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MESSAGE BOARD Archive March/April 2003Thank you for visiting! You can click here to add to Simon's Message Board.
Tuesday, April 29, 2003 -- 22:54:42 (EDT) Name: kathy schwadron -- Email: kduderstadt@swri.edu Location: San Antonio, TX Looks from your pictures like spring has made it to Ann Arbor! I love the crayon sorting series... Marina STILL dumps all of her crayons all over the floor from a big box when she needs to write something. However, these days she is starting to learn what you learned a couple of years ago... little baby sisters eat just about anything you drop...including crayons, stickers, and barbie shoes. We hope to come to Ann Arbor in July (and again in August) and hope you will be around to visit in Northwood. Love, Kathy, Marina, Nathan and Janie Tuesday, April 29, 2003 -- 21:53:10 (EDT) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY We're starting soccer season around here. Do you guys like to watch or play soccer?? Both Danny and Laura are playing this season, which is fun for them and a little crazy for us! But it's nice for them to get out on the field on nice days and run around chasing after the ball. Anyway, glad you're doing better, Simon. Hope Miriam is feeling better, too. Take care, Kris, Rob, Emily, Danny, and Laura Tuesday, April 29, 2003 -- 17:59:42 (EDT) Name: Marta, Paul and Sam -- Email: manildi@millercanfield.com Location: Ann Arbor, **** Toes in My Nose by Bruce Lansky I bet that I could do it. My friends all said, "No way." And now my toes are in my nose, so they will have to pay. They each owe me a dollar-- of that there is no doubt. There's just one little problem. I cannot get them out! **** Lots of love, Marta, Paul, Sam Bear (dog) Matilda (cat) Tuesday, April 29, 2003 -- 12:26:55 (EDT) Name: Nancy Hoetker -- Email: nhoetker@mac.com Location: Champaign, IL USA Tuesday, April 29, 2003 -- 11:17:01 (EDT) Name: amy -- Email: asheon@umich.edu Location: ann arbor, mi I sure hope you and your sister both get over this round of the yukkies. I'll bet you can't wait to get out and play in this beautiful weather! Have you lost any teeth yet? My son Jesse has his first VERY LOOSE TOOTH and is very excited about it. Shel Silverstein asked me to send you these two poems that he thought you'd like: Shoe Talk: There's no one to talk with-- I'll talk with my shoe. He does have a tongue And an inner soul, too.He's awfully well polished, So straightlaced and neat (But he talks about nothing But feet-feet-feet). THE TONGUE STICKER-OUTER They say that once in Zanzibar A boy stuck out his tongue so far, It reached the heavens and touched a star, Which burned him rather badly. I wasn't there, but they say that lout Now keeps his tongue inside his mouth, But if you ask him to stick it out... I think he'll do it gladly. Saturday, April 26, 2003 -- 22:02:58 (EDT) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY Sounds as though you had a different sort of Easter than you usually do, huh? But I'm betting the hospital folks were all especially nice to those who were on the 7th floor for the holiday! Anyway, we've been thinking about you, Simon, and are glad that your numbers are back up again so you can do some more chemo. And we're especially excited for you that you're going to be part of the program at Memorial Sloan Kettering -- for one thing, my boss knows, and thinks very highly of, someone who works on the neuroblastoma project there (it might even be Dr. Kushner -- I'll have to ask...); and for another thing, it means you'll be right in our very own state! If you're traveling by car and can visit us either coming or going, please feel free! We know germs are an issue, so it just may not be possible; but if it should happen to work out, we'd be glad to host any and all of you -- even for an overnight, if you decide you want to break up the trip.... In the meantime, take care, keep up the good work, and we'll continue to think about all of you. Love, Kris, Rob, Emily, Danny, and Laura Wednesday, April 23, 2003 -- 15:07:57 (EDT) Name: Rebecca -- Email: rebecca37cross@hotmail.com Location: Oberlin, OH USA Well, it sure seemed strange to not have you with us for our Easter egg hunt this year! But the treatments you're undergoing as well as those upcoming certainly sound hopeful. We continue to send you our wishes for strength and health. We are so happy to hear of your steady progress, sweetie. Your blood counts look fabulous: hooray! Kisses and hugs to you, your Mommy, Daddy & to Miriam, from Rebecca, Randy, Emma & Schuyler Wednesday, April 23, 2003 -- 08:53:31 (EDT) Name: Isamu, Ayane, Melanie and Sadashi -- Email: inuzukas@umich.edu Location: Canberra, ACT Australia Hello from Australia! It is fall here and spring there, and wehope you all enjoying the warmth,sun and flowers. Simon, there are beautiful birds here with prehistoric calls and bright plummage which I am sure you would love. Isamu has had alot of fun spotting them in the trees