDT)
    Name: Paulina Pevitt -- Email:
    Location: Mount Gambier, SA Australia
  • Dear Mary and family, I am deeply ssadened to hear of Simon's passing. My love and prayers are with you. Heartfelt tears and huge gentle hugs from The Pevitt family in AUstralia xxxx

    P. S one sweet day

    Friday, August 06, 2004 -- 12:41:30 (EDT)
    Name: Paulina Pevitt -- Email:
    Location: Mount Gambier, SA Australia
  • Dear Mary and family, I am deeply ssadened to hear of Simon's passing. My love and prayers are with you. Heartfelt tears and huge gentle hugs from The Pevitt family in AUstralia xxxx

    P. S one sweet day

    Friday, August 06, 2004 -- 12:41:09 (EDT)
    Name: Marcie Obstfeld -- Email:
    Location: Irvine, CA USA
  • Dear Mary, Markus and Miriam:
    How sad we are that Simon has passed. As I was told after my Dad died a few years ago, he will live on in your hearts, in your photos, in your stories and your thoughts. I recall the fun we had a few years ago at his birthday party in back of your old apt., the meals at Seva, the drumming at Gari's, the sweet child with that mass of curls. I know he will be missed very much. May you find some comfort in your family and friends. Lots of love, Marcie, David, Rachel and Noah

    Friday, August 06, 2004 -- 12:21:14 (EDT)
    Name: kay kirk heather and tyler -- Email:
    Location: Park City, UT
  • We love you Simon. We have learned so much from you. We have a newfound love for life and Captain Underpants! You are a beautiful soul and you will be missed! Love from kay, kirk, heather and tyler

    Friday, August 06, 2004 -- 10:20:34 (EDT)
    Name: Liddy, Martin, Justin and Jake -- Email:
    Location: Cambridge, MD USA
  • I am imagining Mary cradling Simon. I am imagining Markus coming and giving hugs and kisses and Miriam keeping the house lit up with her voice and dance. We are thinking of all of you and know how much you are loved and supported by just reading the message board. You are a beautiful, unique and strong family. We love you, Liddy, Martin, Justin and Jake

    Thursday, August 05, 2004 -- 23:39:57 (EDT)
    Name: Dannille Smith -- Email:
    Location: Ann Arbor, MI
  • Simon and Family,
    When I read your updates,I am reminded of a family member's final stage of cancer 8 years ago. How precious these days you have together truly are and how treasured those memories are to me. Sitting, cuddling, holding, praying, singing. One of the songs that I remember most, we sang softly:
    "Soon and very soon,
    we are going to see the King.
    Soon and very soon,
    we are going to see the King.
    Soon and very soon,
    we are going to see the King.
    Alleluia, Alleluia,
    we're going to see the King."

    Still working on the Lemonade Stand in Simon's honor to be held August 21.
    (Ann Arborites or anyone, contact me to help...)

    You are all very special and very wonderful. Peace and comfort to all of you.
    Dannille Smith

    Thursday, August 05, 2004 -- 23:00:28 (EDT)
    Name: Iris -- Email:
    Location: Brisbane, Qld Australia
  • I am holding all of you in my thoughts and prayers. The waterbug story is absolutely beautiful. Everyone in your NB family is thinking of you and sending our love out to you.
    Gentle Hugs

    Thursday, August 05, 2004 -- 23:00:09 (EDT)
    Name: Iris -- Email:
    Location: Brisbane, Qld Australia
  • I am holding all of you in my thoughts and prayers. The waterbug story is absolutely beautiful. Everyone in your NB family is thinking of you and sending our love out to you.
    Gentle Hugs

    Thursday, August 05, 2004 -- 16:30:54 (EDT)
    Name: Jeanine -- Email:
    Location: Chicago, IL USA
  • I saw your website and I am praying for you! You are very special AND you are very special to God. Jesus loves you and died for you so you could have a home in Heaven with Him someday. If you trust Jesus to save you from sin and hell, He will take you to Heaven to be with Him forever! I will pray that you will know that Jesus loves you and that you will be with Him in Heaven one day!

