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MESSAGE BOARD Archive January/February 2003Thank you for visiting! You can click here to add to Simon's Message Board.
Thursday, February 27, 2003 -- 17:34:44 (EST) Name: Gari Stein Monday, February 24, 2003 -- 12:38:11 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY Good luck with the continued pox-watch -- hope those particular chickens don't hatch! Love and healthy thoughts to one and all, Kris, Rob, Emily, Danny, and Laura Saturday, February 22, 2003 -- 09:57:24 (EST) Name: Jen and Ken -- Email: kjnichol@earthlink.net Location: New Fairfield, CT USA Monday, February 17, 2003 -- 16:48:03 (EST) Name: Lois Miller -- Email: millerl@aadl.org Location: Ann Arbor, MI Sunday, February 16, 2003 -- 05:24:50 (EST) Name: G, u. K. Faulhammer -- Email: kurt.faulhammer@aon.at Location: Vienna, Austria Austria Ein bißchen Zeit ist vergangen, seit wir das letzte Mal in die Webside schauten und viel Gutes ist weitergegangen. Welche Freude für Dich und Euch, aber auch für uns. Wir wünschen weiterhin alles Gute. Dein neues Foto fanden wir ganz bezaubernd! Zum Abschluß ein neues Wiener Wort:Wurstelprater. Ist nichts zum Essen sondern eine Vergnügungsstätte der Wiener. Mach es weiterhin so toll und ganz liebe Grüße von Euren Wienern Tante Gerda und Onkel Kurti. Saturday, February 15, 2003 -- 17:06:38 (EST) Name: Gari Stein you and sending warm love to all of you admidst these cold wintry days. Let the sun shine. Let the sun shine in. Much, much love, Gari Friday, February 14, 2003 -- 09:27:57 (EST) Name: Lee Williams Thursday, February 13, 2003 -- 12:54:20 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Tuesday, February 11, 2003 -- 00:13:09 (EST) Name: Annette Makes me ready to hibernate just reading it. Bet you wouldn't mind crawling in that cave and coming out in a few months with everything mended :) Sending good vibes for successful chemo. We will think about you in Utah and imagine where you will be living. We all send our love, Annette Steve and Row Row. Monday, February 10, 2003 -- 18:00:57 (EST) Name: Marta, Paul & Sam -- Email: manildi@millercanfield.com Location: Ann Arbor, MI We just wanted to add our voices to the choir of people saying we hope those "worstest days ever" are over, that this week is better than last, and that next week is better yet. We want to say we are SURE it will get BETTER - but we're afraid you'll think, "Well, that's easy for YOU to say!". But sure we are, nonetheless. The sun is out a little longer each day, these flus and colds and even chicken pox, if that's what it is, will get over-with. And Simon will keep on doing the hard work of fighting the cancer and this round of chemo will kill off lots and lots of cancer cells. Meantime, like all your friends, we keep thinking of you and rooting for you. Cheers until soon, Marta, Paul and Sam Monday, February 10, 2003 -- 17:32:52 (EST) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, We hope this next week will be better on many fronts. Chicken Pox --STAY CLEAR! Flu -- BE GONE FROM SIMON! Fever -- LEAVE MARKUS ALONE! Chemo -- DO YOUR CANCER KILLING THING! In terms of the puzzle, well we wish you the best of luck with the distracting mess. we are sending lots of love,prayers and good healing vibes, M,L,L and C Monday, February 10, 2003 -- 11:15:37 (EST) Name: Irene Judmayer -- Email: i.judmayer@oon.at Location: Linz, Austria Auch wenn ich derzeit arbeitsbedingt nicht so viel schreiben kann: Ihr seid ganz fest in meinen Gedanken verankert. Ein großes Paket positiver Energie schicke ich euch für diese anstrengende Zeit . Ein extra besonders großes an Simon. Ich hoffe, Ihr habt die Windpocken in den Griff bekommen. Liebe Grüße aus Linz, Irene Judmayer Monday, February 10, 2003 -- 09:00:59 (EST) Name: Liza, Mike, Jolan &Jenna Burger Location: Ithaca, NY Just got through reading your latest update, and am exhausted just thinking about your past week! Please know that you continue to be in our thoughts and prayers...sending lots of healthy vibes your way! Sunday, February 09, 2003 -- 09:40:38 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY USA Laura, who's wearing her olive oil cap at the moment and is waiting for her get-rid-of-any-last-remaining-nits bath, says "hi!" We're really glad we've found no lice for the past several weeks, which means -- hooray -- this is our last weekend in maintenance mode! And someone recently told us that tea tree oil can help keep lice away (they apparently don't like the smell), so we're going to get ourselves some of that, since we seem to have such "hospitable" children! ;-) Thinking about you. Take care. Kris, Rob, Emily, Danny, and