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MESSAGE BOARD Archive May/June 2003

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Monday, June 30, 2003 -- 15:19:58 (EDT)
Name: Jane Stepnitz
  • Hi Simon,Mary, Miriam and Markus, It's been a while since I've checked your website (I've been taking care of my parents since March due to my dad's illness...cuts into e-mail time...). Boy was I surprised to hear you are moving! I wish you the best of everything in Utah and of course with Simon. I think of you often and I'm really glad I got to know you through Gari's! Keep singing! Jane, Kate, Abbey and Eric Stepnitz

    Saturday, June 28, 2003 -- 14:40:22 (EDT)
    Name: rebecca,randy,emma & schuyler -- Email:
    Location: Oberlin, OH USA
  • Hi Simon!

    We're in Oregon, thinking about how much you all will love the West - it is beautiful out here! One of my mom's friends told me today that you're on her church's prayer list here in Arch Cape, Oregon. So you have friends out this way already!

    Two weeks ago, I was in Dresden, Germany visiting my brother Tim, and I thought of you all then, because you would have felt right at home with the German language.

    We are rooting for you, darlin'; thanks for the updates. Give your mom & dad & sister a squeeze.

    lots of love and hope and hugs and joy are coming your way!!

    Rebecca & family

    Friday, June 27, 2003 -- 22:43:09 (EDT)
    Name: code_blue_angelwings -- Email:
    Location: , USA
  • Simon, hi ya champ, was just doing some catching up on ya. How was the sightseeing? see anything fun?

    WE want you to know we are thinking about you and keeping you in our thoughts little man!

    lots of ((((((hugs))))))))) coming your way!

    Mom and Dad, WE hope you all are doing well (as well as can be expected), we want you all to know that if we can do anything at all, please let us know!! We will do what we can!

    lots of love and hugs,
    and the rest of the code blue family

    Thursday, June 26, 2003 -- 12:35:13 (EDT)
    Name: Mary Craig -- Email:
    Location: Chicago, IL USA
  • Claudia u. Familie,

    es ist mir so eine Erleichterung, dass wir endlich mit Euch in Kontakt sind. Wir haben schriftliche Korrespondenz aufgegeben, leider.

    Seid herzlichst gegruesst von uns allen!--Mary

    Thursday, June 26, 2003 -- 04:42:26 (EDT)
    Name: Claudia Omlor u. Fam.
    Location: Backnang, Germany
  • Liebe Mary, lieber Markus und Kids!
    Ich bin an unserem Schulcomputer und hoffe, die Nachricht erreicht Euch!
    Von Anne habe ich erfahren, dass Simon so krank ist und habe die Bilder auf Eurer Homepage gesehen. Er scheint ja trotz Chemo usw. recht fit zu sein. Wie geht`s Euch allen ? Wir sind in Gedanken bei Euch und hoffen, dass Ihr alle das gut übersteht ! Wir kennen die Sorge um ein Kind, da Frederik mit 5 Wochen eine lebensbedrohliche Lungenentzündung hatte und mit 8 Monaten nocheinmal, so dass wir um sein Leben bangen mussten. Es ist natürlich nicht mit dem zu vergleichen, was Ihr seit Monaten/ Jahren ? durchmacht!
    Anne hat auch geschrieben, dass Ihr umziehen werdet. Könnt Ihr uns Eure neue Adresse schicken? Leider haben wir noch kein Internet.
    Seid alle ganz herzlich gegrüßt von uns allen ! Claudia Omlor

    Wednesday, June 25, 2003 -- 14:19:33 (EDT)
    Name: Marta, Paul & Sam -- Email:
    Location: Ann Arbor,
  • Yeah Simon - Good news! Mary, thank you for sharing your good news so fast. We are back here in Ann Arbor thinking about you every day and it is so great to hear that the new treatment had a positive effect. Now we'll be here hoping that the HAMA response subsides so you can continue with the treatment. In the meantime, enjoy New York and each other, and from time to time send out feelers for the positive vibes we are sending your way!

    Maybe this is a good riddle for today. How did the cat feel after having some warm milk?


    Hope you feel that way too,
    Marta, Paul & Sam

    Wednesday, June 25, 2003 -- 02:24:56 (EDT)
    Name: Sally
    Location: Seattle,
  • Hi guys! I'm checking in every day and sharing in the waiting with you. I'm glad you have some time together for a couple days. We all talk about you and think about you a lot. love and prayers floating your way from Seattle!