and capturing giant ants. We are thinking of you all and send our best wishes. See you in May. love Melanie, Sadashi, Isamu and Ayane Sunday, April 20, 2003 -- 18:04:51 (EDT) Name: Liz, Mike, Emma, & Lucas Kennedy -- Email: lizkndy@yahoo.com Location: Ann Arbor, Saturday, April 19, 2003 -- 22:45:30 (EDT) Name: Donna Darrow -- Email: donnadarrow@yahoo.com Location: Ann Arbor, I just wanted to say thank you for sharing this beautiful website with me. It was very nice meeting you today on the 7th floor. I enjoyed all the photos and reading about your incredible son. My two boys will love the link on birds (they are big bird watchers). We will keep all of you in our thoughts and prayers. I'm sure all of your knowledge and experience will aide you in your transition to a new city and new doctors. Sounds like Simon will be able to teach them a few things. Take care, Donna Darrow P.S. The woman in Salt Lake City with the gold ribbon charms is named Gigi. Friday, April 18, 2003 -- 09:59:39 (EDT) Name: LeeWilliams Thursday, April 17, 2003 -- 23:15:06 (EDT) Name: Williams in CA Been thinking about you!!! We sure had a good time seeing your Grandparents on their way to and from China. Bet you'll get to hear a lot of stories. They told us how 4 men pulled a boat upriver with 16 people in it. Can you imagine that? We miss you. We are going up to the snow tomorrow to have one more weekend in the mountians. It's rained a lot this week so we hope to have lots of new snow to ski on and play in. miss you, the CA williams Tuesday, April 15, 2003 -- 21:00:39 (EDT) Name: Nancy Hoetker -- Email: nhoetker@mac.com Location: Champaign, IL USA We're thinking about you, presuming your family is caught up in the latest round of chemo. Keep up the good fight, and looking forward to an update soon. Love, Nancy, Glenn, Andrew & Nicole Monday, April 14, 2003 -- 16:04:43 (EDT) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, We are hoping that your body is producing MORE and MORE and MORE platlets. Madi and Lexi's Nana and Papa are here visiting and we are having lots of fun --sunny day picnics in the park and rainy day picnics in the basement, hiking around, and "lots of drawing and making books" says Lexi. Madi was in the hospital briefly for some surgery on her throat at our Children's Hospital and it helped her lots to think about how brave you are about having to go to the hospital. Madi brought a bear named Oobie to the hospital--he stayed with her the whole time even in surgery and recovery --"Oobie helped me feel better" says Madi. We love you all and think of you daily, Madi, Lexi, Lawrie and Curt Thursday, April 10, 2003 -- 23:35:34 (EDT) Name: Erik Location: , MD We've had too much rain this springtime in Maryland. They talk about floods now! Not a flood like Noah, but a couple roads might be blocked. Try playing soccer when you have to wade to the ball in a monster puddle! Here's to praying for the platelets! Maybe we could make a song out of that some day! Lots of love - Erik Wednesday, April 09, 2003 -- 13:06:38 (EDT) Name: Marta, Paul & Sam -- Email: manildi@millercanfield.com Location: Ann Arbor, We are just writing to say "hi" and to let you know we are thinking of you. Simon, we imagine you are back in chemo, and if that's so we certainly hope it is going o.k. Imagination can be a wild thing, so I might be wrong, but I also imagine you getting pretty darn grumpy and tired, maybe even down-right mad. If I'm right, you are not too different than me (and lots of other people, too). I'm sure that with your loving and frisky family, there are some sweet times and some funny times, too. By the way, did you hear the one about the mom who put a fire cracker under the pancakes On April Fools Day? She blew her stack! All our best wishes, Marta, Paul & Sam Monday, April 07, 2003 -- 09:20:29 (EDT) Name: Gari Sfein Thursday, April 03, 2003 -- 21:46:09 (EST) Name: Rebecca, Randy, Emma & Schuyler -- Email: rebecca37cross@hotmail.com Location: Oberlin , OH USA Well, we are sending your platelets the message: "grow, grow, grow!!" We love you lots & are sure you've been enjoying the emerging spring as we have been here in Oberlin. School days are better when it's warm on the playground. Have a sunny week, strong Simon! R, R, S & E Wednesday, April 02, 2003 -- 13:55:33 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY This time Laura wanted to be the one to send a joke, which (we're entirely sure) she made up herself: Q. What happened to the grapes and the corn, um, when they crossed the road (pause) uh, and went into the barn (pause) and, um, saw the horse? A. The horse ate them! :-) And there you have it! Enjoy school, Simon; and we hope the mistletoe helps with the next round of chemo! Love, Kris, Rob, Emily, Danny, and Laura Sunday, March 30, 2003 -- 22:29:56 (EST) Name: Leo Alf -- Email: gregg@alfstudios.com Location: Ann Arbor, MI USA I had a lot of fun chasing around with you after church today. I never had so much fun with a laundry