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MESSAGE BOARD Archive June 2004

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Wednesday, June 30, 2004 -- 22:05:53 (EDT)
Name: Beth Hospadaruk -- Email:
Location: Ann Arbor, MI
  • Hi Simon,
    I just got back to Ann Arbor from a trip to Long Beach California. We flew in the plane right over your house. I was thinking about you and waved. I wonder if you saw me? I heard a funny joke while I was in California and thought you might enjoy it. Q: "Why did the belt get arrested? A: For holding up a pair of pants" That's all for now, Beth

    Tuesday, June 29, 2004 -- 21:54:27 (EDT)
    Name: Dina and Dick
  • Dear Simon and family, we enjoyed have dinner with your Grandpa last night. We talked about all of you a lot and send you, including Grann Ann, our thoughts and warm wishes.
    Dina and Dick from Oberlin

    Tuesday, June 29, 2004 -- 16:53:46 (EDT)
    Name: Charlene Keshe -- Email:
    Location: , England
  • Hello to you all from the Oberlin group and a special hello from Jane who is thinking of you and sends her best.

    Monday, June 28, 2004 -- 15:59:04 (EDT)
    Name: Marta, Paul, Sam -- Email:
    Location: Ann Arbor,
  • A quick "hello" to all of you. We enjoyed the pictures of the Cousins a lot - it set us off thinking about many cousin stories from our own families (like the time my cousin fed me crabapples until I got sick, or Paul and his cousins falling into a lake from a rope swing). The picture wall idea is great, and we just got a new digital camera, so very soon now we'll be sending in our contribution. We surely are thinking of you, and it will be fun for us to put that into a picture!

    Till soon,
    Marta, Paul and Sam

    Monday, June 28, 2004 -- 02:04:29 (EDT)
    Name: Mary Craig -- Email:
    Location: Salt Lake City, UT USA
  • Hi everyone,

    Still not internet service at our house. We are officially extremely disappointed with our DSL line service provider, Qwest. They promised to send a tech to fix the problem by noon on Saturday. It's midnight on Sunday, and we are still toast.

    Things are otherwise going OK. I truly hope to be able to work with the Web site again soon.


    Sunday, June 27, 2004 -- 22:45:14 (EDT)
    Name: Rachel Obstfeld -- Email:
    Location: Irvine, California
  • Hi Simon! Sorry to hear that you couldn't come to visit us in California. Do yu like the goodies we sent you? hope so. Anyway, I hope you're feeling better! Hopefully, we will see you soon!

    Saturday, June 26, 2004 -- 01:26:47 (EDT)
    Name: Madi, Lexi, Lawrie and Curt
    Location: Seattle, WA
  • Simon and family,
    We had a great day today and you all were on our brains and in our hearts the whole time. We were preparing for and putting on our first "Alex's Lemonade Stand in honor of Simon, Alex and all kids fighting cancer" We did it together with Amy and Sally in front of our PCC (Puget Sound Consumer Coop grocery store) The girls shopped for the suppies (which we got donated thanks to Safeway) and decorated a banner. Amy made a fabulous donation jar and special sign and Sally made a wonderful poster board of photos of Simon (and Miriam) from your website. Amy, Lexi and Madi were a good team. We made $183.00 dollars.

    Even though we are far away know that we are holding you close in our thoughts day and night (and the girls wish they could come over for a play date along with Miguel tomorrow.)
    --we are with you in spirit

    Madi,Lexi, Lawrie and Curt

    Saturday, June 26, 2004 -- 00:36:30 (EDT)
    Name: Mary Craig -- Email:
    Location: Salt Lake City, UT USA
  • Hello everyone!

    We are having an annoying lapse in our internet service, so we aren't able to do a lot of the things we're used to doing. We've been told a tech will be out to the house by noon tomorrow. Better be!

    Simon is spending his days watching movies, sleeping, listening to stories like Junie B. Jones and Captain Underpants, and resting. He has been quite withdrawn the past few days. He seems to be having less pain shoot through, but he's had an upset stomach and doesn't feel much like eating or drinking.

    Fortunately, his electrolytes seem to be getting back in balance.

    He has a playdate planned for tomorrow morning with Miguel. Usually, that's terrific medicine. We hope it perks him up tomorrow!

    Keep the photo greetings coming in. A few have made it onto the Web site in the STORIES FOR SIMON section. As I said, with our internet service down (boo hiss), it's hard to do much.

    I managed to get in on Markus' computer via a dial-up modem. For whatever reason, my own computer can't dial in.

    Trying to keep the computer frustration thing in perspective,


    Friday, June 25, 2004 -- 19:16:28 (EDT)
    Name: Rachael Coleman -- Email:
    Location: SLC,
  • Happy Friday Simon!

    I found a joke that made me giggle today. Hope you like it too.

    Why did the cowboy buy a dachshund?

    Someone told him to get a long little doggie.