    Tuesday, June 24, 2003 -- 14:19:23 (EDT)
    Name: The Chamness family -- Email:
    Location: Ann Arbor, MI
  • Hello Simon, Miriam, Mary, & Markus,
    We were just in NYC last weekend for a really quick trip to see "Gypsy"--I'm glad you get to stay there a little longer. I hope you get to see "Lion King" too--we saw it 4 years ago, and it was spectacular! There are so many great NYC things to do. The Natural History Museum is awesome. Have you checked out the Carousel in Central Park or the Balto statue? I'm glad the rain has let up--we got really wet. Hey-guess who we were there with? Sandy Ryder and her family! We'll be missing having you guys as nearly neighbors and hope you love your new home in Utah. Take care--we're thinking of you! Love, Barb, Will, Fiona, James, & Daria

    Sunday, June 22, 2003 -- 12:10:56 (EDT)
    Name: Tom -- Email:
    Location: Northfield, MN US
  • Hey Simon,

    Just checking in myself. Sounds like you're having at least some fun in New York. Hope you enjoyed "Finding Nemo." Are you going to see the Statue of Liberty? Gruess mir den grossen Apfel!

    Your buddy,

    Sunday, June 22, 2003 -- 10:35:51 (EDT)
    Name: anne, tom, johannes -- Email:
    Location: Northfield, MN USA
  • Yikes, a lot of waiting going on. We're thinking of all of you as you wait out the weekend, and Mary and Simon try to enjoy NY. Hope the Lion King tickets come through! hope the packing is going well, Markus and Miriam!

    anne, tom, johannes

    Saturday, June 21, 2003 -- 21:42:30 (EDT)
    Name: sarah Innes -- Email:
  • Mary, I just checked in after a long pause. I am thinking of you waiting through the weekend in NYC. (I was there last weekend). I didn't know you were moving! Best of luck and I will keep myself posted. sarah

    Friday, June 20, 2003 -- 11:43:00 (EDT)
    Name: the code_blue family -- Email:
  • Simon,
    Hi sport. How are ya doing? We hope you had a great week & it looks like next week is gonna be busy. Have a good time in Michigan. I bet you can't wait to move into your new house. Have a great weekend & a good week.
    We will keep you & your family in our prayers.

    Your code_blue_family

    Thursday, June 19, 2003 -- 13:24:02 (EDT)
    Name: Madi, Lexi, Lawrie and Curt
    Location: Seattle, WA
  • WOW! Life is full to overflowing to say the very least! We are sending all sorts of cancer-be-gone vibes and prayers your way Simon. Congratulations to you Markus on completing and presenting your dissertation. Congrats to all of you on new home ownership. We are holding you all in our thoughts as you say good byes to your community and are honored by your friends and collegues. We feel so lucky to know we will have time together with you all at Crystal Lake in a couple weeks.



    Wednesday, June 18, 2003 -- 13:56:50 (EDT)
    Name: Jane Bishop -- Email:
    Location: Ann Arbor, MI us
  • Hi, what a whirlwind you have been in! I hope your treatments go well, and you can manage a little comfortable time to see some more of NYC. I was really surprised to hear you were moving so soon, but time flies, doesn't it!! Hope to see you back in AA before you move....have a great time at Crystal Lake, and say Hi to all the family....including Gramm and Grandad. A big hug for you....wish I were there with a special lollipop!
    Love, Jane

    Tuesday, June 17, 2003 -- 17:38:32 (EDT)
    Name: Kris Hopkins
    Location: Clinton, NY
  • Wow! What a lot you guys have going on in your lives right now! But this sounds like some wonderfully exciting stuff -- congrats, Markus, for being able to maintain focus on your dissertation in the midst of everything else that's been going on! And how wonderful that you'll have your very own house in Salt Lake City! We're going to be visiting there around the time of the 4th of July in 2005 (Rob and I will be attending a convention of the Barbershop Harmony Society), so we'll be sure to find you all and stop in to say "hi!"

    Good luck with all the logistics, and in the meantime we'll be thinking about you and wishing you well! Love,

    Kris, Rob, Emily, Danny, and Laura

    Sunday, June 15, 2003 -- 11:22:04 (EDT)
    Name: Anne, Tom, Johannes -- Email:
    Location: Northfield, MN USA
  • whooo hooooooo, glad you guys are home and have a weeeeee bit of a breather before the excitement starts. Yahoooooo Markus!!! I'm amazed, and proud of you for finishing!! It gives some people in my family hope that the end is possible! Happiest of birthday wishes to Mary, and I hope Miriam is enjoying all the jet setting. Simon, we are keeping you always in our thoughts, hope you are enjoying being a New Yorker for a bit. glad you got to see Nemo, we haven't gone yet, but we're planning a movie trip really soon.

    anne, tom, and johannes

    Saturday, June 14, 2003 -- 19:53:20 (EDT)
    Name: Kimberly Mease -- Email:
    Location: Lancaster , PA U S A
  • Wow, you are busy. I will keep you in my thoughts and pray for great scans!
    God Bless and take care!