    Thursday, August 05, 2004 -- 15:00:07 (EDT)
    Name: Madi, Lexi, Lawrie and Curt
    Location: Seattle,
  • Madi took great comfort in learning that your friend had come to play some wonderful music for Simon (and you). After we read you message Madison put her arm around me and signed/said "Music can help Simon. It can help him feel better inside. Music can help everyone."

    We are with you in spirit.

    M, L, L, and C

    Thursday, August 05, 2004 -- 14:27:25 (EDT)
    Name: Sylvia -- Email:
    Location: Allentown, PA
  • Happy Thursday Simon! I keep checking in on you and hope that you are resting comfortably...but no doubt about that with all the love of your family and friends surrounding you. God Bless You All. Peace to you. Love, Sylvia xxxooo

    Thursday, August 05, 2004 -- 06:52:44 (EDT)
    Name: Jane -- Email:
    Location: Ann Arbor, Michigan
  • Dear Markus, Mary, SImon and Miriam,

    As the sun arrives for another day, we are thinking of you-- all of your strength and wisdom. We send you peace in this day. May its splendor bless each of you. Love, Jane, Lance, Cara and Emily

    Thursday, August 05, 2004 -- 01:18:49 (EDT)
    Name: Rachael Coleman -- Email:
    Location: Santa Rosa, CA
  • (((((Simon and loved ones)))))
    You all are held so near. I just spent two days at Harbin Hot Springs. Thought of Simon a lot while I was there. Today we saw an amazing orange dragonfly. I told my friends the waterbug story and talked about Simon for a while. After a couple minutes a second orange dragonfly joined the first and flew around the heart-shaped pool of warm water. It was all so beautiful. Every moment is a gift.
    Much love, Rachael

    Thursday, August 05, 2004 -- 00:37:20 (EDT)
    Name: Julie Dybdahl -- Email:
    Location: Ann Arbor, MI USA
  • Mary --
    Thank you for keeping us all updated. Simon has a 7 year old's lungs and heart -- they just keep on chugging along. This is what happened with our dear Allison, and I know how hard, but how precious these last days are.

    I'm glad to see you have the Water Bug Story. We have it too, only ours has a different title. I'd been looking for our copy to send to you, but I'm glad you already have it. It does help.

    Much love and strength to all of you,

    Wednesday, August 04, 2004 -- 23:32:54 (EDT)
    Name: Anne, Tom, and Johannes -- Email:
    Location: Northfield, MN USA
  • Dearest Simon, Miriam, Mary, Markus, Granarella, and Granddad Norm,

    Let me add our voices and our thoughts to the hundreds of others who stand by you through these days. We hope for peace, and painless days and nights for dearest Simon, and strength and solace for all of you dear sweet souls. If there is strength in numbers, know that we are all here, and there, in a way, sending our love as comfort and a guiding light.

    we love you,

    Anne, Tom, and Johannes

    Wednesday, August 04, 2004 -- 22:44:33 (EDT)
    Name: David Craig -- Email:
    Location: Indianapolis, IN
  • Dear Simon, Miriam, Mary, Markus, Grann, and Granddad,

    Though we are far away, our thoughts are with you all--and all of the many amazing folks gathered around you there in Salt Lake.

    Love, David and the rest of the Sisson-Craigs

    Wednesday, August 04, 2004 -- 22:23:44 (EDT)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY
  • Simon, you are amazing -- how strong and how patiently persistent you are, even with all you've been through.... But it makes perfect sense, really, given the family into which you were born. All of you inspire us, each and every day.

    We continue to think about you and to wish you all peace:

    "And God will raise you up on eagle's wings,
    Bear you on the breath of dawn,
    Make you to shine like the sun,
    And hold you in the palm of His hand."

    Kris, et al.

    Wednesday, August 04, 2004 -- 21:20:58 (EDT)
    Name: The Hammer's -- Email:
    Location: Lakeland, MN USA
  • Dearest Ones,
    I have been holding Simon and your family close in prayer each day and will continue to do so. My heart pains so much for you. Simon is an extraordinary young man and I know how very, very proud you are of him.