basket. Please come play with me again and I want you to bring Miriam too. I'm a vegetarian like you. We can have some popsicles made from real apple juice. My mom makes them good. Bye bye Your friend, Leo Sunday, March 30, 2003 -- 12:04:06 (EST) Name: Nancy Mayer -- Email: nmayer@ensbraccio.com Location: Den Haag, Netherlands I was just checking in after a long time and was happy to hear of some good results for Simon. I'm thinking of you all. I just visited Emily (Brant) Bezar in Nice where she lives with her family, so checking in on other Obies is a priority at the moment. Keep up the good work! Love, Nancy Saturday, March 29, 2003 -- 18:08:49 (EST) Name: Liz, Mike, Emma, & Lucas -- Email: lizkndy@yahoo.com Location: Ann Arbor, MI We want to send our good wishes for Simon's next round of treatment - thanks for keeping us updated! We also wanted to let you know something amazing that happened to us this week. We had taken our car in for some service, and when we went to retrieve it, the service people had just found a box with 5 tiny kittens in it! We took them to the vet, caught the stray mom & took her there too, and now they're living happily in Emma's bedroom! They're only about 2 1/2 weeks old, very cute, and would love to have you visit if you'd like! Saturday, March 29, 2003 -- 14:24:56 (EST) Name: LeeWilliams Saturday, March 29, 2003 -- 13:36:55 (EST) Name: Annette So glad to hear the news about the bone marrow biopsy. Hope you get to go to school more during this new round of chemo. Had a great lunch with your Mom and Dad on Thursday, Mary. They seemed very excited about their trip. Bet we'll get lots of stories in July. I hear it's not clear you will be able to make it to Crystal this summer hope you are able to, we'll be there the same week as your family. Simon, hope your levels are high enough on Monday to start round 3. Think of you all - all the time. Love, us Friday, March 28, 2003 -- 18:27:04 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY Here are a couple of new jokes to celebrate the occasion (Dan picked out some new joke/riddle books the other day): Q: What did the silly man call his pet zebra? A: "Spot!" = = = Q: What sort of hippo is *always* hungry? A: A hippobottomless! Have yourselves a nice, relaxing weekend. And here's hoping Monday's counts are high enough to embark on this promising line of treatment again! All the best, Kris, Rob, Emily, Danny, and Laura Friday, March 28, 2003 -- 00:51:37 (EST) Name: Sally Location: Seattle, WA Sally Wednesday, March 26, 2003 -- 15:54:02 (EST) Name: amy -- Email: asheon@umich.edu Location: ann arbor, mi I hope you get only good news from your scans. I also hope that you and your sister will make a play date to come over and play with my son Jesse and daughter Evie because they're very similar ages and I know you'd have a good time. In the mean time, I wanted to share with you a funny poem that Jesse picked out for me to send to you. It's by Shel Silverstein in his book "Falling Up." Don't tell his copyright lawyer that I typed it here for you--just enjoy it! Furniture Bash The hand of the clock Pinched the foot of the bed, So the foot of the bed Kicked the seat of the chair, So the seat of the chair Sat on the head of the table, So the head of the table Bit the leg of the desk, So the leg of the desk Bumped the arm of the couch, So the arm of the couch Slapped the face of the clock. And they pinched and they punched And they banged and they knocked And they ripped and they flipped, And they rolled and they rocked, And the poor dresser drawer Got a couple of socks. There was sawdust and springs When I turned on the light After that horrible furniture fight. And that's the truth, no lie--no joke. And that's how your furniture All got broke. Tuesday, March 25, 2003 -- 19:10:32 (EST) Name: Gari Stein Tuesday, March 25, 2003 -- 17:39:56 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY USA I'm afraid I haven't been to visit your site in quite some time, Simon, because earlier this month, just before our FL trip, I was doing my own tour of doctor's offices and emergency rooms (we should compare notes someday!). Had some minor outpatient surgery but this time around I didn't do as well with the anesthesia as I have in the past -- the just-in-case bucket got lots of use! Then, like you, I got a funny rattly cough that the doctors didn't like the sounds of, so I went to be evaluated at the ER, where they gave me lots of meds to take, some of which tasted pretty yucky.... So, looking fairly droopy, I sat in my recliner for several days (lieing down in bed wasn't comfortable for some reason) and thought about you and wondered: "Is this how Simon feels sometimes??" But once again, you were my inspiration! I took my medicines bravely, like I knew you would; and I drank lots of liquids to cleanse my body of the nasty germs that had come to visit, like I imagined you would; and I tried each day to find one or two things that I could do better and more comfortably than