    Saturday, June 14, 2003 -- 10:13:07 (EDT)
    Name: Angela Thomas -- Email:
    Location: Tiffin, OH USA
  • Thanks fro the update! Love to you all!
    The Thomas Team Mom (Angela)

    Friday, June 13, 2003 -- 19:53:24 (EDT)
    Name: The Code Blue Family -- Email:
    Location: , USA
  • Hi ya Simon!
    how are you champ? How is New York? pretty big isn't it? WE hope you had a great week and that your weekend is packed full of fun things to do.

    You and mom and dad are in our thoughts and prayers.

    Dad, happy Fathers Day!

    Hugs and love,
    The Code Blue Family

    Friday, June 13, 2003 -- 02:07:49 (EDT)
    Name: Sally
    Location: Seattle, WA
  • Thanks for the update. I think about you every day. You do have SO much going on. You did not mention one special thing that I know about :) Hope you have a good one!
    Love, Sally

    Sunday, June 08, 2003 -- 23:51:41 (EDT)
    Name: Cali Williams
  • Simon,

    We went to see Nemo to on Friday now that sure was fun. Did you think it was funny
    when that fish kept forgeting everything. Bet that never happens to your parents?:)
    We think of you walking around in that big city. Aren't those buildings real tall. Wish we could come visit. Too Bad
    Sloan Kettering isn't in San Francisco!
    We are all thinking of you and hoping that antibodies are socking it to those cancer balls. Love you, Rowan, Steve and Annette

    Friday, June 06, 2003 -- 19:06:59 (EDT)
    Name: Angel Greeneyes -- Email:
    Location: , MS USA
  • Hi Simon! What some great pictures of you! Beautiful smile! Hope you enjoy the trip to New York. Gosh, how exciting! Lots of love and hugs to ya!
    Angel Greeneyes w/Simply Enchanting Angels

    Friday, June 06, 2003 -- 15:41:19 (EDT)
    Name: code_blue_angelwings -- Email:
    Location: , GA USA
  • I put the wrong name and I wanted to apologize!! Simon have a great weekend! the rest of the message is for you! sorry about the name goof up!

    Friday, June 06, 2003 -- 15:39:14 (EDT)
    Name: code_blue_angelwings -- Email:
    Location: , GA USA
  • Carl
    hi champ! we stopped by to tell you hi and that we hope you have a great weekend.

    How is it going in New York, that city is bigger than you are. hahaha!

    You saw "finding Nemo" that is the cutest movie.

    Buddy, you are a trooper and we want to give you big hugssssss and let you know we are so proud of you!

    Mom and Dad, if you should need anything please feel free to contact us through our email we would love to try and help.
    hugs and love,
    the code blue Family

    Friday, June 06, 2003 -- 10:41:22 (EDT)
    Name: Mary Beth Lewis -- Email:
    Location: Ann Arbor, MI
  • Hi Simon.
    I was in Oberlin last week and two people came up to me when they heard I was from Ann Arbor and said, "Do you know Simon? How's Simon?" You're famous from state to state!
    Speaking of states, here's a riddle: Which state is high in the middle and round on both ends?
    Answer: oHIo
    Here's another: What's the difference between a train and a dentist?
    Answer: The train says CHOO CHOO and the dentist says "Spit out your gum."
    Take and say hi to your mom for me. I remember her when she was your size!
    Best wishes,
    (Mary) Beth (Bruno) Lewis

    Thursday, June 05, 2003 -- 21:07:10 (EDT)
    Name: amy -- Email:
    Location: ann arbor,
  • Simon:

    You and your family are just awesome and brave and our whole family wishes your whole family only good things. Hope your birthday was happy--I have a little something for you and your sister and I'll get them to you next week.

    Thursday, June 05, 2003 -- 16:18:52 (EDT)
    Name: Angel Kia -- Email:
    Location: , Alabama USA
  • Hi there Simon! Just wanted to flutter in and send you a great big
    (((((((((((((((Angel Hugz))))))))))))))Did you enjoy the Nemo movie? I can't wait to see it! Take care and lotsa love,
    Angel Kia
    Simply Enchanting Angels

    Thursday, June 05, 2003 -- 09:05:21 (EDT)
    Name: Angel Tylers Mum -- Email:
    Location: Cardiff, South Glamorgan, United Kingdom
  • Hi Simon just wanted to drop by and say that you are a very brave boy and i bet your family are so proud of you. Keep smiling. Simply Enchanting Angels

    Thursday, June 05, 2003 -- 01:56:04 (EDT)
    Name: Susie -- Email:
    Location: , Ohio USA
  • Simon,

    You seem like a very strong little boy! You will beat this monster!