    God be with You.
    With Much Love and Respect,
    Vic and Sara Hammer

    Wednesday, August 04, 2004 -- 20:29:00 (EDT)
    Name: Gari Stein
    Location: Ann Arbor, MI
  • Loving you all and sending you thoughts and prayers of comfort and peace. Always, Gari

    Wednesday, August 04, 2004 -- 20:11:14 (EDT)
    Name: Kathryn Bartholomew -- Email:
    Location: Uintah National Forest, Utah USA
  • Dearest Friends,

    I am staying at a beautiful lodge in Daniel's Canyon (fairly near Strawberry Reservoir) in the Uintah National Forest. I have stayed in my room, mostly, because I'm trying to write a wedding ceremony for my brother and his fiancée which I am to officiate in a little over a week. But from my windows...there stands indescribably beautiful nature. The lodge property, that only goes twenty yards or so from the buildings, is cursorily marked by a log fence. Beyond that is the woodland. Majestic lodge-pole pines, coarse underbrush, yellow wildflowers and the ubiquitous quaking aspens. I keep the window open so that I can hear their gentle sound. Last night I also listened to the sounds of fantastic downpour; it descended thunderously for a while on the roof of the lodge. When it abated somewhat, I heard the rain falling on the forest and the grasses. I went out on my little balcony and sat in a rocking chair (a privilege the mosquitoes make challenging, otherwise). I rocked for a bit and thought of those for whom I care.

    You are all always in my thoughts. I check the website often (yes, unbelievably there is an internet connection here even though I’ve no cell phone coverage whatsoever). I hope for all of you to have comforting, enduring peace.

    Out my window, there is a single, brand-new tree; a mere ball of tiny leaves atop a slender, fragile “trunk.” It grows quite solitary amidst the meadow grasses. To me it has, somehow, been an embodiment of Simon - perchance because it is a frail, lovely thing struggling to reach another place – I’m not sure. Whatever the case, I am certain that its delicate appearance belies its actual resilience. It survived last night’s downpour; I believe it has the fortitude to do whatsoever it must.

    Love and peace to you,

    Wednesday, August 04, 2004 -- 19:46:11 (EDT)
    Name: Brian -- Email:
    Location: SLC, UT
  • Simon,
    You're my Superman, kiddo... And your family is the rest of The Justice League.

    Love, Brian

    Wednesday, August 04, 2004 -- 19:03:11 (EDT)
    Name: Marta, Paul, Sam -- Email:
    Location: Ann Arbor,
  • This note is just a record of our daily thoughts of you, wishing Simon every peace and comfort, and hoping that it is some comfort to Mary, Markus and Miriam that we will remember him always and know ourselves changed and enlarged by having been able to know him.

    Marta, Paul and Sam

    Wednesday, August 04, 2004 -- 17:35:43 (EDT)
    Name: Carol Shultheis
    Location: Ann Arbor,
  • Dear Simon, Mary, Marcus and Miriam,
    You are all such amazing, brave wonderful people. You have certainly given Simon and Miriam as full lives as possible under such challenging circumstances. You are an inspitation. I hope Simon's days are peaceful, and that you will find the strength you need. Wish I could be there to give you all a huge hug. Love, Carol

    Wednesday, August 04, 2004 -- 15:56:56 (EDT)
    Name: Keri Anderson -- Email:
    Location: SLC, UT
  • Hello to Mary,Markus, Simon, and Miriam,

    I pray for your family to recieve divine strength as the end nears. You have been through so much, and I pray for your endurance through these final hours.

    Wednesday, August 04, 2004 -- 15:41:11 (EDT)
    Name: Madi, Lexi, Lawrie and curt
    Location: Seattle,
  • We are holding you all are in our hearts, minds and prayers each day and night. Gentle peace to you Simon. We love you now and forever.


    Wednesday, August 04, 2004 -- 15:34:30 (EDT)
    Name: Karan &amp Steve Cutler -- Email:
    Location: Essex, VT
  • We hope Simon's passage to another life is swift and peaceful, and that there is some comfort in knowing that you filled his life with fun and joy and laughter up to the end. We have nothing but awe for your strength, and for his.

    Wednesday, August 04, 2004 -- 13:35:36 (EDT)
    Name: Shannon McBride -- Email:
    Location: Cave Junction, OR
  • Hi Simon,
    Michael Steelman directed me to your website. Do you remember the Heidelberg Project in Detroit? I remember I met you there. You are in my thoughts.
    Blessings from Oregon.