    Friday, June 25, 2004 -- 12:37:08 (EDT)
    Name: Rebecca
    Location: Falcon Cove, OR
  • Dear Simon,

    We love you! We are on the Oregon coast with my mom at present, so we are actually closer to you - geographically speaking- than usual.
    We are sending you big hugs, and the joy of a June day!

    How neat for you to be visiting with cousins. Say hi to Grann Ann, Margot, Nathan &amp Julie for us - and to Miriam, Markus and Mary, too.

    Lots of love and prayers are coming your way!

    from Rebecca, Randy, Emma and Schuyler, and our "Gamma" Pat

    Friday, June 25, 2004 -- 08:21:52 (EDT)
    Name: Steve Robertson -- Email:
    Location: St. Paul, MN
  • Hello Vodoseks and Craigs,

    I awoke today to the cool morning air spilling in the window, and, while still warm and cozy, started thinking of all of you out there together. There is nothing on earth quite like the love and warmth of family. I wish you, Simon, a comfortable and pain-free week, and all of you the joy of reconnecting with each other.
    Steve Robertson

    Thursday, June 24, 2004 -- 20:45:13 (EDT)
    Name: Karson, Kasia, &amp Colter Eilers -- Email:
    Location: Salt Lake City, UT United States
  • Hi, Simon! We had fun playing video games with you last week when we came over with Liz, Elise, &amp Ian! Who do you think you'll get for a teacher in the fall? We think you'd really like Ms J or Ms Moyle.

    Thursday, June 24, 2004 -- 12:17:31 (EDT)
    Name: Judith Layng -- Email:
    Location: Washington, DC USA
  • Dear Simon - I am a friend and former teacher of your Mother's. The last time I saw you and Miriam (and your parents) must have been 2 years ago at First Church in Oberlin. I was so glad to see the recent pictures of you! You are a very courageous young man with more friends and well-wishers than I can count! Have fun with the Nintendo! Judith Layng

    Wednesday, June 23, 2004 -- 21:18:36 (EDT)
    Name: John &amp Anne Elder -- Email:
    Location: University Park, Maryland USA
  • Dear Simon:

    All the Elders send cheers and good thoughts to you in far-off Utah. Give your parents and sister a hug for us.

    The Elder

    Wednesday, June 23, 2004 -- 15:51:49 (EDT)
    Name: Sally Blodgett Olson -- Email:
    Location: Seattle,
  • Simon, look for our photos coming in the regular old mail! We don't have a digital camera yet. I know you're enjoying seeing all of your cousins, aunts, uncle, Gran... Please say hi to all of them for me. Rest comfortably and know that lots of love is coming your way all the time!
    love, Sally

    Tuesday, June 22, 2004 -- 23:25:44 (EDT)
    Name: Connie Cohn -- Email:
    Location: Tashkent, Uzbekistan
  • Hi, Simon, Miriam, Mary and Markus!

    I see I have lots of news to catch up on. I've been busy learning to teach English, American studies and literature to Uzbek university students . Haven't been doing much e-mail or internet. I really miss you guys. I see things have been tough a lot lately. But lots of wonderful moments too. I love your spirit, and get nostalgic thinking about the fun moments we all had. I think I'll go shopping in a couple of days and see if I can find some different surprises. No Junie B. Jones in Tashkent, but maybe some weird candy. Hang in there you all and continue to enjoy the good moments, as you so obviously do. Much love always, Connie

    Tuesday, June 22, 2004 -- 14:54:29 (EDT)
    Name: Sarah -- Email:
    Location: Akron, OH USA
  • Hi everyone,
    Hope your pain is all better, Simon, and that the Dilaudid bag never runs out again! Mary, Emily Ganzel and I often reminisce about "Le weekend" and still talk that way now and again. Jean, if you're reading, I HAVE changed quite a bit -- I'll attach the RECENT photos when they're ready! And you?
    Anyway, much love and prayers being sent from Ohio. Call any time, day or night.

    Tuesday, June 22, 2004 -- 09:41:19 (EDT)
    Name: carol longsworth -- Email:
  • Good morning Simon and all the family, That is a very handsome picture if you on the first page today! We are thinking of you and hope today will bring lots of smiles and loving times. Your friends in Oberlin, Carol and Bob

    Monday, June 21, 2004 -- 13:48:11 (EDT)
    Name: Mary Craig -- Email:
    Location: Salt Lake City, UT USA
  • For those wondering, you can email attach your photo greeting for Simon to me at or to

    I just got the first one from Carol Roan Schewe in Wisconsin (a church friend from Ann Arbor who recalls caring for Simon in the nursery!!).


    Monday, June 21, 2004 -- 12:36:50 (EDT)
    Name: amy -- Email:
    Location: ann arbor, mi
  • I love the imagery of a wall full of Simon's admirers cheering him on. If we want to email a photo as an attachment, please let us know what address to use. Thanks!