    God bless you~

    Wednesday, June 04, 2003 -- 03:49:52 (EDT)
    Name: AngelSusanne -- Email:
    Location: Simrishamn, Skane Sweden
  • Hi! I must say I love your site, all the colors and pictures. Hope you´re having a wonderful summer and my prays are with you and your parents.
    Hugs, Angel Susanne

    Wednesday, June 04, 2003 -- 03:48:53 (EDT)
    Name: AngelSusanne -- Email:
    Location: Simrishamn, Skane Sweden
  • Hi! I must say I love your site, all the colors and pictures. Hope you´re having a wonderful summer and my prays are with you and your parents.
    Hugs, Angel Susanne
    <br><a href="http://YOUR URL">
    <img src="" WIDTH=352 HEIGHT=227 border="0"><br></html>

    Wednesday, June 04, 2003 -- 01:44:33 (EDT)
    Name: Angel of the Forest, Simply Enchanting Angels -- Email:
  • Hi Simon Sweetie! It sure sounds like that trip to New York had a lot of fun in it for you despite the chemo! I'm glad you got a quick copy of that CD so you didn't have to go too long without your favorite music ;)

    My wish for you is to stay strong and happy and remember that you are very loved and always have angels with you whenever you need us *HUGS*

    Tuesday, June 03, 2003 -- 22:50:46 (EDT)
    Name: Katherine Lawrence
    Location: Ann Arbor, MI
  • Hi Simon,
    It sounds like you are being very brave during your treatments in New York City. Your parents are brave, too! I'm glad you have time to enjoy some fun stuff in New York, too. New York has some pretty amazing things to do and see... just the thing for an amazing *6*-year-old (!) like you!! Happy belated birthday! Love, Katherine

    Tuesday, June 03, 2003 -- 22:25:00 (EDT)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY
  • Hey, Simon! I hear you're being a real trooper about these new treatments. Although I'm sorry the pain makes it so uncomfortable for you, I'm really glad that it only lasts a while and that later in the day you feel pretty OK. That must make it easier to enjoy all the great things that NYC has to offer ... like the natural history museum -- I'm so excited for you that you got to go there! I used to visit the museum when I was just a little older than you (I grew up in New Jersey -- just across the Hudson River from where you are now).

    Anyway, I know it must be hard to be brave all the time; but you seem to be doing an amazing job -- keep up the great work!

    We're thinking about you, and hoping that those little mousie-bodies (how's that for a silly "nickname" for those mouse antibodies!? ;-) help your immune system do it's job even more efficiently and effectively than before! (I'm just reading a book by Dr. Andrew Weil, who's very interested in how our bodies fight disease -- it's pretty amazing what our bodies can do with a little help, huh??)

    Take care, all of you. Love,

    Kris, Rob, Emily, Danny, and Laura

    Tuesday, June 03, 2003 -- 18:46:30 (EDT)
    Name: Anne Jones (Benjamin's mom)
    Location: Reynoldsburg, OH
  • Dear Simon,

    I just saw your web page - I clicked through from Christi Thomas' page - and I love your site! It just made me smile! I hope you are feeling better soon! My son Benjamin (he's 6 years old) has been in treatment this past year too for a brain tumor. Take care!

    Love, Anne Jones

    Tuesday, June 03, 2003 -- 18:46:01 (EDT)
    Name: patrick -- Email:
    Location: Ann Arbor, MI USA
  • hi simon. its patrick. i mis you. i hope you feel beter soon wen you cum bac we wil have a play date.

    Tuesday, June 03, 2003 -- 14:53:51 (EDT)
    Name: sheryl -- Email:
    Location: Ann Arbor, MI
  • Hi Simon,
    I saw your dad today. He came to the Dean's Office to borrow a conference phone. I told him I had been visiting your website on a regular basis. He said you are quite a trooper and never complained. I don't know if I could go through everything you have been through without complaining. You are in my thoughts and prayers.
    Hang in there!