    Wednesday, August 04, 2004 -- 12:04:48 (EDT)
    Name: Lindsay Gross Wilkinson
    Location: Grand Rapids, MI
  • Thinking about you, thinking about you &amp thinking about you some more. Truly &amp totally amazed by the Craig-Vodosek strength, courage, and love!

    Wednesday, August 04, 2004 -- 08:07:22 (EDT)
    Name: Connie Lippert -- Email:
    Location: Ann Arbor, Michigan US
  • Hello Simon,
    We are thinking about you every day and hoping your journey is full with joy and peace. Here is my favorite poem. I hope you like it.
    "Speak to him, thou, for he hears, and
    Spirit with Spirit can meet,
    Closer is he than breathing and
    nearer than hands and feet"
    It's from a man named Tennyson.
    Love to your Mom and Dad and Miriam.
    Your friends,
    The Lipperts

    Wednesday, August 04, 2004 -- 08:05:09 (EDT)
    Name: Sally Hennessy -- Email:
    Location: Ann Arbor,
  • Peace to you brave Simon. Love to you all from Wendy St. in A2. Mary your strength and wisdom is an inspiration. Thank you for being you.

    Wednesday, August 04, 2004 -- 07:20:38 (EDT)
    Name: Lee Williams
  • Am home in Baltimore after a good stop with Simon's grandfather in Oberlin - he was leaving to go to Utah the day I left to come back to Baltimore. Granella is a good name for Ann - so glad she can be there. I send lots of love for rest and peace for Simon - think of you all often. With lots of love - lee

    Wednesday, August 04, 2004 -- 00:18:29 (EDT)
    Name: Madeline Kachocki -- Email:
    Location: Salt Lake City, UT USA
  • Hi Simon I miss you a lot. I hope you are feeling well. You are a good friend to me. I had fun with you in Ms. Eaton's class. Thank you for inviting me and my brother, Evan, to your party.

    Madeline and Evan Kachocki

    Tuesday, August 03, 2004 -- 23:31:13 (EDT)
    Name: Sally
    Location: Seattle,
  • Sending love and hopes for rest and peace.

    Tuesday, August 03, 2004 -- 22:26:21 (EDT)
    Name: Sylvia -- Email:
    Location: Allentown, PA
  • Thinking of you right this very minute and sending hugs your way. xxxooo

    Tuesday, August 03, 2004 -- 19:28:14 (EDT)
    Name: Katrina Zook -- Email:
    Location: Laramie, WY
  • Dearest Mary and family,
    You and Simon are constantly in my thoughts. I will continue to pray for Simon's comfort, your strength, and peaceful transitions. Much love, Katrina

    Tuesday, August 03, 2004 -- 18:59:34 (EDT)
    Name: a,s,r
    Location: oakland, ca
  • Thanks for the waterbug story. I look forward to reading it to Rowan tonight. Sending love your way. Enjoy your new wings simon hope we all will fly together again someday.

    rowan, steve and annette

    Tuesday, August 03, 2004 -- 17:46:27 (EDT)
    Name: Ginny Taylor -- Email:
    Location: Olympia, WA
  • I am a long-time friend of Simon's and Miriam's Great Aunt Betty. I am so inspired by the love and courage of your family. Here we, too, sing: "Go now in Peace...May the spirit of love surround go."

    Tuesday, August 03, 2004 -- 16:44:13 (EDT)
    Name: Rebecca
    Location: Oberlin,
  • Dear ones,
    We are thinking of you all the time. We send our love and hugs.
    Rebecca, Randy, Emma and Schuyler

    Tuesday, August 03, 2004 -- 13:21:59 (EDT)
    Name: Helen (Aunt to Ryan with NB) -- Email:
    Location: Washington, Michigan USA
  • We just returned from Hawaii where we say rainbows everday. I believe they are from God in Heaven above smiling down on us wishing us well. We send you rainbows, and smiles.