    Monday, June 21, 2004 -- 01:21:22 (EDT)
    Name: Williams in CA
  • Simon Miriam,

    Thinking about you....Junie B Jones was big
    in Rowan's first grade this year too. Happy Summer Solistice. Did it feel like a long day to you today? We had a great time with your cousins Eliza and Claudia they are a lot of fun. Rowan explained to them that you two are very special cousins to him and how much he got to see you this year. They are now down in Laguna hopefully having nice summer weather. We love you and send all the best we have to offer to all four of you and Grann. Wish we could stop by for a visit! A,S, &amp R.

    Sunday, June 20, 2004 -- 22:34:08 (EDT)
    Name: Ann Longsworth Orr -- Email:
    Location: Bryan, OH
  • Hello Simon, Miriam, Mary and Markus! (and Gramm!). Just wanted to let you know that you are all so much in our thoughts and our prayers. This is an extraordinary website and every time I check it I am moved by the love and commitment that is so evident in its pages.
    Simon, the pictures of you as Captain Underpants are fabulous. Our son Lewis (almost 5) loves Captain Underpants and I think I will look for Junie B. Jones at the library for him next. Right now we are reading Mrs. Piggle Wiggle books (do you remember those from the Oberlin Public Library, Mary?).
    Love to all of you.

    Sunday, June 20, 2004 -- 16:35:55 (EDT)
    Name: Ulf &amp Silvia Knöbel -- Email:
    Location: Zürich, Switzerland
  • Hi Simon
    We are following the news about you fighting the cancer and want to give you our warmest support.
    Ulf, Silvia, Lea and Marla

    Sunday, June 20, 2004 -- 08:35:35 (EDT)
    Name: Irene Judmayer
    Location: Linz, Austria
  • Happy Nintendo, Simon! Funny work to do! Happy violin, Miriam! Au big energy-hug from Overseas.

    Saturday, June 19, 2004 -- 18:52:55 (EDT)
    Name: Mary Craig -- Email:
    Location: Salt Lake City, UT USA
  • Liz (and anyone else in Salt Lake City),

    I just received my copy of the book "Alex and the Amazing Lemonade Stand". I'd love to loan it to you to share with the families doing the stand next Saturday. Have you also thought about the Arts Festival that weekend?

    As for the new Poke game, Simon would love to see Ian and Elise!--Mary

    Saturday, June 19, 2004 -- 17:59:01 (EDT)
    Name: Elizabeth Kent -- Email:
    Location: Oregon House, CA
  • Dear Simon and all the rest of your great family who I love very much,

    This is a LOVE ATTACK! Watch out!

    I hope you remember me from our dinner at the Seal Rock restaurant in San Francisco. I thought you were the best, most fabulous boy I had ever met. Watch out! Here comes the LOVE!

    Congratulations for graduation from first grade. I send you much (watch out!) LOVE,


    Saturday, June 19, 2004 -- 17:46:39 (EDT)
    Name: Liz Martin -- Email:
    Location: SLC, UT
  • Hi Simon and all,

    I wanted to let anyone in SLC know that we are going to have an "Alex's Lemonade Stand" at the henna booth at the Farmer's Market next Saturday. We've downloaded all of the stuff, and today, my Elise sold father's day pictures and made $3 for the fund. If anyone else wants to participate, please email me!

    Simon, you lucky duck to have gotten the Pokemon game...what a nice surprise. Ian and Elise are envious and they want to come over soon to play.


    Saturday, June 19, 2004 -- 15:30:32 (EDT)
    Name: Jean Watson -- Email:
    Location: Canton, OH USA
  • How fun to read about old friends from high school. Mary, Sarah, Emily, Joan, Janie - if you remember I never took French because I knew there were colleges out there that didn't require a language, so therefore I didn't require a language. Ah, the wisdom of youth... Anyway, I loved seeing the connection to Sarah (Sarah, you haven't changed a bit, except for the MD following your name!), and the quick trip down memory lane.

    Simon, hang in there. I'm sure you're enjoying Grann's visit - she's a special lady and you're lucky to have her. I send you prayers for happy, pain-free days, and a hope that the doctors can come up with some options that work for you. You have SO MANY people out here who love you and would do anything to be able to help. I hope that gives you comfort and strength.

    Love, Jean

    Saturday, June 19, 2004 -- 00:15:02 (EDT)
    Name: Mary Craig -- Email:
    Location: Salt Lake City, UT 84105
  • In answer to Kris and Laura Hopkins, Simon has lost 5 teeth so far, all since January. We just read the "Toothless Wonder" story a couple of days ago. AND Junie B. Jones HERSELF just came to our local bookstore to do a show for families. She had a trunk full of stuff that she pulled out to show us. She was hilarious. Afterwards, some kids waited in a long line to get their photo taken with Junie B. We left because we were too pooped. Junie B. travels in her Stupid Smelly Bus all over the place to visit with kids.

    We are really lucky to have a terrific, ecclectic, independent bookstore in Salt Lake City called The King's English. Perhaps the best part about this bookstore for us is that it is just around the corner from our house, and we can wander over any time we like.