Laura Saturday, February 08, 2003 -- 17:57:26 (EST) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, Lexi and Lawrie went to a some music workshops at Lexi's school today. We learned some songs, dances and about different musical instruments. We had one session learning to play an African drum. After playing the drum, Lexi said "I bet Simon would like this drum. He likes cool stuff." We continue to hold you, Mirium and your mom and dad in our prayers everyday. Madi signs and says "we think of them in here and here" as she points to her head and her heart. Love, Madi,Lexi, Lawrie and Curt Tuesday, February 04, 2003 -- 14:46:57 (EST) Name: Lee Williams Tuesday, February 04, 2003 -- 12:28:28 (EST) Name: Marta, Paul & Sam -- Email: manildi@millercanfield.com Location: Ann Arbor, MI Like many of your admirers, we also check this website very often and we are very grateful to your family for giving us such a great place to stay up-to-date about you, and to read the other great messages from all your friends. We heard that you have resumed chemo because your platelets were all the up around 85,000 - it sounds like that body of yours is doing a really good job of fighting back. We are hoping this round of chemo is not too terrible and that you don't get chicken pox. We are sure you will manage if you do, but it would be nice if there was one bit of hard work you could just skip for now! We are paying attention to the fact that you have a birthday coming up - March, isn't it? - and we're hoping the information on the "Simon's Favorites" part of this site will be nice and up to date near birthday time! Best wishes to you and to Miriam and your mom and dad, Marta, Paula and Sam Monday, February 03, 2003 -- 11:49:14 (EST) Name: Bonnie -- Email: bmarquis@umich.edu Location: Traverse City, MI Sorry to hear about the mess with the Chicken Pox! I think about you all the time and check this site every few days - thanks for all the recent updates. I'm really hoping to make to Ann Arbor this spring sometime - but I'll be taking a big chunk of time off to go see Brian in Maine - he's doing well there and we're keeping our fingers crossed that he ends up staying there..... In any event - I hope to get to visit you all soon! Friday, January 31, 2003 -- 19:46:16 (EST) Name: Rebecca Cross -- Email: rebecca37cross@hotmail.com Location: Oberlin, OH USA You are so cute....and I love Miriam, too. How's school going? Do you like your teacher? My teacher's name is Mrs. Freda, but I'm not "afraida" her! from Schuyler We all send our love. Great news on the blood counts! Rebecca, Randy, Emma & Schuyler Friday, January 31, 2003 -- 13:18:01 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY USA Danny's participating in a spelling bee today. He was kind of nervous. Interestingly, though, he seemed less concerned about making a mistake on the words and more concerned about how his friends would feel if he did better than they did, or about how he'd feel if his friends did better than he. There are so many things we can worry about if we try, huh? But my mother-in-law sent me an inspirational e-mail story that advised: "Count your blessings, not your problems." So I suggested that Danny could think about the fact that both he and his friends had *already* done a great job by having spelled well enough in the pre-spelling bee to be chosen for the grade-wide bee, and that was something about which *all* of them to feel proud, regardless of how this particular bee came out. I guess it's the same with you, Simon. No matter whether the treatments this time around are yucky or just ho-hum, you can already feel justifiably proud of all the hard things you've faced so far and know that whatever side-effects the medicines throw your way this time, you've already proved you're a pro and you can handle it. You may feel angry sometimes, you may feel frustrated at other times, but you've got the inner "spunk" that helps you keep going. What a guy! You're my hero -- did you know that? Hugs to you and Miriam and to your mom and dad, too. We're proud of you! Fondly, Kris, Rob, Emily, Danny, and Laura Thursday, January 30, 2003 -- 12:30:53 (EST) Name: Annemarie Toebosch -- Email: toebosch@umich.edu Location: Chicago, IL USA I hadn't been to your website in a while, cause I'd been so busy, but boy, you look so good! It made my day! Now all we need is for those last stubborn cancer cells to give up... I'll keep thinking of you. Give a kiss to your parents from me, Annemarie Toebosch Wednesday, January 29, 2003 -- 00:30:05 (EST) Name: annettte Tuesday, January 28, 2003 -- 16:06:54 (EST) Name: Gari Stein Tuesday, January 28, 2003 -- 14:50:28 (EST) Name: Jane Bishop -- Email: jebish@umich.edu Location: Ann Arbor, Love to all, Jane Saturday, January 25, 2003 -- 22:14:24 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY USA Do you know what lice are? They're these teeny-tiny little bugs that like to live on people's heads and lay their eggs right near the scalp, on the hair shaft, where it's nice and toasty warm for the little baby lice. Well, it's all very pleasant and homey when you think about it from the *louse's* perspective (you say "louse" when there's only one of them -- I guess it's kind of like saying one mouse and two or more mice...). But, because it gets kind of itchy after a while, when there's a whole bunch of them forming a little colony on your head, it's not such a happy situation from the host's perspective (the host is the person who's got the lice in his or her hair -- not that you particularly *want* to host them, mind you ... it's not nearly as much fun as hosting a party, after all ... but that's what they call it! ;-) Anyway, we dealt with another lice infestation this past fall, and it appears Laura's brought them home again this week. Oh well. We're trying to do "the Simon thing" and look on the bright side of the situation. So, when I had to put the kids to bed the other night with olive oil all over their hair (to get rid of the lice and make it easier to remove their little eggs), and then when I washed the oil out of their hair the next morning and it ended up floating around in the tub water for a while as the kids waited for me to be done with the multiple washings and rinsings it took to get rid of all that oil, Danny said: "Well, at least our skin will be nice and soft and smooth from all this olive oil!" And he was right -- it was just like using bath oil! So thanks, Simon, for helping us to look on the bright side! Even when we're sometimes not so happy with the way things are going, or are feeling impatient that we're not getting through a "rough patch" quickly enough, we realize we can almost always find a silver lining, or something to laugh about, if we just look hard enough! You and your family are so good at that, you help us be better at it, too. And speaking of silver linings: at 25 degrees today, it felt like a veritable heat wave compared to the sub-zero temps we've had recently! How 'bout you -- has it been cold in Ann Arbor, too? Anyway, from "balmy" Upstate New York, we send all of you our warmest wishes! Love, Kris, Rob, Emily, Danny, and Laura Friday, January 24, 2003 -- 09:33:53 (EST) Name: anne, tom and johannes -- Email: doyleyad@stolaf.edu Location: Northfield, MN USA Thursday, January 16, 2003 -- 08:35:28 (EST) Name: John and Diane -- Email: JCLinAA@aol.com Location: Ann Arbor, Michigan USA Saturday, January 11, 2003 -- 17:07:56 (EST) Name: Raj & Rani sanghvi -- Email: rajhmss@aol.com Location: Wixom, MI USA Our son Amit (3 years of age) is battling just like you! You both have a lot in common and seem to have reacted to treatment the same way. Our next step in stem Cell Transplant. We were happy to see how well you did recovering from the transplant. Our families prayer's are with you and know that you nad Amit will emerge victorious in the battle against Neuroblastoma! Great website! It is informative for us as well. Raj, Rani, Amit and Aakash Sanghvi Saturday, January 11, 2003 -- 02:01:34 (EST) Name: A S & R Location: Oaktown, Great to hear the good news. Sure like the new picture of you. You look so suave and debonair (so I can't spell hopefully you will do better when you are my age). Glad you are going to be off Chemo at least for awhile. Enjoy school and Yoga. I still think I am going to start sometime but haven't made the plunge yet. We love you all, Annette, Steve and Rowan and kofi of course! Thursday, January 09, 2003 -- 21:54:25 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY Can I come to your Yoga for Kids class??? Most adults are just overgrown kids anyway, right? ;-) And isn't it nice to be back in school again. My kids couldn't wait to go back -- it was fun having the time off, but then they missed their friends and all the fun stuff they get to learn. Enjoy! And keep on keepin' on! Kris (etc.) Tuesday, January 07, 2003 -- 15:58:54 (EST) Name: Dina and Dick We're sorry we missed you during your Oberlin stay over Christmas. Four of our grandchildren were here then, too and would have loved to have met all of you. We did have a wonderful sledding on Oberlin Mountain and in the Arboretum. Weren't we lucky to have such wonderful snow just when you all and our grandkids were here? I like your new photo showing off your dark hair. We leave to drive to California tomorrow