    Tuesday, August 03, 2004 -- 12:34:34 (EDT)
    Name: The Connolly Family (another NB Family) -- Email:
    Location: Fenton, Michigan USA
  • To the Vodosek Family:

    You are in our thoughts and prayers during this difficult time.

    Tuesday, August 03, 2004 -- 12:24:18 (EDT)
    Name: Joann -- Email:
    Location: housatonic, massachusettes usa
  • To Simon and family:
    I have been following your story for some time now and I just wanted to say how very sorry I am for the pain you are going thru and to let you know you are in my thougts and prayers everyday.
    all my love

    Tuesday, August 03, 2004 -- 12:10:26 (EDT)
    Name: Dannille Smith -- Email:
    Location: Ann Arbor, MI USA
  • Your family is constantly in our thoughts and prayers. Many, many people whom you don't even know are with you in spirit as well. The waterbug story is beautiful.

    We will be holding an Alex's Lemonade Stand in Simon's honor on either the 14th or 21st of August in conjunction with our garage sale (we hope to get lots of traffic!). If any Ann Arborites are interested in helping/participating with us so we can make it BIGGER (the Lemonade stand, that is...), please contact me.

    We will let you know how it goes.
    Peace and love to dear, sweet Simon and all of you.
    Dannille Smith

    Tuesday, August 03, 2004 -- 11:26:19 (EDT)
    Name: Julia, Christoph, Serena and Alma -- Email:
    Location: Frauenfeld, Switzerland
  • Wishing you all calm, peace and love as the end nears. You are constantly in our thoughts.

    Tuesday, August 03, 2004 -- 10:57:24 (EDT)
    Name: Jack Winter -- Email:
    Location: Salt Lake City, Ut
  • Thank you to Simon and his wonderful family for the love and courage you have been able to give us all.

    Tuesday, August 03, 2004 -- 02:40:10 (EDT)
    Name: Nicole Bishop -- Email:
    Location: SLC, UT
  • Sending all of my love and wishing you a peaceful night.
    Love, Nicole

    Tuesday, August 03, 2004 -- 00:11:20 (EDT)
    Name: Mary Craig -- Email:
    Location: Salt Lake City, UT USA
  • 10:00 pm (the cgi server seems to give odd times)

    Still hanging on. Settling down to sleep. Loving our time together. Hoping Simon stays comfortable.



    Monday, August 02, 2004 -- 23:57:40 (EDT)
    Name: Rachael Coleman from SLC -- Email:
    Location: Santa Rosa, CA
  • (((((Simon and Family))))) May pure love continue guide you on your journey.

    I flew to California this morning. I'm staying in Santa Rosa with my girlfriend, her daughter, and new granddaughter. I haven't had sweet baby energy around me in so long. What a perfect vacation for me. On Saturday we will pick up Maggie from Camp Winnarainbow. This year she's learning to walk on stilts. She qualified to move from shorty stilts to tall stilts in just one day. They put on a big performance on the last day. All the kids show off the talents they've perfected over their two weeks at camp.

    Sorry to hear about (((Alex))). May the four winds blow her safely home. My thoughts and prayers are with her family too. Thank you for letting us know, Mary.

    Monday, August 02, 2004 -- 23:55:15 (EDT)
    Name: Kerianne Tupac -- Email:
    Location: Ann Arbor, MI USA
  • Hi Simon! I was happy I was able to see you briefly during my trip to Salt Lake. You have a beautiful house! What a great play room you and Miriam share with all those windows.

    I thought about you and your family all week during my trip. My prayers along with my family's have been with you, Miriam, Mary, Markus, and Grann.

    A long time ago when I was in college, we sang this song. Your incredible strength is truely a sign that you are stilling singing to us.

    Yearnings by John Carter

    Oh for a day to walk again, slow through a forest deep.
    Oh for the time to talk again, before I go to sleep.
    Oh for the warmth of summer sun, the chill of winter’s eve
    And oh for a chance to sing my song, once more before I leave.

    Oh for the scent of autumn air brisk and clean and cold
    Oh the time to travel where the seas are blue and bold
    Oh for the prayer I never prayed, the kiss I never kissed
    And oh for a chance to sing my song, once more, while yet I’m missed.

    Cry of bird and wail of wind,
    Word unspoken, sin un-sinned,
    A night to dance, a hill to climb,
    The chance to sing while there is time.