    Friday, June 18, 2004 -- 22:08:28 (EDT)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY
  • I've been out of touch for way too long -- so much is happening in your lives! There have been birthdays, and terrific updates to Simon Says, and worries about pain and disease progression, and fun playing baseball *and* (I saved the best for last, 'cause this is Laura's favorite!) Junie B. Jones books! We just LOVE June B. at our house, too. Laura really liked the one about the "Toothless Wonder" -- have you read that one yet? Laura's recently lost a tooth or two, so that subject was a big hit. How 'bout you guys -- any loose teeth at your house? Have your *kitties* had any loose teeth?? I remember when I was 8 my kitten lost a tooth, and I made sure to put it under his bed for the Tooth Fairy to find!

    We're thinking about all of you -- a lot -- and wishing you painfree days, Simon, as well as wonderfully restorative naps, and tons of fun with visiting relatives and friends.

    Sending you lots of love and warm thoughts,
    Kris, Rob, Emily, Danny, and Laura

    Friday, June 18, 2004 -- 14:52:12 (EDT)
    Name: Lexi
    Location: Seattle, WA
  • Hi Simon,
    I hope your body is not hurting you. Here is a joke, I hope it can make you laugh (you can tell Miriam too).

    What does a piece of toast wear to bed?

    Pa JAM as

    I love you and want to play with you,


    Thursday, June 17, 2004 -- 20:03:53 (EDT)
    Name: The Burger Family
    Location: Ithaca, NY
  • Hi Simon,
    I read that you have been writing some poetry this year at school. Jenna asked me to share one of her poems that she wrote in her first grade classroom. We hope you have had a good day.

    Polar Bear Cubs
    by Jenna Burger

    Playful cubs.

    Furious cubs.

    crawling in a cave,
    Tired cubs.

    Wednesday, June 16, 2004 -- 19:08:33 (EDT)
    Name: Geoff -- Email:
    Location: , OH USA
  • Simon,
    We in Ohio are all thinking of you and sending our prayers your way. Give your Mom and Dad a special hug today. I was reading about all the toys you have to play with and I wonder how you can choose which to play with. Maybe when you come back to Ohio you can explain it to me so that I can explain it to my son, Michael.

    Our thoughts and prayers are with your whole family.

    Wednesday, June 16, 2004 -- 17:37:58 (EDT)
    Name: Marta, Paul, Sam -- Email:
    Location: Ann Arbor,
  • Happy Birthday Mary - belated, but heartfelt!

    Simon, we read your comment that the cancer is "serious work", and we just really wanted to say that we have so much admiration for you and what a fantastically good worker you have been. Doing what you have to to fight the cancer, learning to read, making friends, being a brother, being funny and honest and not like anybody else in the world - that is quite a set of accomplishments for a guy as young as yourself! (I know lots of grownups who do a lot less . . .) Get plenty of rest, and we hope it helps to know that your big audience of fans is out here rooting for you.

    Marta, Paul and Sam

    Wednesday, June 16, 2004 -- 16:29:05 (EDT)
    Name: Lawrie
    Location: Seattle,
  • We love you and you all are very much in out thoughts! I recognize that your life is very full and so you may not have time for answering this but. . .Mary and Markus, you have mentioned a neuroblastoma listserve/parent group kind of thing you are connected with - I wonder if that is information I could pass on to a parent I know here in Seattle who's child was recently diagnosised with neuroblastoma and is seeking resources. How would she go about getting connected?

    love you guys,


    Tuesday, June 15, 2004 -- 23:52:09 (EDT)
    Name: Rebecca
    Location: Oberlin,
  • Happy Birthday, dear Mary! We love you and send a family birthday song to you - in harmony!

    and Simon, sweetie:
    we love you and are sending you big hugs today. Kisses and happiness - to Miriam and Markus, too - from Rebecca, Randy, Emma &amp Schuyler

    Tuesday, June 15, 2004 -- 15:45:19 (EDT)
    Name: carol longsworth -- Email:
    Location: Oberlin, OH usa
  • Happy Birthday, Mary! We send our hugs and warm wishes that you will have a very special day. Those Mylar balloons should cheer up the household a bit. I am sure you are glad to have Grann with you, too. God bless you all. Carol and Bob

    Tuesday, June 15, 2004 -- 09:50:14 (EDT)
    Name: amy -- Email:
    Location: ann arbor, mi
    Sending thoughts for happy, pain-free hours amongst long naps.