    Monday, June 02, 2003 -- 22:22:03 (EDT)
    Name: Positive Angel -- Email:
    Location: Vallejo, CA USA
  • Hey Simon,
    I just flew in to say hello and share my support for your strength. You are such a strong little man and everybodies so proud of you. By the way I went and seen Finding Nemo too. I LOVED it. My favorite characted was Dorie- next to Nemo of course. Good luck to you I'll keep sending angel kisses and hugs your way!
    Love- Positive Angel
    Simply Enchanting Angels
    Wings of hope committee

    Monday, June 02, 2003 -- 19:48:13 (EDT)
    Name: Angel Lynn -- Email:
    Location: Stueben, Maine USA
  • Helllllllllllllo Simon
    How are you today. Hope all is well.
    I have been to the New England Aquarium many times it is absolutely
    wonderful. Did you get a chance to see the harbor seals.there so playful and fun to watch.
    Special Hugzzzzzz
    from Enchanting Angels
    Angel Lynn

    Monday, June 02, 2003 -- 19:36:47 (EDT)
    Name: AngelWhisperingWind -- Email: nomail
  • Hello Vodosek..hope today finds you in good spirits,and hope everything goes well for you,you and your family will be in my thoughts and prayers.God Bless you always,Jesus Promise is true,he will never leave you or forsake you,thats the truth..God Bless You always..AngelWhisperingWind from Simply Enchanting Angels..

    Monday, June 02, 2003 -- 17:26:22 (EDT)
    Name: Southern Angel -- Email:
    Location: Wade, Mississippi USA
  • ((((((((SIMON))))))))),
    What a special young man you are! I know you are going through a LOT of things right now... but remember, Jesus Promised HE would always be with you, never leaving you. I am glad you go to go see "Finding NEMO". I imagine you laughed a lot and enjoyed every minute of it. I am glad your friends sent you another CD to help you with your treatments. Please know that we will be praying for you and sending you ((((((((HUGS))))))))) to all of your family. GBU!
    Wings of Hope Committee

    Monday, June 02, 2003 -- 16:03:50 (EDT)
    Name: Serena Künzler -- Email:
    Location: Frauenfeld, Thurgau Switzerland
  • Knock, knock.
    Who's there?
    Juno who?
    I dunno, Juno?

    Knock, knock.
    Who's there?
    Lena who?
    Lena little closer.I want to tell you a secret.

    Knock, knock.
    Who's there?
    Tank who?
    Your welcome.

    Knock, knock.
    Who's there?
    Who who?
    Bad echo in here, isn't there!

    Knock, knock.
    Who's there?
    Punch who?
    Not me, please!

    Knock, knock.
    Who's there?
    Tuna fish.
    Tuna fish who?
    You can tune a piano, but you can't tuna fish.

    Knock, knock.
    Who's there?
    Datsun who?
    Datsun old joke.

    Monday, June 02, 2003 -- 02:14:21 (EDT)
    Name: Childrens Christmas Angel Simply Enchanting Angels / Wings of Hope -- Email:
    Location: , USA
  • Hi Simon
    I want to give you some Angel ((((HUGS)))) and Smiles :) :) to get you through the week. You are a precious little Angel and I will keep you and your family in my prayers!
    Childrens Christmas Angel

    Sunday, June 01, 2003 -- 22:33:41 (EDT)
    Name: Soft Angel Eyes -- Email:
    Location: Powder Springs, GA USA
  • Hey ya Simon!
    I love your name! cheerios to you champ! I hope you had a great weekend!
    My name is Soft Angel Eyes and I am with Simply Enchanting Angels Wings of Hope Committee!

    I wanted to leave a few hugs and kisses for you to get through the week with, will a million be enough? heheheee, silly angel!

    here are you some to start with ((((((((Simon))))))))))))) muahhhhhhhhh!
    there ya go!

    Simon buddy you are in my thoughts!

    Soft angel hugs,
    Soft Angel Eyes

    Sunday, June 01, 2003 -- 22:08:45 (EDT)
    Name: cross/colemans -- Email:
    Location: Oberlin, OH USA
  • Dear Simon,

    We want to send you our best wishes and our BIG admiration for your courage as you enter you second week of antibody therapy. You are one terrific guy and we love you lots! See you soon,

    Schuyler, Emma, Rebecca & Randy

    p.s. Try this one on your mom, Simon:

    knock, knock.
    who's there?
    interrupting cow.
    interrupting cow-?
    MOO! (say this before she can finish asking!!)

    Sunday, June 01, 2003 -- 21:18:02 (EDT)
    Name: Angel Heartstrings -- Email:
    Location: south central, kansas usa
  • Hi Simon: Gosh I sure do like your web site its so cute. Love the colors. Hey I hope you have a fun summer and that you get to play and laught and do tons of fun things. I will sure be praying for you and your family. May God your sweet heart. Hugs Angel Heartstrings from Simply Enchanting Angels

    Sunday, June 01, 2003 -- 15:56:43 (EDT)
    Name: Angel Nell -- Email:
  • Hi Simon,
    You are such a cutie love all of your pictures we just love to love other people and you are one of them you hold a special place in our hearts as well I also love tour site too Wings Of Hope Comittee

    Sunday, June 01, 2003 -- 15:31:50 (EDT)
    Name: Roobear Angel -- Email:
    Location: , TN
  • Hi Simon, you have a wonderful site.
    Just wanted to let you know that there are a lot of people out here who are sending lots of love and warm thoughts your way. I hope you are having a wonderful day.
    Have lots of fun this summer!