    Oh for the taste of meat and ale to linger on my tongue.
    Oh for the sight of hill and dale, and faces that are young.
    Oh for the hand of one I love, the time to bloom and grow;
    And oh for the chance to sing my song, once more, before I go.

    God Bless.
    Kerianne and Bryan

    Monday, August 02, 2004 -- 23:29:22 (EDT)
    Name: Debbie Hume -- Email:
    Location: San Luis Obispo, CA USA
  • Simon,our friend, our love, We humbely come before God to ask that he protect you and give you peace. We love you buddy and pray for you often. Sincerely, Hume family

    Monday, August 02, 2004 -- 23:01:09 (EDT)
    Name: jesse reed -- Email:
    Location: Salt lake, Utah
  • I hope you don't hurt anymore. I'm glad that we were in the same class together. I have been praying for you.
    Love, Jesse

    Monday, August 02, 2004 -- 22:38:57 (EDT)
    Name: Gari Stein
    Location: Ann Arbor, MI
  • Blessings on Alex and love to you all. Gari

    Monday, August 02, 2004 -- 18:08:28 (EDT)
    Name: Ethan -- Email:
    Location: New York, NY USA
  • Simon,

    Greetings from hot and muggy New York City.

    We send you love and peace or, as Rona would say, "ahava" and "shalom".

    - Ethan

    Monday, August 02, 2004 -- 15:41:32 (EDT)
    Name: Jane Bishop -- Email:
    Location: Ann Arbor, MI
  • Simon, your spirit reminds me of a lovely Gaelic poem which I have always loved:
    "Be like the bird who in his flight, pauses on branch too slight, yet SINGS, knowing that he hath WINGS"

    Mary and family, you can all take comfort in the knowledge that Simon will use his wings of love which you gave him, and keep on singing!

    All my love, Jane

    Monday, August 02, 2004 -- 14:34:01 (EDT)
    Name: Kelly Robinson -- Email:
    Location: Franklin, Mn
  • Hello from Minn.

    We have been following Simon's journey for some time now, and especially the past few weeks. You are all doing such a Great job of taking care of this little guy, and keeping us updated on everything! You are in our thoughts constantly, and we are Praying for peace, comfort, and ease as Simon leaves us for his next place. Give Simon a sweet kiss from me Mary, and know that you are all deeply in our hearts.

    With Love &amp Peace

    Kelly &amp Tom Robinson
    Bryan, Sydney
    Sam &amp Carl

    Monday, August 02, 2004 -- 13:53:58 (EDT)
    Name: Marty Hiat -- Email:
    Location: Topsham, Maine USA
  • God Speed and God Bless. Keep up the Good Work. - Marty, China and all the goodness from the Great Northern.

    Monday, August 02, 2004 -- 12:40:52 (EDT)
    Name: Keri Anderson -- Email:
    Location: SLC, UT
  • Good morning Simon, Miriam, Mary, and Markus! I have been thinking of you non-stop. Thank you for the precious time I got to spend with you and Simon. To me he looked so beautiful, so beloved. I wish everyone could be born into a family as loving and dedicated as yours.

    Monday, August 02, 2004 -- 10:40:18 (EDT)
    Name: Christie Brown -- Email:
    Location: Ann Arbor, MI
  • Hi to Simon and family

    Yesteday and today have been beautiful, beautiful days in Ann Arbor: sunny, cloudless, and just a little bit too warm--just too warm enough that you feel that Someone is trying to get your attention, but not so warm that you are unhappy about it. Just warm enough to feel energetic and hopeful.

    As I drove along I felt that the sun was Simon's own energy and hope dispersing into the Universe, like he was putting it up there for us to use, because maybe he isn't going to use it himself for much longer.

    So that on every sunny day forever we will look up at the sky and say "Hi Simon thanks for the smile."

    Peace from sunny Ann Arbor.

    Monday, August 02, 2004 -- 09:32:52 (EDT)
    Name: Gretchen Spreitzer -- Email:
    Location: Ann Arbor, Mi USA
  • Simon, Miriam, Mary, and Markus,
    You are an inspiration to me. You remind me to hug my girls tighter every day, to savor the little things in life like the sound of a heart beating and a little voice speaking. Thanks for having the courage to share your incredible journey with us every step of the way!