    Tuesday, June 15, 2004 -- 07:58:36 (EDT)
    Name: Heather Budd -- Email:
    Location: Buxton, England
  • Hi, Simon
    Just wanted to say hi from England andwish you happy birthday for last month and your mom for yesterday. Hope it was a great cake!
    You have been doing such a fantastic job recently, being really strong and brave through a lot of different medicines and hospital visits. I'm always amazed by how well you cope and also by all the other activities you fit in! Congratulations on finishing first grade. Susie too has almost finished, and also she has just learned to ride her bike and started the violin - just like Miriam. Mary you are in for a 'treat' when you have two new violinists practising at home!!!!!
    I was thriled to learn that you love to read, Simon as it is Susies favourite activity. She can spend hours curled up on the couch with a good book. As you are having lots of sleepy rests at the moment it sounds like you could do with some new good books. Susie, Amie and I will pick out some of their favourites to send you. so hope your pain and tiredness goes away very soon, but meanwhile enjoy those naps!
    lots of love from
    Heather, Tim Amie and Susie xxxxx

    Monday, June 14, 2004 -- 23:54:07 (EDT)
    Name: Jennifer Sharpe -- Email:
    Location: Lyndhurst, OH USA
  • Happy Birthday Mary!! I always remember your birthday since it's right by my aunt sally's!! i rmember that one year we celebrated both your birthday's in oberlin together - that was fun :-) i hope this one was just as fun! :-D!
    ~simon i hope your feeling well with all that sleep your getting! im very busy lately and i wish i could sleep liek that! :-) hehe! it sounds liek your having fun with all your visitors! i wish i could visit and see you! :-) stay strong hunny!
    ~love to all!
    --Jennifer Sharpe..and family! :-D

    Monday, June 14, 2004 -- 23:16:17 (EDT)
    Name: Sally Olson
    Location: Seattle, WA
  • Happy Birthday, my Gemini twin!
    Simon, I'm glad you are having fun times with friends and your family. I hope to see you soon. I'm always hoping that your pain is minimal.
    much love, Sally

    Monday, June 14, 2004 -- 22:21:12 (EDT)
    Name: Liz, Mike, Emma, and Lucas -- Email:
    Location: Ann Arbor, MI
  • Happy Birthday Mary!

    We were so excited to learn of Miriam's violin lessons &amp of Simon's new-found interest in the violin. It made me remember that I have 3 violins stashed under my bed from when Emma and Lucas were smaller! If you would like to have them, we would be happy to know they'd found such a good home. There's a 1/8 Nagoya, a 1/4 Twinkle from Shar, and a 1/2 Nagoya.

    Peace, Love, and Health to you all!

    Monday, June 14, 2004 -- 21:37:48 (EDT)
    Name: Madi, Lexi, Lawrie and Curt
    Location: Seattle, Wa
  • "Happy Birthday to you, Happy Birthday to you, Happy Birrrthdayyyy dearrrrrr Maryyyyy, Happy Birthday to you!!!!!!!!!!!!!" can you hear our harmony -- I tell ya it is some of our best stuff yet!

    We are holding you all in our thoughts, prayers, smiles and laughter!!!!

    Seattle Williams

    Monday, June 14, 2004 -- 19:38:43 (EDT)
    Name: Uncle Curt -- Email:
    Location: Seattle, Washington
  • Craig-Vodosek Crew
    I wanted to compliment Simon for his insight on the Simon says part of your web page. It's great to know what your thinking and your insight is helpful. Hope you can find some comfort and enjoy those Tums. I hope we get a chance to play together again soon. We play a heck of a game of tag. Thinkin of you - Love uncle curt

    Monday, June 14, 2004 -- 12:17:06 (EDT)
    Name: Quentin Smith -- Email:
    Location: Ann Arbor, MI USA
  • Hi. Simon. I read that Miriam has begun to play the violin and that may be you do too. I started playing the violin in October. It is a fun instrument if you play music that is fun. My friends and I have a band that plays music for contra dances. We are playing for a dance on this Saturday in Ann Arbor. I play guitar in that band but there are violin (fiddle) players in the band too. I always liked their playing and so I finally decided to try playing the violin. I think it is fun. My teacher's name is Pam Meisel and she lives in Ann Arbor too. On thursdays I leave work just a little early so I can drive home and get my violin and go to Pam's house to play. May be you will feel like trying to play music when you feel better. Love Quentin.

    Monday, June 14, 2004 -- 11:56:11 (EDT)
    Name: Liz Martin -- Email:
    Location: Salt Lake City, UT USA
  • Hello Craig-Vodosek clan and community!

    I have recently realized that checking the website and message board are as big a part of my morning routine as reading the SL Trib online and checking my email! You (Simon) are so lucky to have so many fans and people who love you! (I've just never posted because I didn't want to make your out-of-town friends jealous that we get to hang out with you and Miriam! Oh yeah, and your parents too. :->)

    To Rachael re: lemonade stand...I have an idea - how about setting up at the Farmers Market on Sat.? There were tons of people there Saturday, and since there's no produce to speak of yet, the arts/crafts vendors like me were very busy. Email me...