    Roobear Angel
    Simply Enchanting Angels

    Sunday, June 01, 2003 -- 15:01:23 (EDT)
    Name: Angel Alyssa -- Email:
    Location: Hallstead, Pa USA
  • I just want u to know your an inspiration to all of us hun! You are and amazing child! My thoughts and prayers are always with you!
    ~HUGS~ Angel Alyssa
    Simply Enchanting Wings of Hope]

    Sunday, June 01, 2003 -- 11:57:03 (EDT)
    Name: Angel Wings -- Email:
    Location: Palm springs , CA USA
  • Hello Simon and family,

    What an amazing site you have here. It is gorgeous. Simon I was reading all about you and your treatments. They sound like they are probably really hard to go through. I just wanted to let you know how much you have touched my heart. It is such an inspiration to see how strong you are. I am sure a lot of other people feel the same way. So keep that big smile on your face and have a happy, safe, and healthy day! *big hugs*

    Angel Wings
    from Simply Enchanting Angels

    Friday, May 30, 2003 -- 17:31:05 (EDT)
    Name: Cristina -- Email:
    Location: Ann Arbor, MI US
  • I really, really hope that this treatment will work well for you and the pain will not even show up. I am keeping you all in my thoughts and find you so amazing.
    I am working at WDI and know about this site from Kendra. I am so looking forward to reading good news. Soon.., Cristina

    Thursday, May 29, 2003 -- 11:19:38 (EDT)
    Name: Melissa
  • Simon:
    Hope you are doing ok swallowing the icky stuff. Thanks for a fun Friday last week. You're in our thoughts.
    Love, Melissa, Akram, Mekarem, Khalil

    Wednesday, May 28, 2003 -- 17:11:41 (EDT)
    Name: Rachel & Noah Obstfeld -- Email:
    Location: Irvine, CA USA
  • Dear Simon: We wanted to wish you well at this hard time and thought maybe you needed a here goes...there is this man and he is going to the airport to pick up his Mom and he has 6 monkeys for a present for his Mom. The policeman says to him (when he enters the airport) - "Hey, you can't bring those monkeys in here - take them to the zoo! So the man takes them to the zoo. The next day he goes back to the airport (as the Mom is still there!) and again the same policeman says, "Hey, I told you to take those monkeys to the zoo!" And the man says, I did! Today I am going to take them to Disneyland! So, we hope this silly joke brings a smile to your face & we look forward to taking you too to Disneyland! Love, Rachel and Noah

    Wednesday, May 28, 2003 -- 13:19:56 (EDT)
    Name: Emma Mason -- Email:
    Location: oberlin, OH
  • Just want you to know that we are praying for the success of this new treatment. We hold you in our thoughts and prayers always.

    Wednesday, May 28, 2003 -- 01:49:33 (EDT)
    Name: Sally
    Location: Seattle,
  • I'm keeping you all in my thoughts and prayers during this time. Sending you all my love, Sally

    Tuesday, May 27, 2003 -- 23:53:29 (EDT)
    Name: The Shambaughs
    Location: Oakton, VA
  • All our best thoughts are with you during these rough couple weeks in NYC.
    With lots of love,
    Jacqui, George, Emily & Natalie Shambaugh

    Monday, May 26, 2003 -- 12:31:34 (EDT)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY
  • I'm so glad everyone who needed to has approved use of this new therapy. Here's hoping that the bad parts (icky taste and pain) aren't *too* bad and that the good parts (chasing away nasty cancer cells!) are *super* good! We'll continue to think about all of you every day and wish for you much strength and patience and hope during this new leg of your journey.


    Kris, Rob, Emily, Danny, and Laura

    Sunday, May 25, 2003 -- 13:59:18 (EDT)
    Name: LeeWilliams
  • Will be thinking of you these next two weeks as you undergo that treatment in NY. You are a brave boy to do so much so well. Hope it goes as well as possible. Lots of love, Lee

    Friday, May 23, 2003 -- 13:26:45 (EDT)
    Name: Marta, Paul and Sam -- Email:
    Location: Ann Arbor,
  • Dear Simon,

    We want you to know that our family's hearts and hopes are with you as you travel to New York and try this new therapy. We hope the doctors are nice, and the hard parts don't last too long, and that in between the treatments you have time to just be Simon. We will be thinking of you every single day. In the middle of everything else, we hope you feel very proud of yourself for doing all the work of fighting cancer and doing all the work of being a 6 year old boy at the same time. You are doing both those things very well!