to enjoy the snow (even though there is lots here, it is even deeper in CA. and better for skiing), to meet our new granddaughter, Mera, born on December 27th, and see her parents, Dirk and Marty and her brother, JC who is 2 and 4 months. We think of all of you often and wish for Simon lots of strength and determination to chase those nasty mean destructive cells out of his body for ever and ever and for the rest of you patience and fortitude to help him do so and survive happily yourselves. Love, Dina and Dick Tuesday, January 07, 2003 -- 15:34:45 (EST) Name: Marta Manildi -- Email: manildi@millercanfield.com Location: Ann Arbor, mI USA If you've already heard these, I'm sorry. Knock Knock. Who's there? Mary Lee. Mary Lee who? Mary Lee, Mary Lee, Mary Lee, life is but a dream …. Knock, Knock. Who's there? Ammonia. Ammonia who? Ammonia trying to be funny. Knock Knock. Who's there? Radio. Radio who? Radio not, here I come! Knock, Knock. Who's there? Amos. Amos who? A mosquito bit me! Knock Knock. Who's there? Andy. Andy who? And he bit me again! Knock Knock. Who's there? Vera. Vera who? Vera few people think these jokes are funny. [This one's my favorite:] Knock, knock. Who's there? Oswald. Oswald who? Oswald my gum. Knock, knock. Who's there? Thumping. Thumping who? Thumping thlimy ith on your leg. Knock Knock. Who’s there? Anna. Anna who? Anna body know some more jokes? That's all for now! Love to you and your family, Marta Manildi Paul Courant Sam Courant (age 13) Bear (dog) and Matilda (cat) Monday, January 06, 2003 -- 16:13:02 (EST) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, What great news to learn the doctors found no yuky neuroblastoma cells in your bone marrow! We are hoping and praying for similar good news today as the doctors look at your bone biopsy. We love you guys and think of you daily -- What a year this has been for all of you. Know that we hold you all in our thoughts and prayers, Madi, Lexi, Lawrie and Curt Sunday, January 05, 2003 -- 10:05:45 (EST) Name: Rebecca -- Email: rebecca37cross@hotmail.com Location: Oberlin, OH USA We just want to notice the year that has passed since you began your cancer battle. This is an anniversary which makes us consider your courage, cheerfulness, and wonderful personality that we all cherish! love to all of you from Rebecca, Schuyler, Emma, & Randy Sunday, January 05, 2003 -- 07:38:15 (EST) Name: Lee Williams Saturday, January 04, 2003 -- 09:54:57 (EST) Name: Liza Burger Location: Ithaca, NY Great to read your encouraging news today! We, too, will root on those healthy new cells! We have been getting LOTS of snow...about 18 inches since yesterday afternoon, and Jolan and Jenna are off making snow forts. It will be a great day for sledding and cross country skiing around here, but I must go shovel first! Keeping your in our thoughts and prayers, Liza, Mike, J&J Saturday, January 04, 2003 -- 00:17:10 (EST) Name: Mary Craig -- Email: mfcraig@umich.edu Location: Ann Arbor, MI USA Q: If runners get athlete's foot, what do astronauts get? A: Mistle-toe! [Hinweis fuer Deutschsprachige: im Englischen ist das Wort "missle" (=Rakete) genau gesprochen wie das "mistle" in "mistletoe" (=Mistel). Und schoene Gruesse allerseits!] The source of this joke was the newsletter of Community Supported Anthroposophical Medicine, the practice of Simon's doctor Molly McMullen. The primary anthroposophical anti-cancer therapy is Iscador (mistletoe extract). So, this is definitely an "in" joke! Friday, January 03, 2003 -- 13:49:53 (EST) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY And here's a new joke for a new year (we think it's a Danny original; but, well, one never knows...): Dan asked me last night, Q: "What do you call a witch at the beach?" After trying several other answers that (Danny was delighted to tell me) were unfortunately incorrect, I had a brainstorm.... Thinking myself *very* clever, I answered, with gusto, A: "A sand-witch!" But Danny fooled me and said: A: "Something nice, or she'll turn you into a toad!" ;-) That made good sense to me! Next time I see a witch at the beach, I'm going to be *sure* to follow that advice or else.... Ribbit, ribbit, ribbit! We'll be thinking about you. Love, Kris, Rob, Emily, Danny, and Laura Thursday, January 02, 2003 -- 10:54:31 (EST) Name: Jane Blodgett -- Email: jblodgett@oberlin.net Thursday, January 02, 2003 -- 07:07:37 (EST) Name: Jean Watson -- Email: jl_watson100@hotmail.com Location: Dover, OH I'll be thinking of you today and sending lots of prayers and crossed-fingers your way for your bone marrow biopsy. Love, Jean MESSAGE BOARD Archive
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