    Monday, June 14, 2004 -- 10:34:40 (EDT)
    Name: irene Judmayer
    Location: Linz, Austria
  • Dear Simon!
    What does this mean for You: The cancer is ahead?
    Love and power

    Monday, June 14, 2004 -- 00:19:08 (EDT)
    Name: Mary Craig -- Email:
    Location: Ann Arbor, MI United States
  • I'm responding to Rachael Coleman's post about Alex and the Lemonade Stand. We are "friends" of Alex and her parents via a very active listserv for neuroblastoma families. Everyone is so excited about her amazing initiative and increasing celebrity.

    It's wonderful that you are planning to do lemonade stands. We had hoped to help out with having a stand in Utah, but Simon is definitely not feeling up to that kind of activity right now, and the rest of us are too singleminded with his care to do anything "extra".

    Alex has the same type of cancer as Simon, and she has been hacking away at it for 7 years. She was diagnosed just before turning 1, and now she's 8.

    On another note, Rachael, you are the first person in 2.5 years to make me aware of that weird feature of how the URL hyperlinks your name. It's not what I expected either. Maybe I'll ask my Web-guy buddy. And maybe I'll just let it go.

    For those from Oberlin, I did a double-take, too, because we all know a Rachael Coleman who went through school a couple of years ahead of me.

    Rachael from SLC, we're looking forward to connecting with you here. We didn't make it to church today--too much medical this and that to attend to.


    Sunday, June 13, 2004 -- 23:45:04 (EDT)
    Name: Rachael Coleman -- Email:
    Location: Salt Lake City, UT
  • Hi, me again.
    I'm not familiar with the way this forum works and put the link in my contact information. If you click on my name in the previous post it links to the article about Alex's lemonade stand. Here's the address for it too.

    Brightest of blessings to you &amp yours from me &amp mine,
    Rachael, Maggie and August

    Sunday, June 13, 2004 -- 23:42:40 (EDT)
    Name: Rachael Coleman -- Email:
    Location: Salt Lake City, UT
  • Hi Simon!
    Hope you had a good weekend. I found this article about an eight year old girl named Alex with neuroblastoma like you. She wanted to raise a million dollars for cancer research and decided to do it by having lemonade stands. Now people all over the country have lemonade stands and donate all the money to cancer research. Maybe we can have some lemonade stands here in Salt Lake next weekend too. My son August is going to New York to stay with his family next week and says he's going to have a lemonade sale there. Maggie and I will have one at our house kind of near the Albertson's at 9th &amp 17th. We will send all the money we make to Alex to help her reach her million dollar goal.

    Sunday, June 13, 2004 -- 23:09:00 (EDT)
    Name: Sisson Craigs -- Email:
    Location: Indy, IN
  • Dear Simon,

    We're looking forward to seeing you and your family and your new kittens in a week and half. We're very sorry to hear that you are in pain again. We think about you and talk about you at our dinner table. Claudia and Eliza have picked out a gift that they hope you and Miriam will like. We love you Simon and the rest of your family. See you soon. Love, Claudia, Eliza, Jocelyn and David

    Sunday, June 13, 2004 -- 19:17:55 (EDT)
    Name: Karan Cutler -- Email:
    Location: Essex Junction, Vermont US
  • Dear Simon: I'm a friend of your grandmother and grandfather in Oberlin, and I knew your mama when she was a little girl. After I read about all the hamburgers you've been eating, I thought you might like to hear about the owls in our woods. Every night at dusk the begin calling to each other. It sounds like they are saying WHO COOKS FOR YOU, WHO COOKS FOR YOU ALL. These are barred owls, and they have big dark eyes. If your mama and daddy have a bird book, you can see what they look like. I don't think barred owls cook hamburgers, but you never can tell. I hope tomorrow is a good day. Karan

    Sunday, June 13, 2004 -- 11:53:14 (EDT)
    Name: williams in CA
  • Simon,

    Bet your cousins are visiting now? Hope your pain is less today. Rowan would love to play some computer games with you. Wish we were closer. Rowan too is convinced that guitar and drums are where it's at. He has started guitar lessons but the acoustic guitar doesn't guite get the same enthusiasm as watching the middle schoolers play electric guitar in the rock band. But I tell him you have to learn how to play first before you can get that electirc guitar to do what you want. We have a very special activity planned tonight. We are going to see the Musical The Lion King. Wish you and Miraim could come with us. We bought our tickets 6 months ago and the date has finally arrived.

    We send all our love to you and your family. love you tons! A, S, R

    Sunday, June 13, 2004 -- 05:21:19 (EDT)
    Name: Irene Judmayer
    Location: Linz, Austria
  • Lieber Simon!