    Lots of love,
    Marta, Paul and Sam

    Friday, May 23, 2003 -- 12:12:33 (EDT)
    Name: anne, tom, and johannes -- Email:
    Location: NOrthfield, MN USA
  • This does indeed sound like a huge deal, I'm glad that everything fell into place, but sorry that you have to go through such a huge ordeal, Simon. We will be thinking about you over the next weeks,and hoping the icky stuff isn't too icky. and happy belated birthday from all of us, I can't believe you're 6!!!! lots of love,

    anne, tom, and johannes

    Friday, May 23, 2003 -- 08:45:47 (EDT)
    Name: Jean Watson -- Email:
    Location: Canton, OH USA
  • Simon and family,
    Wow - sounds like the 2 weeks ahead of you are going to be filled with lots of new things and challenges. I'll keep sending my thoughts are prayers your way (making sure to send them east instead of west while you're in New York!)

    Simon, did you ever finish making all of those paper airplanes? Ever once in a while I find one behind a chair or bookcase that's been there for who knows how long! We still have some left to make - maybe we'll do them while you're in New York and that will help our prayers fly your way.

    Love, Jean

    Tuesday, May 20, 2003 -- 13:15:07 (EDT)
    Name: Sally
    Location: Seattle,
  • Sending you a belated HAPPY BIRTHDAY!!! Glad your trip to NYC went well. Talk to you soon! love, Sally

    Tuesday, May 20, 2003 -- 10:40:39 (EDT)
    Name: Lee Williams
  • Glad you are home from NY with a plan, and good to hear you had a good birthday and you are now 6! Wow! Will you be able to take the medicine from Ann Arbor or go back to NY. How nice to had a helper to go with you to NY. Love, Lee

    Monday, May 19, 2003 -- 23:58:06 (EDT)
    Name: Williams in Cali
  • I assume you are back in Ann Arbor now and will return to NYC at the end of the month. Did you like the big city Simon. Those building sure are tall. Sounds like you got to meet a lot of new doctors hope they are as nice as the folks in Ann Arbor. We all send our love!!! Happy birthday big boy # 6 is a lot of fun if you believe Rowan. The most fun lately is playing soccer. Have you tried that?

    We love you, asr

    Sunday, May 18, 2003 -- 20:56:41 (EDT)
    Name: Lisa Olson -- Email:
    Location: ann arbor, michigan usa
  • Hi Simon! I hope you had a good trip to New York! Our class was thinking about you. Happy 6th birthday! Your party has been the talk of the classroom! Please bring us pictures and details! Hope to see you soon! All my love-Ms. Lisa

    Saturday, May 17, 2003 -- 03:02:34 (EDT)
    Name: Julia -- Email:
    Location: Frauenfeld, Switzerland
  • Is it true? Are you six today? Happy Birthday from all of us at Neuhauserstr. 5!!!

    J, S, A & C

    Thursday, May 15, 2003 -- 10:24:50 (EDT)
    Name: Anne, tom and Johannes -- Email:
    Location: Northfield, MN USA
  • Hi to Markus and Miriam in A2, and hi to Mary and Simon in New York! We are all thinking of you going through your scans and tests and procedures, and hope that the Ronald McDonald House is at least fun! Make sure you get some bagels from H&H before you leave NYC!!

    anne, tom, and Johannes

    Wednesday, May 14, 2003 -- 16:54:08 (EDT)
    Name: Madi, Lexi, Lawrie and Curt
    Location: Seattle,
  • Hi to Markus and Mirium,

    We are thinking about you both too. It must be different to be just the two of you at home. If possible, we hope in the midst of maybe feeling like your missing Mary and Simon and or feeling far away there are also some times when you both get to really enjoy your one-on-one Daddy-daughter time together.

    We are with all of you guys in spirit.
    Madi,Lexi, Lawrie and Curt

    Wednesday, May 14, 2003 -- 15:51:48 (EDT)
    Name: LeeWilliams
  • Mary and Simon, You are in NY now and I hope it is going well. It will be good to talk to others about your future medical journey. What a Mom you have been Mary - my thoughts are with you and an amazing feeling of respect for how you've handles things. A package is on its way to Simon. Happy, happy birthday - hope you'll be home by then. Love, Lee

    Tuesday, May 13, 2003 -- 21:20:36 (EDT)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY
  • Wow, a trip to the Big Apple for Mother's Day! And speaking of holidays, Simon, you have a birthday coming up really soon, too, right?? It looks as though I'll be en route to my nephew's graduation in Virginia right about then, so I'll wish you an early Happy Birthday now: HAPPY BIRTHDAY!!!!