    Monday, August 02, 2004 -- 08:59:59 (EDT)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY
  • I am glad to learn that Simon remains relatively comfortable and that you all are able to enjoy resting together -- those hugs and cuddles must seem all the more precious now.

    I also wanted you to know what Laura suggested the other day when I told her Simon's journey with cancer was coming to an end: "You know my friend Paul, who died in Kindergarten? Well he could maybe meet Simon in Heaven and show him around and stuff. Maybe they'll even get to be good friends!"

    May Simon have as many (and more) friends in Heaven as he's cultivated here on Earth. And may those of us who are left behind find comfort in that thought....

    Our prayers continue to be with you. You guys are amazing and such an inspiration for all of us. Love,

    Kris, Rob, Emily, Danny, and Laura

    Monday, August 02, 2004 -- 07:57:54 (EDT)
    Name: Tina -- Email:
    Location: Kingston, Ontario Canada
  • Wishing you love and peace. Tina

    Monday, August 02, 2004 -- 06:31:28 (EDT)
    Name: Heather -- Email:
    Location: Buxton, England
  • Mary, we love you so much. Simon, you are an inspiration and we are proud to call you our friend - hope you have a lovely restful, peaceful day today.
    We have laughed and cried with you all over the last few months and you can be sure we will still be here sending you our love and support in the days to come. Our hearts are bursting with sadness but also with amazement- you wonderful people!
    all our love, Heather, Tim, Amie and Susie

    Monday, August 02, 2004 -- 04:11:22 (EDT)
    Name: Iris taylor -- Email:
    Location: Brisbane, Queensland Australia
  • Mary, I have to agree with something you once posted in Simon's sayings. You are both the same, and you are both perfect. My heart is breaking for you. Hugs, Iris

    Sunday, August 01, 2004 -- 22:19:06 (EDT)
    Name: Sylvia -- Email:
    Location: Allentown, PA
  • I love the Waterbug story. When I was 13 yrs old my best friend died of cancer and the minister who gave comfort to their family at Johns Hopkins sent it to me when Ann died. I continue to share the Waterbug story with my hospice patients.

    They are there Simon, ones who have gone before you. They will greet you and show you around. Don't be afraid sweetheart. I'm praying for you on your journey. God Bless. xxxooo

    Sunday, August 01, 2004 -- 20:28:18 (EDT)
    Name: Ashley and Keri Anderson -- Email:
    Location: SLC, UT
  • Ashley and I are thinking of you and your wonderful family, and are so grateful for your examples of strength and love. Ashley says she wishes for Miriam to be happy.

    Sunday, August 01, 2004 -- 17:12:41 (EDT)
    Name: Lynda Newman -- Email:
    Location: Gainesville, Florida USA
  • Simon, I wanted you to know that Quentin Smith introduced you to me today. I had just met Quentin for the first time yesterday. He has so much love in his heart for you as so many others do. You are truly an inspiration to many. God Bless You &amp Hold You In His Arms. xo

    Sunday, August 01, 2004 -- 16:46:21 (EDT)
    Name: Joan and Cameron Borton -- Email:
    Location: Portland, Maine USA
  • We enfold Simon and all of you in God's infinite compassion. You are in our hearts.
    Madi and Lexi's Nana and Papa

    Sunday, August 01, 2004 -- 16:45:16 (EDT)
    Name: Joan and Cameron Borton -- Email:
    Location: Portland, Maine USA
  • We enfold Simon and all of you in God's infinite compassion. You are in our hearts.
    Madi and Lexi's Nana and Papa

    Sunday, August 01, 2004 -- 15:39:12 (EDT)
    Name: Rachael Coleman -- Email:
    Location: SLC, UT
  • Simon and family, I continue to sing and dance in celebration of your love and your life. Yesterday brought a Beatles medley. Yellow Submarine, Sgt. Peppers, Octopus' Garden, Let it Be, All You Need is Love, Here Comes the Sun &amp Lucy in the Sky with Diamonds. Today you're getting mostly Grateful Dead related songs as it's Jerry Garcia's birthday today which begins what my friends and I refer to as "The Days Between". The Days Between end August 9th, the day Jerry died. For Deadheads these days tend to bring reflection on life and death and all that comes before, between &amp afterwards. This week the remaining members are on tour out East. Thousands of us will be actively participating in dance, love, celebration, and ritual that tap us into the Group Mind. I've been sharing You with my friends. I wanted to share them with you, too.