    Nach dem Lesen der neuen "Simon says"-Statements war ich sehr nachdenklich. Besonders über den Satz "the cancer is ahead" musste ich lange überlegen.
    Also: Nicht immer gewinnt der, der nach außen der Stärkere zu sein scheint. Und es ist auch kein Zeichen von Schwäche, in so einem Kampf einmal sehr müde zu sein.
    Es gibt einen asiatischen Kampfstil, der heißt "Wing Tsun Kuen", eine andere Art von Kung Fu.
    Wing Tsun haben vor vielen hunderten Jahren chinesische Nonnen (!) entwickelt und ihre Möchtegerneroberer damit bezwungen.
    Das Wesentliche daran: als Schwächerer die Stärken des Feindes für sich selbst nutzen zu lönnen. Klingt kompliziert? Ja, das stimmt. Und es dauert Jahre, bis man es wirklich begriffen hat. Ich weiß es auch nicht genau, aber ich stell es mir folgendermaßen vor: Da versucht beispielsweise einer, dir einen kräftigen Boxschlag ins Gesicht zu versetzen. Weil er so viel stärker ist als du, kann er sich gar nicht vorstellen, dass du dich zur Wehr setzt. Er legt ganz viel Energie in den Schlag, aber mit einem simplen Abwehrgriff und seiner Überraschung kannst du den Schlag aber tatsächlich abwehren, lenkst du seine Energie ins Leere und er kommt aus dem Gleichgewicht und kippt um. Der Feind ist so frustriert, dass er aufgibt.
    Bei deiner Krankheit ist möglicherweise der Schmerz diese Stärke des Feindes. Du fühlst, wo er gerade zuschalgen will und kannst sofort darauf reagieren. Gott sei Dank bist du ja schon fast erwachsen und intelligent und kannst deiner Umgebung mitteilen, wo sich was in deinem Körper gerade abspielt. Das ist ein großer Vorteil.
    Ich denke sehr viel an dich und deine Familie und hoffe, ein bisserl Energieschub von Übersee kann helfen.


    Sunday, June 13, 2004 -- 03:42:42 (EDT)
    Name: Julia -- Email:
    Location: Frauenfeld, Switzerland
  • Simon, you are constantly in our thoughts. We have huge admiration for your sense of humor and will to fight. Much love from Serena, Alma, Christoph and Julia

    Thursday, June 10, 2004 -- 21:06:16 (EDT)
    Name: Rachael Coleman -- Email:
    Location: Salt Lake City, Utah
  • Hi Simon!
    I just found out about your website. Seems like the best people come here to hang out &amp stay up to date on how you are. Congratulations on passing first grade! Like you &amp your family, my kids &amp I go to the 2nd service at the UU church. Maggie just finished 5th grade and August just finished 3rd grade at Emerson Elementary. You're my hero because you always have such a big wonderful smile when I see you!

    Thursday, June 10, 2004 -- 10:07:08 (EDT)
    Name: Donna Ainsworth -- Email:
    Location: Ann Arbor, MI
  • Hi Simon,

    I'm going to do a love attack soon and I bet love attacks are going to catch on thanks to you They are the best attack anyone could give or get.

    I said prayers for you and your family at church last week, and will keep putting those prayers out there, as well as the love attacks.


    Thursday, June 10, 2004 -- 10:06:06 (EDT)
    Name: Donna Ainsworth -- Email:
    Location: Ann Arbor, MI
  • Hi Simon,

    I'm going to do a love attack soon and I bet love attacks are going to catch on thanks to you They are the best attack anyone could give or get.

    I said prayers for you and your family at church last week, and will keep putting those prayers out there, as well as the love attacks.


    Thursday, June 10, 2004 -- 00:57:11 (EDT)
    Name: Donna and Rick Gross -- Email:
    Location: Midland, MI USA
  • Happy Birthday Simon, and welcome to the Second Grade!!!

    We just caught up on your end of the school year events and marvel at how well you can write!! We can tell that you must love to read and be read to, as well.

    We think of you and your sister, Miriam, and your parents often, and send our hugs. Play hard, eat lots of ice cream, and give everyone a hug from us!!

    Love from Lindsay's parents....Rick and Donna

    Thursday, June 10, 2004 -- 00:55:59 (EDT)
    Name: Oakland Williams
  • All,

    Thanks for keeping us updated. We really appeciate the information. Congratulations
    on becoming a 2nd grader Simon!!! Rowan had a "Stepping Up" ceremony today and offically became a 2nd grader. We are really looking forward to seeing your cousins Claudia and Eliza, but lucky you get to see them first!! Sorry to hear about your having pain, we'll be wishing it away. Maybe if we hit it with a fierce
    heart attack, I can just see them shooting across the screen, we can scare it away.

    We love you 4.

    Annette, Steve, Rowan

    Wednesday, June 09, 2004 -- 21:01:41 (EDT)
    Name: Rebecca, Randy, Schuyler and Emma
    Location: Oberlin,
  • Hi Simon,
    Oh we DO wish we could fly over to your house for a play date! It was good to hear your request when I was talking to your mom tonight.

    We are holding you all in our hearts, thinking about you and sending lots and lots of love. I hope and pray you can keep that back pain at bay, buddy. You are so incredibly brave and strong, and I am sorry you've been hurting.

    Today I accidentally (?) dialed your Gram &amp Grandad's telephone number and had a good conversation with Ann. She reminded me that your cousins &amp aunts &amp uncles will be headed your way soon. That sounds like QUITE the slumber party!