    I hear Ronald McDonald House is a great place -- hope you find it comfortable and welcoming. And I hope, too, that all goes well for you at Memorial Sloan-Kettering -- just think, you get to be in on the great discoveries Dr. Kushner and his colleagues are making!

    I think this must be really good preparation for your future career as a scientist, Simon! Your very own body is a laboratory of sorts, where you've already learned so much about all the good foods, medicines, and treatments that can help you get rid of those pesky cancer cells. And now you've got yet another new treatment to try -- I have visions of those monoclonal antibodies working *really* hard to help you and your immune system continue to "fight back" against the neuroblastoma! "Go, team, go!!!"

    We'll be thinking about all of you during this new phase of treatment and wishing you all the best. Love,

    Kris, Rob, Emily, Danny, and Laura

    Monday, May 12, 2003 -- 13:12:30 (EDT)
    Name: Madi, Lexi, Lawrie and Curt
    Location: seattle,
  • Hi Mary and Simon,

    We are thinking of you both lots.
    -Hoping you arrived safely in New York - what a big city!
    -Hoping that transitioning to the Ronald McDonald House is feeling okay for you both and to a new hospital, new providers, new routines etc. --that is alot of transitions all at once.
    Mary I have been thinking about you on this Mother's Day. . .about what a wonderful mother you are and what an uncharted road of motherhood you are on.

    We are with you guys in spirit, always.

    Madi, Lexi, Lawrie and Curt

    Sunday, May 11, 2003 -- 05:44:14 (EDT)
    Name: Julia -- Email:
    Location: Frauenfeld, Switzerland
  • Dear Simon and Mary,
    If you read this before you go to New York today we wish you all the best for your trip and trust that you will get better as a result. Love from Julia, Serena, Alma and Christoph

    Wednesday, May 07, 2003 -- 22:33:18 (EDT)
    Name: Lou Dailey/grandmother to Josh P. -- Email:
    Location: Knoxville, TN. USA
  • Dear Simon & Family,
    What a great web page you have got, and I still did not get through it, but will come back soon and visit again. I also copy one of your web site Feederwatch. I know Josh will love this site also(hope you did not mind).Simon, you are a handsome boy, maybe some times you & Josh will get to meet. He will be at MSKCC 5/27/03 for his 8th. 3f8 antibodies. I just had to say Hi, after your mom/dad posted to the NB group.Remember you will be in my prayers. Your friend from our NB group.Lou/mom to sherry/grandmother to Josh P(10)DX.NBIV 6/01

    Tuesday, May 06, 2003 -- 11:00:12 (EDT)
    Name: Nicole Bell -- Email:
    Location: Southfield, MI
  • Hi Mary and Simon,

    I finally got some time to go through the entire website. It is very nice. I got up thinking about you this morning and spent some time learning about your condition and viewing the wonderful pictures your family and friends have taken. Hope all is well. Eric is doing fine. When are you moving? Just wanted to let you know that we were thinking about you. Your fellow UofM Cancer Center friends--
    Nicole, Eric Bell and Family

    Sunday, May 04, 2003 -- 22:16:31 (EDT)
    Name: Geoff -- Email:
    Location: Oberlin, OH USA
  • Simon,
    I saw you at church today and didn't even catch you. You were buzzing around so fast that I lost track of you and your Mom & sister. You certainly were looking happy and active, and for that I was very glad. We keep thinking of you.

    Saturday, May 03, 2003 -- 22:32:07 (EDT)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY
  • Yesterday I checked my e-mail archives at work and found that my boss is indeed friends with Dr. Brian Kushner! So you apparently will be in very good hands (not that there was ever any doubt! :-). If you like spreading those small-world kinds of tales, you can say that you know Kris Hopkins who works with Helen Kebabian who knows Dr. Kushner.... (So much for six degrees of separation -- it only took three in this case!)

    Have a good weekend. Love,


    Thursday, May 01, 2003 -- 16:45:23 (EDT)
    Name: Gari Stein
  • Hello everyone, I have not checked in in a while and it looks like a lot is going on. I have been very busy grandmothering and working diligently on my new music series that I am trying to get done, before new grandbaby arrives in september. I am sending you all my deepest love and prayers as always. Depending on your schedule please note that our drumming picnic is the last Friday in June. We hope you all can make it. Much love always, Gari


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