I had the day before, as I envisioned you may do whenever you're "coming out of" a treatment phase and trying to get your body back in gear. And you know what? It worked! You gave me the strength to put one foot in front of the other and to work hard to help myself get better, just as you're working to do! So thanks, Pal, for all that help you didn't even know you were giving me!! In recognition of doing things that are healthy for our bodies, here's an exercise joke: Q: What do birds do to get ready for exercise? A: Worm-ups!!! ;-) Continuing to think about all of you, Kris, Rob, Emily, Danny, and Laura Tuesday, March 25, 2003 -- 16:42:59 (EST) Name: Marta, Paul & Sam -- Email: manildi@millercanfield.com Location: Ann Arbor, I have one question. From the new photos, it looks like you think math is fun. Is that true?? Best wishes until soon, Marta, Paul and Sam Tuesday, March 25, 2003 -- 07:38:53 (EST) Name: Julia -- Email: j.schwartz@stafag.ch Location: Frauenfeld, Switzerland Monday, March 24, 2003 -- 19:18:44 (EST) Name: Justin Garcia-Bunuel -- Email: martlidjustjacob@comcast.net of your hair back. See you this sumer Love Justin Monday, March 24, 2003 -- 19:06:22 (EST) Name: Liddy and Martin Garcia-Bunuel -- Email: martlidjustjacob@comcast.net Location: Cambridge, MD USA We continue to think of you often, and really hope Simon gets rid of those "yucky" cells soon. Holding stable is good news. We love you all and having Peace Pasta is a great idea! Hugs and kisses, Liddy, Martin, Justin and Jake Monday, March 24, 2003 -- 16:26:30 (EST) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, We know the power of "Bunny Pasta" in our household too-- I think Madi and Lexi would eat it every day if we would make it. Madi and Lexi want to know which flavor you like best. They also want to know if you have ever had Amy's Arthur shaped pasta? We think your choice of "Peace Pasta" is a great one for you and our world. "Stable" sounds like a good preliminary report. We will hold you all in our thoughts and prayers as you live out your daily lives and wait for the results. We love you all, M,L,L & C "Stable" sounds like a good preliminary report Monday, March 24, 2003 -- 08:44:29 (EST) Name: LeeWilliams Sunday, March 23, 2003 -- 00:53:17 (EST) Name: annette, rowan and steve So nice to hear some new news today. Hope the tests come back with positive results. . . . loved seeing the new photos. Maybe we will get to see your grandparents next week on their way to China. Rowan had his birthday party today at a public park in Berkeley called Adventure Land. It's really cool because you get to build,using hammers and saws and paint your own forts. THey also have a really neat trolley swing which you have to be 6 to ride. THink you and Mariam would really like the park. We miss you. Looking forwad to seeing you this summer. A s & R. Friday, March 21, 2003 -- 13:32:58 (EST) Name: Anne, Tom, and Johannes -- Email: doyleyad@stolaf.edu Location: Northfield, MN USA all our love, anne, tom, and johannes Friday, March 21, 2003 -- 13:32:57 (EST) Name: Anne, Tom, and Johannes -- Email: doyleyad@stolaf.edu Location: Northfield, MN USA all our love, anne, tom, and johannes Friday, March 21, 2003 -- 02:06:31 (EST) Name: Julia Schwartz -- Email: j.schwartz@stafag.ch Location: Frauenfeld, Switzerland Saturday, March 15, 2003 -- 11:47:33 (EST) Name: Susan Hartman Location: Ann Arbor, I hope you are doing well and that our (at last) warm sunny weather is cheering your spirits! Wednesday, March 12, 2003 -- 14:39:56 (EST) Name: Sally Olson Location: Seattle, love, Sally Thursday, March 06, 2003 -- 21:28:54 (EST) Name: Geoff -- Email: gandrews@polaris.edu Location: Valley View, OH USA It sounds like this week has been a long one for you. I hope that the treatments don't wear out all of your energy. You sure are lucky to get to play all those games I was reading about. I hope to play one of those with you the next time you are in Ohio. I understand you like jokes. Here is one for you: Why do firemen wear red suspenders? To hold their pants up! Tell those little blastoma cells to go hang out with the Chicken Pox cells - somewhere else! We're thinking of you. Geoff Thursday, March 06, 2003 -- 15:35:53 (EST) Name: Jean Watson -- Email: jl_watson100@hotmail.com Location: Canton, OH USA I sure hope your next treatment went as well or better than you planned. I can't imagine going through all the medical visits, pokes, tests and medicines that you do, and adding school and play on top - You're an inspiration! Here's a new joke for you (doesn't look like you've had any new submissions lately...) Q: What's black and white and red all over? A: A skunk with a diaper rash! Keep smiling! Jean Monday, March 03, 2003 -- 23:56:03 (EST) Name: Rebecca -- Email: rebecca37cross@hotmail.com Location: Oberlin , OH USA Three cheers for a brave and strong boy! lots of love from Rebecca, Randy, Emma & Schuyler MESSAGE BOARD Archive
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