    We'll keep checking in, and as ever we send you lots of good energy and hope.

    with our love &amp hugs,
    Rebecca &amp crew

    Wednesday, June 09, 2004 -- 00:30:43 (EDT)
    Name: madi, lexi, lawrie and curt
    Location: Seattle,
  • Our hearts ache when we read the parts of your June 7th posting about the cancer progressing and at the same time we celebrate the joy of Simon finishing 1st grade, hitting and running the bases, and we love picturing Miriam and Simon getting ready for a sleep out with their new sleeping bags.
    We love you, think about you, talk about you and pray with and you daily!
    Madi, Lexi, Lawrie and Curt

    Tuesday, June 08, 2004 -- 01:31:48 (EDT)
    Name: Marcie Obstfeld -- Email:
    Location: Irvine, CA USA
  • Hi Simon! I read the goobly-gook message from your Mom - boy was that confusing! The one thing I did understand was that you may be coming to Los Angeles for some special medicine. If you do come to Los Angeles that is pretty close to where we live and fairly close to Legoland too. We look forward to going to Legoland with you and your family. There are a lot of people where we live who are working on finding new medicines for curing cancer. And they are smart people too. I am sure before too long you will find the right medicine to kick the cancer out! Tell your Mom and Dad to let us know if you will be coming out here to Southern California so we can get ready for Legoland! We look forward to reading about your fun summer activites and congratulations on finishing first grade! Love, Marcie, David, Rachel and Noah

    Monday, June 07, 2004 -- 12:35:47 (EDT)
    Name: Marta, Paul, Sam -- Email:
    Location: Ann Arbor,
  • Simon,

    Congratulations on finishing 1st grade. That is a really big step. When our son, Sam, was in 1st grade, it seemed to me it was a year that he went from being a little kid to being a big kid - whole days in school, learning, making friends, and finding out how much he could do all by himself. It sounds like you learned to do a whole lot - nice going.

    We had a surprising experience a couple weeks ago. There was a really big storm in Ann Arbor, and we had more rain in a shorter time that ever before. The Huron River flooded, flowing out of its banks in many places, including in our back yard. We had a really big, moving lake in our back yard -- all the grass was covered for yards and yards, and the water was so deep that a grown up wading was up to his or her knees. I think the size of it was more than 1/2 a football field. We got some ducks swimming in our back yard, which we thought was very cute. And then we noticed that there was something else - something in the water - and we were seeing more and more movement. It turned out that we had hundreds (I really think so) of carp, swimming in our back yard! They were big, too. I estimate they were 15 or 20 pounds each. And I gotta tell you - a Huron River carp is an ugly fish! I was worried that they wouldn't know how to get back to the river when the waters went down, but I should have known that creatures are a lot smarter than that -even carp! After about 4 days, the water levels dropped (because it stopped raining) and the water from our yard drained back into the river, and the fish went back with it. It was exciting, but I was relieved to see them go.

    We look forward to reading about your summer, and we are really hoping the treatments will keep the cancer in check so you can have some fun.

    Love from all,
    Marta, Paul and Sam (the very grown up boy)

    Saturday, June 05, 2004 -- 15:48:42 (EDT)
    Name: Kris Hopkins -- Email:
    Location: Clinton, NY
  • Hi there! I haven't been able to check your site in a while because Rob and I were in England and had no computer (and not even any time to look for one of those internet cafes, as it turned out). Didn't get to see the Queen, but did see some of her guards (and some beautiful horses!) at Buckingham Palace! Also saw Big Ben and lots of other wonderful sites. Even walked up ~530 steps to reach an upper area of the dome of St. Paul's Cathedral (which they show in Mary Poppins, if you've ever seen that movie...)! It was a lot of fun, but we're glad to be back home again. Do you ever feel that way after a great trip?

    Glad to hear many of your counts are doing well, Simon. And we'll keep thinking positive thoughts about those that still need a little more help. But great news about finishing up 1st grade in fine style! Reading, 'riting and 'rithmetic are all pretty cool, aren't they!

    Take care,

    Kris, etc.

    Friday, June 04, 2004 -- 19:23:55 (EDT)
    Name: Rachel Obstfeld -- Email:
    Location: Irvine, California USA
  • Hi Simon! I was just looking at your message board. You've got alot of messages lately.Just stoping bty to say hi!

    Thursday, June 03, 2004 -- 10:27:58 (EDT)
    Name: Donna Ainsworth -- Email:
    Location: Ann Arbor, MI
  • Hi you all. Though I am an occassional visitor to this most beautiful and poignant site I've never written to let you know that. I met Mary quite a though the Martin Luther King Symposium Committee and though we are only acquainted with each other I did stumble upon the site a while ago and check it periodically. Please count me among the many who hold you in their hearts. My kids are at Ann Arbor Open School where Simon was last year. I'm so glad to hear he's had a joyful first grade year!


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