    Love and blessings to all who come to this site and all who love Simon and his family.

    Our prayers, love and support remain with you. Go now in peace and may the spirit of love always surround you. ~Rachael, Maggie and August

    p.s. Maggie and August said Miriam might know them from Sunday School last year. They were two of the 4th and 5th graders that sometimes helped in her class.

    Sunday, August 01, 2004 -- 15:02:51 (EDT)
    Name: Sylvia Pituch -- Email:
    Location: Allentown, PA USA
  • Hello Simon and family. We have been praying for you for some time at the request of a couple other children, however today was the first day that I was able to access your site.

    This site is probably one of the most creative that I have seen! Thank you for sharing it with us.

    Simon, though you may not hear what I am saying to you, I hope your family will know that we will be storming heaven with prayer for you all. It's so difficult and sad to separate from each other, isn't it? But I believe that even though those that we love cannot be with us in the physical sense, that we are all still together, no matter what...carried in our hearts forever. And there are times when you just KNOW that the person we love is in our presence. God speed dear Simon.
    Have a beautiful journey. Love, Sylvia

    Sunday, August 01, 2004 -- 14:32:14 (EDT)
    Name: Elizabeth Kent -- Email:
    Location: Oregon House, CA
  • Dear Simon, Mary, Markus and Miriam,

    The love in your family strengthens all of us. Simon's transition is guided by the highest, gentlest, hand.

    Much gratitude to Simon and love to you all,


    Sunday, August 01, 2004 -- 12:56:36 (EDT)
    Name: Antonis
    Location: Kalamata, Greece
  • As a member of our own family is giving her last(?) fight against this disease we are taking courage from your wonderful family. Thank you a thousand times.

    Sunday, August 01, 2004 -- 11:18:21 (EDT)
    Name: Gari Stein
  • My heart overflows with thoughts of Simon and treasured loved ones. Mere words do not come only prayers for peace and comfort, love and hope. Always, Gari

    Sunday, August 01, 2004 -- 07:54:15 (EDT)
    Name: Marta, Paul, Sam -- Email:
    Location: Ann Arbor,
  • Dear Simon, Miriam, Mary and Markus,

    We have returned from overseas travel and are glad to be able to read this amazing website and to post to you again. Not a day went by in our travel that we did not think of you. We are overwhelmed with sorrow as we anticipate the world's loss of beautiful, sweet Simonm abd with gratitude for the oppotunity to know and love him and to share in an amazing community of your supporters through this site. We are comforted by the certainty that love is the defining experience of Simon's final days, for him and for all of you.

    You are in our hearts,
    Marta, Paul and Sam

    Sunday, August 01, 2004 -- 05:52:36 (EDT)
    Name: Irene Judmayer
    Location: Linz, Austria
  • Back again from working one week at Salzburg/Festspiele. My thoughts are with You, and so are my prayers for calmful and painless days and nights for all of You.

    Sunday, August 01, 2004 -- 04:41:02 (EDT)
    Name: Kathryn Bartholomew -- Email:
    Location: , Utah USA
  • For Mary, Markus, Miriam and Dearest Simon,

    "A Gaelic Blessing" has always been one of my favorites. Myriad versions, all of them lovely:

    Deep peace of the running wave to you.
    Deep peace of the flowing air to you.
    Deep peace of the quiet earth to you.
    Deep peace of the shining stars to you.
    Deep peace of the gentle night to you.
    Moon and stars pour their healing light on you.
    Deep peace of the Light of the World to you.
    Deep peace of love to you.

    Deep peace of love,

    Sunday, August 01, 2004 -- 00:39:28 (EDT)
    Name: Collen -- Email:
    Location: Rockingham, WA Australia
  • Wishing you Pokemon, Peace and comfort Simon.


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